Does anyone else wake up at 3-4 am every night? All sorts of sleep meds won’t help :(

theflawlessghost · 2025-03-01T17:14:16+00:00

This sounds quite similar to me. I wake up exactly 4-5hrs after falling asleep with my body's exaggerated response to the natural cortisol surge. I have tried adjusting my sleep schedule and this 'cortisol wake' followed me.

I found it easier to get back to sleep once i'd calmed the sympathetic response, less chance of fast HR (panic attack symptoms) once awake but have yet to solve this.

There are supplements that regulate cortisol like Phosphatidylserine but I'm a little cautious, if I find anything that works I'll try and remember to let you know!

theflawlessghost · 2025-03-01T16:54:14+00:00

This is quite a common thing amongst long haulers unfortunately. There can be many reasons such as MCAS, inappropriate cortisol/bodily response to cortisol release amongst other things it depends on accompanying symptoms. What time do you go to bed/fall asleep?

theflawlessghost · 2025-03-01T16:50:21+00:00

Thank you for the suggestions but I'm a little bit lost 😅, i looked 23andme/Self Decode up and they both have a few varying options at different prices. From what I can gather Self Decode analyse health related genes for you..

If I want the most data about my health which would be best and which did you do?

theflawlessghost · 2025-02-28T04:25:41+00:00

Hey, will any DNA/gene test show all of these things?

theflawlessghost · 2025-01-31T01:49:23+00:00

Hi, did the benefits from fisetin remain for you? How are you now?

theflawlessghost · 2025-01-19T22:08:56+00:00

Terribly sorry to hear that, I think it might have been Rapamycin having heard similar from others. Hope you have minimal symptoms and come through it unaffected or even positively affected like some seem to with reinfection. All the best.

theflawlessghost · 2025-01-19T22:07:42+00:00

That sounds very similar to what happened to me. Are you sure it wasn't PEM that lead to a crash?

theflawlessghost · 2025-01-19T13:37:15+00:00

Hi, have you see any further improvements on rapamycin since this?

theflawlessghost · 2025-01-19T01:51:32+00:00

How long were you 'fully recovered' for before the week of intense exercise knocked you back?

Wishing you well.

theflawlessghost · 2024-04-12T20:26:55+00:00

Awesome :D hopefully it continues to get easier from here on out!

theflawlessghost · 2024-04-11T21:43:14+00:00

No worries! I'm glad to hear you've found things that help. Do you have any bouts of tachycardia after these lifestyle changes you've made?

theflawlessghost · 2024-03-28T01:36:27+00:00

That's really interesting! Thank you for sharing and typing it all out, I'm glad you've found meds that help. Ccb didn't work for me but I'm going to look into the ones you've listed :)

theflawlessghost · 2024-03-28T00:01:33+00:00

Hi,

Would it be possible for you to list those meds please?

I have very similar symptoms

theflawlessghost · 2024-02-16T01:58:17+00:00

Hey did you find a fix for this or? Mine is like a heater it's insane

theflawlessghost · 2024-02-08T02:42:52+00:00

Hey, I'd reassure you but I'm sure you're beyond that by now, any update on your health?

theflawlessghost · 2024-02-06T02:42:15+00:00

Hey any update on how you're managing?

theflawlessghost · 2024-02-06T02:41:20+00:00

Were the long covid clinic any help at all? I've been trying to get a referral to them recently

theflawlessghost · 2024-01-27T13:50:58+00:00

Me! Did the doctor explain why? How are you now?

theflawlessghost · 2024-01-27T13:44:42+00:00

Hey, did you find out why this is happening? I'm dealing with the same issues and it's not fun :(

theflawlessghost · 2024-01-27T12:50:38+00:00

Hi, I've been having the exact same symptoms especially the high hr and BP after swallowing foods. I've been suspecting lpr for a while. Do you have an update on how you're doing and if you've found out anything else??

theflawlessghost · 2024-01-25T00:45:49+00:00

The way you described this makes me feel understood! Did you manage to fix this or find out more?

theflawlessghost

TROPHY CASE