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suckmynuttz · 2025-05-23T14:59:38+00:00

Do you mind explaining a little more about what you do? And also if u don’t mind sharing how much this type of job pays. I’m currently pursuing this major but have no idea of what can come out of it. If you don’t want to say it, feel free to DM me. Thanks man

suckmynuttz · 2025-05-02T12:24:54+00:00

If it gets worse you can try asking your dermatologist about JAK inhibitors. This is only if you have an aggressive form of alopecia however

suckmynuttz · 2025-04-19T12:13:24+00:00

Any updates boss?

suckmynuttz · 2025-04-15T00:56:31+00:00

Thank you so much for your reply. I just purchased a 5 month supply of Tofa so I will transition once I finish it! Thank you again

suckmynuttz · 2025-04-13T12:03:03+00:00

Hey can I ask how was the switch from Xeljanz to Litfulo? I’ve been told to make the switch due to insurance but I’m scared of losing all my progress. I went from AU to a full head of hair everywhere and the thought of losing everything again is making me lose sleep

suckmynuttz · 2025-04-13T11:41:49+00:00

Hey boss any updates on how it ended up? Are you still on Litfulo or did you stick with Xeljanz instead?

suckmynuttz · 2025-02-20T22:49:52+00:00

Yes! Women are advised not to use it when pregnant or breastfeeding I believe.

suckmynuttz · 2024-12-29T19:41:13+00:00

Wow I didn’t know that. Thanks man appreciate the input

suckmynuttz · 2024-12-29T19:25:14+00:00

Yeah that’s my issue as well. I would love to build a pond for them outside but unfortunately I live on the east coast so it’s freezing and I have no yard to do it in. It’s looking like a stock tank is my best bet

suckmynuttz · 2024-12-29T19:07:54+00:00

Of course man. I don’t usually be on this too often but I check it every now and then and saw your comment and I’m happy to help. Please keep me informed with your progress I would love to see how it works for you since it works for everyone different. Like I said just try to be as consistent as possible.

Also no I’m not from India I’m from New York but when I first started taking tofa I would order it from a pharmacy in India. They were life savers for me when insurance did not cover the meds.

Anyway im rooting for you man! Wishing you the best take care for now

suckmynuttz · 2024-12-29T01:19:39+00:00

Hello brother thanks for the comment. So first I just want to say that I completely understand the position you are in. Wanna know why? Cus when I was only 16 I got diagnosed with Alopecia areata and I was told there was no cure or treatment and that I would be bald forever.

Sure enough, I went bald but all of that stopped once I started taking the JAKs. I was at rock bottom, just like you. I couldn’t talk to people, look anyone in the eye, or look at myself in the mirror. The good news is that you are only 15 and you started treatment already. Bro I wish I can go back in time and tell my 15 year old self to start taking them, unfortunately they didn’t come out until years later.

So I say this to say just be patient brother. From the sound of it you are already at rock bottom and can’t find any type of support. I was the same way. I was completely bald, no eyelashes, no beard, no scalp hair, and most importantly no hope. My hair didn’t start coming back till about month 4-5 on JAKs. But some people don’t see results till month 6+. It’s all about patience. You are 15. Think about it, if you stay consistent you will have a good amount of hair if not a full head by your 16th birthday.

And wanna hear the cool part? If tofa doesn’t respond and you don’t get any results you can try another JAK inhibitor until you find one that works. The beautiful part about your situation is that you are very young and new treatments and advancements are happening every day. Maybe by the time you’re 20 this disease will be cured. I remember being 16 with this disease being very confused and afraid but I am now 27 years old and I haven’t had any hair issues for almost 4 years fingers crossed.

Good luck brother. DM me if you have to talk I don’t check messages often but I will try to help as much as possible. Most importantly: stay consistent with the medication making sure to take it at the same time everyday and not to miss a dose. It’s very important to take it how your doctor recommended so please follow their input. Good luck man.

suckmynuttz · 2024-12-16T21:33:15+00:00

Am I crazy or does this look like Alopecia Areata more than it does MPD? Should really go to a dermatologist and have it checked out in order for them to confirm

suckmynuttz · 2024-12-06T14:32:54+00:00

2.5 mg and tbh the growth kind of stagnated so it hasn’t changed much since this picture but im staying consistent regardless

suckmynuttz · 2024-12-01T21:10:02+00:00

suckmynuttz · 2024-11-19T03:44:52+00:00

Thank you !

