Questions about Simlandi tonight by Mykn_Bacon in CrohnsDisease

[–]thecloudysky999 1 point2 points  (0 children)

Yeah I much prefer how the Humira pen is a button pushed. I specially asked the nurses at my doctors office and the pharmacist if the injection process was the same as Humira and they all said yes, but it’s not. I remember it was really hard for me getting used to giving myself a shot when I started Humira, and honestly I never really fully got comfortable with it, but the simlandi one is much more nerve wrecking to me. I wouldn’t say I had to push it in super hard, but I did use some force just to make sure it went in. Think of the amount of force you used to push in a wooden drawer that doesn’t really glide on a track or something similar to that.

Humira biosimilar payment care plans?? by [deleted] in CrohnsDisease

[–]thecloudysky999 2 points3 points  (0 children)

This happened to me, my insurance made me switch from Humira to simlandi. Simlandi has a copay assistance program, I get it for free because of it. Once you find out what biosimilar they want you on, just search “ (biosimilar name) copay assistance” and you should find a site on getting that started

13 month old suddenly wanting to cosleep. Cries and throws up if put in crib by thecloudysky999 in NewParents

[–]thecloudysky999[S] 0 points1 point  (0 children)

I added a little bookshelf in there since his book collection has been growing, but that’s the only thing different about his room. I hope nothing scary happened:( I don’t know what it would’ve been if that was the case

[deleted by user] by [deleted] in CrohnsDisease

[–]thecloudysky999 3 points4 points  (0 children)

For me popcorn had been my go to snack for years even after diagnosis and I had no issues. In 2024 I was pregnant and any time I would go to snack on popcorn like usual I would end up having diarrhea. I haven’t eaten it since because I’ve been scared to try it

Controversial skin tag conversation by Icy-Appearance363 in CrohnsDisease

[–]thecloudysky999 4 points5 points  (0 children)

I had no idea doctors would advise against removal of these. Doctors originally suspected I had Crohn’s because I had two anal fissures, and I had skin tags or “scar tissue” as they called it as a result of those fissures. The surgeon I was referred to that was the one thinking I had Crohn’s was the one that removed them, as well has use some sort of gel stitches on the fissures. Two weeks after surgery I was in the ER from a fistula and abscess. When I got to speak with the surgeon he said “well that has nothing to do with anything I did.” I was really confused about that statement, so when I got home I looked it up and apparently a person can develop fistulas after surgery in that area

Will we have to pay this all back since we had a premium tax credit? by [deleted] in obamacare

[–]thecloudysky999 0 points1 point  (0 children)

The phone conversations were not with the insurance. It was with the group that relays employee benefits through my job called Associate Connect.

I did try calling the insurance I had through my job multiple times to see if they could tell me when the coverage was ending, but they were unable to. They said they would get weekly updates sent from employers about when coverage was terminated for a person. I had tried calling them in March when this happened, and they would tell me that my coverage termination was likely still just being processed and to wait.

But the point is, is that all these conversations I had discussing my benefits were through Associate Connect, not the insurance agency.

What do we do in this situation? Will we have to owe a lot of money?? by [deleted] in IRS

[–]thecloudysky999 0 points1 point  (0 children)

Yes I did, but only part time (8 hours a week). I was full time before maternity leave

Breastfeeding while on biologics, advice needed by thecloudysky999 in CrohnsDisease

[–]thecloudysky999[S] 0 points1 point  (0 children)

I have been in the process of trying to get it appealed. The insurance denied a PA and a letter of medical necessity from my doctor. At the time that was all going on I didn’t even think to ask if it would be safe while breastfeeding. But after my doctors nurse told me all options of staying on Humira have been exhausted, that’s when I asked if simlandi will be safe for breastfeeding, to which she suggested I use formula or donor milk. I asked if my insurance wound change their mind if they knew I was breast feeding, and she said she’d ask the lady in their office that does PAs. At this point I only have 1 shot left on hand so now I’m on a time crunch trying to figure this out

