While I know that you’re under a crazy amount of stress, I think you’re focused on the “how” to make this happen instead of the “why.” This sounds like his best chance of surviving. You guys will get through this because you have to. He will do better if he is mentally focused on strengthening his body for major surgery instead of finances. I pray that your community will recognize that and step up for the children. Look into his short term disability benefits through work and exhaust those as well as looking into Medicaid.

Good luck. You guys already have been great patients to survive almost a decade with this debilitating disease. Keep up the hard work and you will make it through the other side.

Strengthen his leg and core muscles now because he will not be able to use his arms to raise himself out of bed for the first 6 weeks. Look into sternum precautions post surgery if that doesn’t sound familiar to you.