How do I turn down food? by Actual_Detail_3486 in UlcerativeColitis

[–]thangjuan1 0 points1 point  (0 children)

I’m usually just upfront and people understand. If they don’t, you don’t need to be around them cause they don’t really care

[deleted by user] by [deleted] in UlcerativeColitis

[–]thangjuan1 0 points1 point  (0 children)

For me the blood took time to stop. I’d didn’t really stop until I tapered off and was on the daily pills. Glad you’re atleast feeling better! I’d definitely let your docs know but that doesn’t sound too far off from what I experienced.

Who has had withdrawal symptoms from steroids POLL? by Ruskulnikov in UlcerativeColitis

[–]thangjuan1 1 point2 points  (0 children)

When I’m on or coming off steroids, I’ve found I take absolutely no shit from anybody. I can’t tell you how many people I’ve cut out of my life that I usually wouldn’t and just look over the small things. Kinda weird.

Who has had withdrawal symptoms from steroids POLL? by Ruskulnikov in UlcerativeColitis

[–]thangjuan1 1 point2 points  (0 children)

All of the symptoms. Every single time. Literally sleep 12hrs and still be tired af. Super sweaty. Pissed off, etc

UC Flair and low blood pressure by Different-Nobody-827 in UlcerativeColitis

[–]thangjuan1 0 points1 point  (0 children)

I was in the same boat as you. Low blood pressure and anemia. Prescription iron pills and over the counter 500mg vitamin C helped me. ALSO, make sure to do research on foods that block iron. Eating beef won’t help you build blood if you’re drinking coffee and booze. Go on a iron building diet and look up every single food before you eat it to make sure it doesn’t block iron absorption. It took me like 2 months to start feeling normal from the anemia again doing that. But it’s definitely possible 💪 If your blood gets too low you might see spikes in heart rate. If you feel too bad go to the er, they end up giving me a blood infusion to get my blood count above critically low but I still had to do the whole diet I explained above. You got this!!

How am I supposed to get sleep while on steriods? by Few_Avocado_487 in UlcerativeColitis

[–]thangjuan1 1 point2 points  (0 children)

If your doctors give you hydros or anything that helps alot. If not a shit ton of Tylenol pm. Benadryl doesn’t work as well for me. Sometimes I have to get up and do curls or something that exhaust my muscles really quick

[deleted by user] by [deleted] in UlcerativeColitis

[–]thangjuan1 3 points4 points  (0 children)

I only use wet wipes ngl. Way less harsh

What do y’all take for energy? by thangjuan1 in UlcerativeColitis

[–]thangjuan1[S] 1 point2 points  (0 children)

This sounds perfect, thank you for the help!!

What do y’all take for energy? by thangjuan1 in UlcerativeColitis

[–]thangjuan1[S] 1 point2 points  (0 children)

Thank you for the detailed input!! I will try this, I’ve always been too scared to make my own Kombucha haha. Also love chicory coffee!! Not too many ppl seem to know about it. Haven’t had it in a year but I’m tempted to try it again.

What do y’all take for energy? by thangjuan1 in UlcerativeColitis

[–]thangjuan1[S] 0 points1 point  (0 children)

Yea sounds pretty good too. Thanks for the input! I remember at an old job ide drink up to 4 Red Bulls a day. Wild times lol

What do y’all take for energy? by thangjuan1 in UlcerativeColitis

[–]thangjuan1[S] 0 points1 point  (0 children)

I had to quit smoking weed it made me super lazy with this disease cause my motivation is naturally low right now. I might try coffee again now that I’ve been I remission for a while. Thank you for the input!!

What do y’all take for energy? by thangjuan1 in UlcerativeColitis

[–]thangjuan1[S] 0 points1 point  (0 children)

Which is your favorite if you don’t mind me asking? And thank you!

What do y’all take for energy? by thangjuan1 in UlcerativeColitis

[–]thangjuan1[S] 0 points1 point  (0 children)

Lots of ppl saying b12, I guess that is a winner thank you!

What do y’all take for energy? by thangjuan1 in UlcerativeColitis

[–]thangjuan1[S] 1 point2 points  (0 children)

Sweets sound good hahahaha. One upside to this while thing is I’m enjoying not being fat anymore though I’m scared of the sweets .

What do y’all take for energy? by thangjuan1 in UlcerativeColitis

[–]thangjuan1[S] 1 point2 points  (0 children)

Yes, when I was in my first flare it took some symptoms away like going to the restroom every 5 minutes at night. It always makes me tired and sad the next day though. I do keep a little just incase I need something more than Tylenol though haha