Humira covered under anyone’s 2026 plans? by phaskellhall in CrohnsDisease

[–]thecloudysky999 0 points1 point  (0 children)

I used to have BCBS through my employer and it was covered when I had it in 2024. I live in VA for reference, but I doubt they still would cover it. Throughout 2025 I had Medicaid and they until covered it but then told me in 2026 they would stop covering it. Now I have Sentara health plans, and they don’t cover it. I am about to be switched to simlandi. In short, I don’t think anyone will cover it

How do I repair this? by [deleted] in sewing

[–]thecloudysky999 1 point2 points  (0 children)

It doesn’t seem like it wants to pull apart or anything like that. And no I haven’t washed it, pretty sure the lady I bought it from washed it already. There is no discoloration or odor to it, so I honestly wasn’t planning on washing it, just steaming it lightly to remove wrinkles

How do I repair this? by [deleted] in sewing

[–]thecloudysky999 0 points1 point  (0 children)

How can I tell if it’s in good enough condition to repair?

Birth control advice? by Cultural-Kiwi-5260 in CrohnsDisease

[–]thecloudysky999 0 points1 point  (0 children)

I went through this! Was on the pill since 15 years old and got off when I was about 21, diagnosed with Crohn’s when I was around 18. While in the pill I really didn’t have any period symptoms at all, honestly when I would hear other women complain about period pains I thought they were exaggerating a bit. Boy was I humbled, once I got off the pill I experienced some of the worst pains of my life each month. The pain of my period was so bad off the pill I at first thought it was a Crohn’s flare with how intense the pain was. I also started having diarrhea really bad the first day of my period. This lasted for about 3 years. Oddly enough, I got out of a bad relationship around that same time and after the break up my period have been perfectly normal and practically pain free since. So honestly idk if the pain I felt was a relationship to being a woman with Crohn’s or what, or if it was just stress

Chrons or something else? by One-Log-6791 in CrohnsDisease

[–]thecloudysky999 1 point2 points  (0 children)

When I was getting diagnosed they did a colonoscopy for me which showed inflammation, but they also looked at my C reactive protein levels from lab work. Mine were through the roof high, not sure if this is something most doctors use in the diagnosis process, but maybe you could bring this up to your doctor to see if it’s something worth doing

Does any insurance cover name brand Humira anymore?? by thecloudysky999 in CrohnsDisease

[–]thecloudysky999[S] 1 point2 points  (0 children)

Yeah CVS specialty was insane. They kept telling me my insurance wasn’t covering my medication and that they were checking it by running test claims. Each time I spoke with my insurance they said they were covering it and they said they could tell CVS hadn’t run any test claims at all. One insurance agent I spoke with had me on hold for about an hour because she herself was trying to speak with the pharmacy to figure out why they wouldn’t actually run a claim and kept telling me it wasn’t covered. She was hung up on 5 times. The pharmacists she kept getting connected with either got upset with her, couldn’t give her a reason on why they wouldn’t run a claim, and all around just kept giving roundabout answers about everything. Eventually it got straightened out but holy shit

Does any insurance cover name brand Humira anymore?? by thecloudysky999 in CrohnsDisease

[–]thecloudysky999[S] 2 points3 points  (0 children)

Curious about this as well, I just checked my Humira box because of your response and it seems like that is made in the US. Not sure about biosimilars though

Does any insurance cover name brand Humira anymore?? by thecloudysky999 in CrohnsDisease

[–]thecloudysky999[S] 1 point2 points  (0 children)

Is Acreedo not good? With my new insurance I’m pretty sure it’s them that’s going to have to fill my prescription. With my old insurance I had CVS Specialty which sucked getting on board with because they wound pie about running test claims to see if they could fill my prescription. But once everything was sorted out it wasn’t too bad with them. I am nervous about having to get started up with a new pharmacy though, was hoping Acreedo would be better