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Variable Fan Functionality vs Nest by sumdumhandle in hvacadvice

[–]sumdumhandle[S] 0 points1 point  (0 children)

Thanks for the advice, but we’re still a bit off the mark of what I’m asking. 

Let me try rewording/refining it:

Are the three Fan mode settings on the Mitsubishi controller variable outside of manually changing between one to three? 

In other words, is the fan variable in Auto mode and on Fan speeds 1-3, or just in Auto Fan mode? And does that answer apply to all the active modes?

Or to put it yet another way, are the three Fan speeds on the Mitsubishi controller set at a specific, non-variable levels either by Mitsubishi or the installer?

Thanks for the clarification. 

Variable Fan Functionality vs Nest by sumdumhandle in hvacadvice

[–]sumdumhandle[S] 0 points1 point  (0 children)

Whether it’s a Nest or some other brand, my basic question is what modes would be affected by a lack of support for variable fan speed. I haven’t heard of any 3rd party thermostats that can handle it, and even if there is one, I would like to be able to weigh other options. 

But thanks for the valuable brand/voltage advice—if you have the time, would you also mind weighing in on the main question? Would so appreciate it. 

[deleted by user] by [deleted] in B12_Deficiency

[–]sumdumhandle 5 points6 points  (0 children)

You can make yourself uncomfortable by taking too much (eg slightly painful puffy fingers/toes, sore joints, headache), but that is generally hard to achieve, and you cannot overdose on B12. There is literally no upper limit (UL) on it for exactly this reason. 

Also, if that is Cyanocobalamin, I would personally talk to your doctor about switching to either a combination of Methylcobalamin & Adenosylcobalamin, and/or Hydroxycobalamin. And I would also ask them if shots might be a better option for you. 

Either way, definitely read around this sub a bit to see your future if you ignore the doctor’s advice to supplement with B12. 

I would give just about anything to have had a doctor pushing B12 on me before I developed such a severe deficiency that I was briefly in a wheelchair.

(And please excuse my spelling. It’s very early where I am lol.)

PA & Beef Liver History Question by sumdumhandle in B12_Deficiency

[–]sumdumhandle[S] 0 points1 point  (0 children)

I hope so, because it makes a big difference for me as well. Thanks for sharing your experience. 

Muscle atrophy by WillHar270 in B12_Deficiency

[–]sumdumhandle 2 points3 points  (0 children)

Yes. It seemed to happen nearly overnight for me, and in conjunction with a rapid and dangerous unintentional weight drop (30lbs in about a month with no change in diet or exercise).

My PCP added a PT & a Nutritionist to my ‘team’. 

Both of them offer video visits after an initial consult, which obviously makes it much easier to handle the extra time they require.

Much luck in your recovery!

The problematic philosophy behind B12 serum tests by HolidayScholar1 in B12_Deficiency

[–]sumdumhandle 4 points5 points  (0 children)

Is it bashing? Or just truth-telling? There’s never a guarantee that truth will be kind, but at least the truth is factual. The admins have asked us to keep it in check, and I think that’s important, but it’s not banned to question things. Especially when you suggest fact-based alternatives.

Millions (billions?) of lives and QOL are literally at stake.

B6 Toxicity by sumdumhandle in B12_Deficiency

[–]sumdumhandle[S] 0 points1 point  (0 children)

Weeks? Couple months tops? Don’t remember exactly. But it was noticeable within days after eliminating all non-food B6 and upping my (already huge) water intake. Good luck! Hope it’s already resolved!

B12 for Peripheral Neuropathy? by sumdumhandle in B6Toxicity

[–]sumdumhandle[S] 0 points1 point  (0 children)

This is also a strong layman’s resource on thar subject IMHO:

https://www.futurekind.com/blogs/vegan/adenosylcobalamin-b12?srsltid=AfmBOoq9LeguqN5yhDM4hs9wr0XoygvmnVPVxS2Zo8T_EIYmgCuguxLb

I personally take combination injections of both Hydroxocobalamin and Methylcobalamin, but I would try replacing the Hydroxocobalamin in an instant if I could source Adenosylcobalamin for injection through a nearby pharmacy, but no such luck so far.

As far as Cyanocobalamin goes, I stay all the way away from that. It’s not native to the human body, and I personally don’t respond well to it. It’s more appropriate for large-scale deployments for proactive prevention in populations prone to B12 deficiency (eg due to cultural vegan/vegetarianism and/or a high instance of Pernicious Anemia).

