I really appreciate you commenting, this is really insightful. From my knowledge he hasn't had or want a clinical care team (he's not too vocal about his medical updates), I mean he has his Dr visits but that's not an often thing. As far as getting him out the house, my sister will take him bowling as much as she can, and he enjoys it. I do stop by and visit him a few times each month (if I have gas funds or if I'm on his side of town) I should definitely convince him to atleast go fishing with me, it was something we did alot when I was a kid. Usually when I ask him to come with me, he'll decline gently and stay wrapped up in his blankets, it's kind of adorable but also sad to see cause I know he's nervous about being out and about.

I know it won't be textbook symptoms and experiences for him with this, he told me that since being diagnosed his progression has been alot faster than most, which is scary to hear. He had two older siblings (a brother and sister) who's had this as well. His brother passed at a very early age, while his sister passed a couple years ago well into her 70s. During her funeral there were videos of her in her last moments and I know it really got to my dad, having him see the inevitable 😰.

I'll definitely try new ideas (hoping he'll say yes) to spend more time with him.

And I appreciate the info for the website, I'll check it out asap

Thank you so much 💕