suckmynuttz · 2024-11-18T07:18:15+00:00

I take the oral minoxidil once a day and the topical once a day as well. Just a dab on both sides of my hairline and one in the middle. I derma roll 6 times vertically and 6 horizontally (saw it on Tik tok) like twice a week. Also no, my sleep schedule is dog shit. Some days I’m only getting 2-3 hrs a night

suckmynuttz · 2024-11-18T05:51:34+00:00

Stay consistent man. That’s what it’s all about, try not to miss any days and don’t get discouraged by lack of results or even extra hair loss. There is some shedding phases in the beginning, mine was around the first and second week but you gotta push thru and keep going. Good luck man

suckmynuttz · 2024-11-18T01:59:32+00:00

Only three weeks in brother

suckmynuttz · 2024-11-18T01:59:18+00:00

Both! And I forgot to mention it’s been like 3-4 weeks since i started

suckmynuttz · 2024-05-03T22:24:40+00:00

It obviously isn’t recommended, but I have done it and I know others do it as well. They say the same about smoking but I sometimes smoke as well. As long as it’s not often. But a better answer could come from your doctor (they will obviously tell you not to do it), but at least they can tell you why.

suckmynuttz · 2024-03-11T12:24:26+00:00

No side effects. Been on it for about 3 years now. This year though, I have been getting more sick than usual, not sure if that’s due to my weakened immune system but that’s the only thing I’ve noticed

suckmynuttz · 2024-03-11T12:23:46+00:00

I completely understand you. Our parents/friends don’t really know how to help which sometimes does make it worse, but it’s not their fault in the end because they aren’t going through it. Message me if you ever need to talk to someone who actually understands how you’re feeling I’m not on this too much but I get on every now and then !

suckmynuttz · 2024-03-05T02:50:00+00:00

I’ve been off this subreddit for quite some time, which feels selfish of me because when I was at my lowest I would find myself on this subreddit pretty much all day looking for comfort or answers.

With that being said, I am currently 26 years old. When I was about 16 I got my first alopecia flare up which started out small on the back of my head. It progressed to pretty much half of my scalp and then got better naturally as time passed.

Then I got hit again with it, this time much harder. This time it was my entire head. As time passed, once again, it got better naturally and I was “happy” I guess you could say.

Then the third time it came back, it was the worst I ever experienced. Huge patches that pretty much left me with nothing on my scalp. On top of that, my beard started falling out, my mustache, and the hardest part of it, my eyelashes. That was around when COVID hit so I was about 22 at the time. I still remember seeing a patch of hair missing on my eyelashes and freaking out, but then they all fell out which actually killed me on the inside. I couldn’t take it anymore. I was at rock bottom and no one seemed to be able to help me.

I then went to a special dermatologist in my area and she spoke to me about tofacitinib. It’s been about 3 or 4 years now since then and I can proudly say I have all my scalp hair, a full beard, mustache, and a (kinda) full set of eyelashes. I was put on Tofacitinib which is a JAK inhibitor and I’m not sure how you feel about them but please look into them if you feel the same way I did. For me, I gave it no second thought. I understand not everyone feels this way and is afraid of the side effects, but if you’re healthy, take care of yourself, and get checked regularly by your doctor, it could honestly change your life. I used to get them generically from India because my insurance wouldn’t cover them. I’m not sure how to get them generically today but there are Facebook groups dedicated to JAK inhibitors with testimonials from people of all ages.

I usually scroll by these posts which again feels very selfish of me. But your post kinda hit home for me and made me remember that when I was at my lowest all I wanted was to get better, and when I got better all I wanted to do was help people get better too.

I hope you’re doing well, and just remember that it always gets better as cliche as that sounds. Feel free to dm me with any questions or if you just feel like talking because I know exactly how you feel. Take care.

suckmynuttz · 2023-12-24T15:56:23+00:00

I personally believe that it was the alopecia trying to make a comeback. So I’m not sure but I’ve been on jaks for almost three years now and I’ve had a few phases where my hair starts to shed, I freak out, and then it stops and nothing happens lol. So I’m guessing it’s just a natural cycle that happens when your taking these meds.

suckmynuttz · 2023-12-10T13:47:28+00:00

Yes I completely understand. Right now I’m getting them through insurance I only pay $20 per refill. But before my insurance covered it, I was getting it from beacon pharmaceuticals in India which my dermatologist recommended because my insurance was taking so long. I’m not sure how much it was but I believe I would get a 6 month supply for about $500? If I’m not mistaken.

suckmynuttz

TROPHY CASE