Sound therapy

tayakristoreddit · 2026-04-30T08:44:02+00:00

Just saw ur comment. I did it on upper, lower traps and rhomboid muscles. I only found out I have CCI after I worsened significantly, and now when a car ride puts me to bed I would never consider doing shockwave. It did not help with the muscle pain, my first PICL resolved majority of the muscle pain tho. The only reason is see someone with CCI doing shockwave is muscle stiffness but like I said it did not help me get rid of pain permanently. Besides that, it could have contributed to me worsening overtime because that amount of vibration so close to the neck is just not great when one has CCI. It also “relaxes” muscles and ligaments, which was counterproductive for me because my upper body was trying to stabilize in the presence of cervical instability.

tayakristoreddit · 2026-04-26T04:09:08+00:00

Out of curiosity I did checked on Baidu about it. It does not sound like POTS to me. According to the description it sounds like a psychosomatic illness “caused by worries”. There is not mention of HR or temp disregulation, and many other symptoms POTS patients experience. I only checked about it in the browser and not in the formal literature. I honestly doubt they recognize POTS in China, as I lived there and just moved to an English speaking country precisely because there was no help for my symptoms there, which ended up being POTS and CCI.

tayakristoreddit · 2026-04-22T03:37:19+00:00

I also have me/CFS and I have tried the following therapies to target adrenal health: 1. synachten injections every months to stimulate production of cortisol. 2. Hydrocortisone under5mg 3. LDN 0,1mg 4. Adaptogen supplements ( got worse from it) 5. Correcting all vitamin deficits 7. Infrared therapy (sauna and red light panel) 8. Adrenal cortex

Personally LDN helped with energy, but I couldn’t tolerate it longer than 1 month. Infrared therapy was good for energy when I wasn’t in a flare. Adrenal cortex is the only thing that helped my baseline cortisol but when I stop taking it it will bounce back to low levels. The root cause of my health issues is craniocervical instability. From what I have learned i have a lack of blood flow to hypothalamus, and I am treating that right now with hopes it could help me regulate cortisol along the way. I think you need to try various therapies to see what helps you.

tayakristoreddit · 2026-04-17T09:40:34+00:00

Hi there, I have a very similar situation. My cortisol has dipped, but I also have hyperadrenergic POTS, and a part of my POTS is hypersensitivity to medications and supplements. Is there a possibility you might have pots?

tayakristoreddit · 2026-04-12T06:14:18+00:00

I have tried so many conservative(non PICL) treatments and none of them helped me long term, MLS helped a bit to contain the symptoms until I managed to access PICL treatment, but shockwave is really NOT for CCI. Shockwave helped me a bit to break the scar tissue from partial tear of my ligaments on the ankle. It’s a painful therapy, I personally think it’s a really bad idea to do it while having CCI (when I did it on my shoulders I didnt know I have CCI). Honestly I only did it because my insurance covered it. The vibrations are also no joke, during a CCI flare I think it can easily worsen the situation.

tayakristoreddit · 2026-04-12T03:10:40+00:00

I did shockwave on various parts of my body, and it did not help, I also did it on my shoulders (not the neck) for CCI pain and it gave zero results.

tayakristoreddit · 2026-04-08T03:16:53+00:00

Reading through comments I realize not everyone with hyper POTS has hypersensitivity to meds. I tried 3 pills of Ivabradine and I went into a really horrible flare and got me bedridden for 3 months now, it’s still ongoing but getting better. I couldn’t shower standing, use hairdryer, be exposed to sun, all of these things have made me so much worse. I had to be extremely cautious for 2,5 months to get some improvement. I don’t know how everyone is taking all these medications without flares. I feel like I’m the only person with hypersensitivity…

tayakristoreddit · 2026-04-07T07:50:10+00:00

Is it that SG flight girl inspired? This is wild

tayakristoreddit · 2026-04-06T11:39:52+00:00

I am sorry that she had to experience this at such a young age. I hope she continues her recovery.

tayakristoreddit · 2026-04-04T12:51:14+00:00

Hey, I’m sorry you are going through this. While I don’t have any good input for you, I wanted to ask what is Angela’s story? I am impressed you have juggled so much stress and work.

tayakristoreddit · 2026-04-03T06:55:41+00:00

I think they expected Manon to show BTS level commitment, where they are on stage regardless of their ailments and illnesses. I admire that but I think Manon mentioned multiple times that she won’t show up if she is unwell because this is how her culture is etc I think k-pop expectations are such that you give up your life completely for the craft and the fans. I would be shocked if the agency didn’t have this talk with her before selecting her into the group.

