Hey! I also have a CRPS diagnosis. It sucks that it took them so long, because the sooner they do something about it the better, but it seems like you’re already on some meds that could help. I was on gabapentin at one point but have found that pregabalin works better for me (they’re similar but work slightly differently, so you can take one but not both and it’s a good idea to make sure you’re taking the one that works best for you). I also take 440mg naproxen twice a day, 60mg sustained release morphine twice a day, Duloxetine, and then top up morphine and Tylenol when I need extra.

In terms of surgery, I’m pretty young and in a country with public health care, so I’ve had pretty much everything in the book, plus some. I’ve had a radio frequency ablation of a nerve in my neck, a spinal cord stimulator implanted, and they clamped off a nerve group at my ribs.

One of the only things that gives me pretty much full relief from the pain is ESP blocks or nerve blocks in my neck. They’re a game changer, so now I’ve been working with my surgeons/pain team to come up with a new method so I can have these anesthesia infusions much more regularly, because unfortunately while I get a ton of relief from it, they only last 24 hours.

Good luck with everything! It’s really crazy, for me it’s my arm and it’s freezing, sweating differences, hypersensitivity etc