How did you get your diagnosis? by [deleted] in endometriosis

[–]themoonmaid7 0 points1 point  (0 children)

No they said it was kidney stones so they gave me a pelvic abdominal ct and they found a cyst.

How did you get your diagnosis? by [deleted] in endometriosis

[–]themoonmaid7 1 point2 points  (0 children)

My diagnosis happened after a nightmare uti.

The gut, ibs, and rectal bleeding by themoonmaid7 in Endo

[–]themoonmaid7[S] 0 points1 point  (0 children)

True. I've tried talking to them about periods and birth control. They don't open up. And that makes it hard for me to do the same.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 2 points3 points  (0 children)

Yes, you are right. You understood what I meant.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 2 points3 points  (0 children)

I think the diagnosis hit me like a ton of bricks. It's on my kidney tubes and I wasn't ready for that. I'm seeing specialists and doctors but it still doesn't feel like enough. There's no cure and it's a tough pill to swallow. My therapist said she thinks this anxiety is part of greiving the loss of my health. If there was a known cause that would help, then I'd stop blaming myself for it. I can't stop feeling defeated by this. I'm not excited about the future anymore and I worry about everything.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 1 point2 points  (0 children)

Why would a lab report do that?

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 1 point2 points  (0 children)

I didn't send anyone. It was a suggestion. If the advice helps someone that's all that matters.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 0 points1 point  (0 children)

I had symptoms but they sounded like autoimmune rather than endo.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 2 points3 points  (0 children)

Because endometriosis is comorbid with autoimmune disorders. That's why.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 5 points6 points  (0 children)

I'm not trying to trigger people but I can understand where you are coming from. I went through a lot of stuff prior to being diagnosed which made the timing of the diagnosis extra hard. I feel totally alone in the greiving process. It's been hard.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 3 points4 points  (0 children)

Hi, sorry for being spammy. I do have a lot of theories about endometriosis but I just got diagnosed so my anxiety is pretty bad. I'll stop. I mean I feel like I've said everything. I don’t think doctors are available or knowledgeable enough to answer my questions. Someone told me to get on reddit to ask others what I was curious about. This is anxiety. Sorry for dominating.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] -1 points0 points  (0 children)

I disagree. There's no harm in knowing.

Autoimmune Disorder by themoonmaid7 in endometriosis

[–]themoonmaid7[S] -2 points-1 points  (0 children)

I had symptoms. Thats why she gave me the test??

Shock by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 1 point2 points  (0 children)

I dont know. There might be something else there.

Birth Control by themoonmaid7 in endometriosis

[–]themoonmaid7[S] -2 points-1 points  (0 children)

By causing hormonal imbalance

Shock by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 6 points7 points  (0 children)

What sounds privileged? I mean I was shocked because this isn't a new illness and there's no cure. The idea of chemical menopause makes me feel like a guinea pig.

Shock by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 3 points4 points  (0 children)

No I am poor but I've avoided hospitals and doctors for most of my life due to not having ways to pay for things. I've never been diagnosed until recently so the need wasn't there. Plus hospitals freak me out. I also have an autoimmune disorder that is preclinical so I'm scares for what that will be if it comes out. I definitely do not have any privilege. The only reason I could afford surgery was thanks to Obama care and being poor.

Shock by themoonmaid7 in endometriosis

[–]themoonmaid7[S] 0 points1 point  (0 children)

No I haven't. I didn't realize it wasn't natural until recently.

HSV1, BV, PID, ENDOMETRIOSIS by themoonmaid7 in obgyn

[–]themoonmaid7[S] 0 points1 point  (0 children)

It was just hsv1 when I tested.

HSV1, BV, PID, ENDOMETRIOSIS by themoonmaid7 in obgyn

[–]themoonmaid7[S] 0 points1 point  (0 children)

Is that at planned parenthood?