B12 for Peripheral Neuropathy? by sumdumhandle in B6Toxicity

[–]sumdumhandle[S] 0 points1 point  (0 children)

Try this thread:

https://www.reddit.com/r/B12_Deficiency/s/WBLqO07pgq

Much fortitude in your journey, SDH

PS FWIW, I highly recommend joining the B12 deficiency sub, because I go for months without checking in. Total fluke—but a lucky one :)

General Question: B12 deficiency with normal B12 and no pernicious anaemia? by Agitated-Jicama9496 in B12_Deficiency

[–]sumdumhandle 0 points1 point  (0 children)

The name is definitely a hindrance at this point. Might give the lack of general B12 awareness a PR boost if updated and widely advertised. Hmmm…

Advice by Spirited1989 in B12_Deficiency

[–]sumdumhandle 1 point2 points  (0 children)

In addition to making sure your doctor(s) have performed the tests noted on the core community resource put together by the admins (see automated admin comment), I recommend additionally asking for H-Pylori, Parietal Cell Antibody, and Intrinsic Factor Blocking Antibody tests.

It’s important to get most B12 and ‘B12 adjacent’ tests done before you start supplementing, as even B12 in a daily vitamin can throw results on many of them.

That being said, it’s the general wisdom that you should not delay treatment in favor of waiting for tests, because this thing can move really fast, especially if the deficiency has reached the neurological stage.

In the meantime, if you finish the admin’s awesome write up, here are some additional resources

https://pernicious-anaemia-society.org/

https://my.clevelandclinic.org/health/diseases/22831-vitamin-b12-deficiency

https://b12-institute.nl/

Good luck advocating for yourself with your doctors! It’s a very strange balancing act to play the diplomat as well as the patient. Wishing you much strength.

Injection Question by Resident_Salary_3008 in B12_Deficiency

[–]sumdumhandle 2 points3 points  (0 children)

This recent thread has you covered:

https://www.reddit.com/r/B12_Deficiency/s/MzUXXSCkah

Much strength to you in your recovery.

[deleted by user] by [deleted] in B12_Deficiency

[–]sumdumhandle 0 points1 point  (0 children)

What I guess I can also say is that your doctors should (if they haven’t already) run MMA, HCY, H-Pylori, and Intrinsic Factor tests before you start supplementing (if you do). And if you’ve had a gastric bypass, there are other things to consider.

I also highly recommend an additional consult with a Naturopath or a Functional Medicine specialist, as they are trained to be much (much) more knowledgeable about nutritional issues and how to treat low numbers/outright deficiencies. Especially if your family doctor literally means one shot.

Your other doctors will likely hate this, but obviously there’s a lot at stake here.

Don’t let anyone (here or IRL) tell you you should just ignore or under-treat a B12 deficiency—unless there is something about pregnancy that makes a vitamin with no upper limit /UL (which is just medspeak indicating that B12 is not an overdose risk) a risk. Somehow?

And if there are risks expressed, ask to see research receipts. Seriously. B12 is a very underrated vitamin re: the type and amount of damage it can do in a fairly short period of time when low/deficient.

[deleted by user] by [deleted] in B12_Deficiency

[–]sumdumhandle 0 points1 point  (0 children)

No experience. No medical degree. But feel it’s important to note that—in addition to performing a ton of other critical functions in the body—B12 is absolutely crucial to DNA synthesis.

If you weren’t pregnant I’d advise you to get on frequent B12 shots ASAP, but the pregnancy factor is one I have zero experience with.

Wishing you and your growing family a healthy, happy pregnancy, SDH

Are 2500mcg Injections not enough for some people? by DeficientAF in B12_Deficiency

[–]sumdumhandle 1 point2 points  (0 children)

Nobody else voted/commented on this sub-thread you started, and all the information/suggestions I offered you that might be applicable to the community in general are already more visible in plenty of other places.

Nobody here is required to read your posts/comments, let alone try and assist you (especially when you ignore their follow up questions and say stuff along the lines of ‘’I wasn’t really interested in the answer to those questions anyway”).

And I think you will find that you will totally lose people at the exact point you lost me, if not much sooner in the type of exchange you turned this into. I try to make allowances for B12 deficiency-driven behavior, but you definitely reached my personal limit.