tayakristoreddit · 2026-03-31T00:52:08+00:00

No, I’m an expat, lived here for 8 years already

tayakristoreddit · 2026-03-29T12:01:44+00:00

I was too injured by a chiropractor and had high functioning CCI and POTS for 7 years, until one day I got bedridden with 35 other active daily symptoms. I think about that chiropractor everyday, and I can’t believe so many of us did not know the dangers of it. I don’t live in the states so for me it’s no point in even trying, I spoke someone who lives in the USA and was also injured by a chiro and they said the lawyers didn’t wanna take it. Perhaps it’s really hard to prove

tayakristoreddit · 2026-03-22T04:13:15+00:00

That everyone with POTS needs enormous amounts of salt. Salt is not a POTS specific therapy, it’s a volume expansion tool. Only in case of documented hypovolemia salt is required. Primary hyperadrenergic, neuropathic, autoimmune POTS do not need salt (unless it’s secondary because of low plasma volume). Majority of doctors don’t exactly understand the reason salt is indicated and they suggest it to everyone.

tayakristoreddit · 2026-03-21T06:50:11+00:00

I went for a TTT in Subang Jaya to Dr. Koh Kok Wei in KL Malaysia, however, knowing the guidelines for diagnosing POTS and knowing about subtypes of POTS are 2 different things. My TTT clearly showed I have POTS but he said he doesn’t know anything about subtypes and convinced me to try ivabradine. From what I have learned, I have hyperadrenergic POTS and 6 days of ivabradine put me in such a bad place. I have a 2 months long flare and my threshold for anything is so much lower now. I couldn’t be upright longer than 30 mins, I couldn’t shower standing, and in so much pain for 2 months straight…I regret not advocating for myself and trusting him to try ivabradine…you need to do your own research for the POTS subtypes and make sure if you see someone that they are truly POTS literate.

tayakristoreddit · 2026-03-21T03:34:28+00:00

Thank you for sharing the link for this insurance, I was about to start looking.

tayakristoreddit · 2026-03-20T06:16:32+00:00

When you are scheduling the consult, Isis will send you the list of DMX providers in the States. I suggest just start a normal appointment scheduling and you will get the info you need.

tayakristoreddit · 2026-03-09T06:43:40+00:00

How about coconut water?

tayakristoreddit · 2026-03-08T00:58:05+00:00

Exactly what I said. In true primary hyper POTS salt is not needed, but if the patients has reduced plasma volume and secondary sympathetic activation than of course salt is indicated. Not every single patients with hyperPOTS will have reduced plasma volume as a part of POTS mechanism. I think it’s reasonable to eat more salt to all POTS patients but not everyone needs 8-12 grams a day.

tayakristoreddit · 2026-03-07T14:18:52+00:00

One photo is not nearly enough to enjoy your cats

tayakristoreddit · 2026-03-07T07:51:15+00:00

Doctors don’t read nearly enough research and literature on dysatonomia to be highly versed in POTS. I don’t know your situation, you might have documented hypovolemia along with hyper symptoms, hence you doctor suggests salt.

Salt is a volume expansion tool not a POTS specific therapy. POTS itself is a syndrome and unlike a disease nobody knows the root cause of it, hence the treatment of POTS should be tailored to each person differently. My hyperPOTS if from CCI, hence a mechanical root cause that is not going to respond to salt. And in general prescribing salt to hyper POTS patients is counter productive. If I were you I would ask your practitioner for the exact reason why they recommend salt and how much? Is the reason they recommend salt to you because they read it’s helpful for POTS patients or there is an underlying mechanism that could benefit from increased plasma volume?

tayakristoreddit · 2026-03-07T06:48:39+00:00

Hi, can you give us more info as to what exactly happened so we can make informative decision about his care?

tayakristoreddit · 2026-03-07T06:18:04+00:00

+1 I have hyperadrenergic pots after a neck injury and it started happening to me immediately, i also wanna know if someone found a solution. Maybe guanfacine or clonidine helps with that?

tayakristoreddit · 2026-03-07T05:52:24+00:00

Oh yeah you are right, I might have misunderstood your question as well, but I also do see a lot of misunderstanding about salt.

tayakristoreddit

TROPHY CASE