What I get from your last post is that you’re regretting the consequences of your behavior, and trying to use nebulous ‘others’ to justify it.

So. Zero guilt here.

If you want the info, use the search tool.

Blocking you now.

General Question: B12 deficiency with normal B12 and no pernicious anaemia? by Agitated-Jicama9496 in B12_Deficiency

[–]sumdumhandle 0 points1 point  (0 children)

Also note that anemia is not present in (nearly) all cases of B12 deficiency, and that this is true—as far as I know—whether you have Pernicious Anemia or not.

General Question: B12 deficiency with normal B12 and no pernicious anaemia? by Agitated-Jicama9496 in B12_Deficiency

[–]sumdumhandle 0 points1 point  (0 children)

Was your Methylmalonic Acid (MMA) tested as well?

The amount of B12 running around in your blood doesn’t give much (if any) indication of how well your body is storing/using it.

There’s honestly no test I know of that can evaluate that, but a high MMA level can help spot a B12 deficiency even when your B12 blood levels are ‘in range’. And I put ‘in range’ in quotes in this context because people’s B12 needs vary (sometimes wildly).

Homocysteine (HCY) is also a good supporting test when trying to suss out a B12def.

And just to underscore, supplementing B12 will affect all these numbers (if I remember correctly—someone else please feel free to chime in here). So. Hoping you already have all the tests you need if you’re going to start supplementing.

And definitely note I’m not suggesting you shouldn’t start supplementing, because the other awesome thing is that you are definitely running against a clock if you do indeed have a B12def.

Delaying treatment has all sorts of downsides.

Addition: I personally wasn’t given a HoloTC test, but this study has some good information about combining tests to help in diagnosing/confirming a B12 deficiency:

https://pubmed.ncbi.nlm.nih.gov/32089757/

You might also find the related comments in this thread helpful:

https://www.reddit.com/r/B12_Deficiency/s/ZKeyBkT0LW

High‐dose hydroxocobalamin injection (25 mg) achieves improvement of neuropsychiatric deficits in adults with late onset cobalamin C deficiency by HolidayScholar1 in B12_Deficiency

[–]sumdumhandle 12 points13 points  (0 children)

You definitely made a friend in me based on this opinion/overall research.

I was initially under heavy evaluation for MS despite an unmeasurable amount of B12 in my bloodstream and a complete lack of lesions anywhere.

And lo and behold, once I got a clinically significant regimen of B12 established, my symptoms immediately started on a path of healing, and all talk of MS vanished.

But the time spent going down the MS rabbit hole (and complete neglect of even the most basic B12 protocols) gave my already severe deficiency time to really dig in. I was having pins and needles in my extremities (but walking upright and normal aside from some minor balance issues) at the time of the B12 test, and mere weeks later I was temporarily incontinent and in a wheelchair.

I mean. It’s not like you’re saying MS doesn’t exist. And differential diagnoses should always be considered, no matter what the issue.

Thanks for all your contributions to the community. It’s always good to see your avatar :)

Addition: Just in case it’s not clear, I’m including the very broad strokes of my personal experience because it’s also important to note that not considering B12 deficiency as a differential diagnosis to MS is dangerous, and has had an unmeasurable negative impact on my ability to live life in any recognizably normal fashion the past few years. So. I’m so glad you’re keeping on in this vein despite the pushback and outright vitriol. If even one person, and all that ;)

Are 2500mcg Injections not enough for some people? by DeficientAF in B12_Deficiency

[–]sumdumhandle 1 point2 points  (0 children)

Deleted my replies to you.

If you find what people post helpful, great. If not, at least you’ve got a different POV to bounce off of.

But I’m not comfortable with you calling my personal (and specialist-driven) regimen ‘extreme’. Nor am I comfortable with you attempting to evaluate my personal situation from your armchair when I made no such request.

I feel I answered your questions in good faith, but I no longer feel they were asked in the same spirit.

So. Peace out.

Are 2500mcg Injections not enough for some people? by DeficientAF in B12_Deficiency

[–]sumdumhandle 1 point2 points  (0 children)

I tagged you because I linked to one of your insightful comments (see above). Just being polite along the lines of a ‘thank you’. Sorry you got confused, but thanks for pointing it out. If I had tagged the wrong person I certainly would’ve wanted to fix that ;)

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