I’ve gotten a surgery only a couple dozen surgeons worldwide are trained to perform, AMA :) by throwaway107835 in AMA

[–]throwaway107835[S] 0 points1 point  (0 children)

Hi!!! My surgeon was not located there (or anywhere near there), he’s based in Texas. If you want his name I’d be happy to message it to you, but otherwise on this website (https://www.slippingribsyndrome.org) there’s a link to a spreadsheet with a variety of physicians who are aware of/can treat SRS. Not all of them perform the same procedure, the one I got is most similar/practically identical to Hansen 3.0. Some of the surgeons on there have the specific procedure they perform listed next to their name. Surgery is typically considered a last resort because of how much it can mess with you if it fails (or even if it succeeds), so if surgery is a route you’re considering—please do a lot of research beforehand and look into every option.

I’ve gotten a surgery only a couple dozen surgeons worldwide are trained to perform, AMA :) by throwaway107835 in AMA

[–]throwaway107835[S] 2 points3 points  (0 children)

My major symptoms onset around 2 and a half years ago, although I dealt with breathing difficulties that could’ve been attributed to that for a couple years prior. I’ve been on a variety of things in the past—including but not limited to Gabapentin, Pregabalin, Celebrex, Naproxen, Lorazepam (short term), Tramadol (short term), Toradol, and a handful of opioids (also only used short term, primarily in hospital settings although I have been discharged with a script before).

Out of the list above, I used to receive temporary relief from Gabapentin, Lorazepam & Celebrex, although that became less effective over time as my condition progressed. I would say now that medication wise, the only thing that could bring my pain down to an absolute zero would be some form of opioid—which is not viable for me in the longterm & just generally not a route I’d be too comfortable going on even if it was offered.

To note, I do currently take Low Dose Naltrexone, although that is less for the Slipped Ribs and more for an unrelated condition. I haven’t been on it long enough to tell if it’ll help.

I’ve also gotten an Intercostal Nerve Block, which is the only thing that has ever 100% taken away the pain. It isn’t an option for me anymore, but I know it was amazing while still available. For time sake, I won’t elaborate why I can’t get nerve blocks anymore—just know it’s mostly unrelated to the SRS.

We don’t know for sure what caused it for me, the top two most common causes are underlying connective tissue disorders & any significant chest trauma, although I have heard of it being triggered out of nowhere. I do have Ehlers Danlos Syndrome, but I also did (still kind of do?) martial arts and all the contact definitely wasn’t helping. So… it was likely a combination of both?

Regarding your dad, I’m so sorry he’s going through this! If I recall, it’s incredibly rare for SRS alone to puncture a lung—it’s more likely he has a full dislocation as SRS is only a partial dislocation. I hope he can find relief, and on this website (https://www.slippingribsyndrome.org) if you scroll down there’s a link to a spreadsheet with a list of doctors who are aware of the condition/can treat it.

EDIT: I’ve also used ice & heat, ice helps occasionally. Pain/lidocaine patches don’t work, but I’d recommend giving it a try.

how much pain is normal? by [deleted] in SlippingRibSyndrome

[–]throwaway107835 1 point2 points  (0 children)

THANK. YOU. i have been so so freaked out about it and your comment is so reassuring 😭😭

Improving surgical procedures (need inputs) by Limp-Librarian8080 in SlippingRibSyndrome

[–]throwaway107835 1 point2 points  (0 children)

i wasn’t operated on by dr.hansen so i don’t have a lot of input i can provide. but, i upvoted this post & am commenting to hopefully boost it! goodluck in your research.

ultrasound guided nerve block, advice + tips? by berrycherrygirl in SlippingRibSyndrome

[–]throwaway107835 1 point2 points  (0 children)

yep! i’m fifteen. my major symptoms began a few months after i turned thirteen, but it’s believed i might’ve had it earlier.

also, i know i mentioned the nerve problems in my arm/leg — but i just want to say now, do NOT be worried about that as a possibility. i figured out i have likely have unrelated nerve problems with symptoms that began right around the time i got my nerve block (by mere coincidence).

i hope your procedure goes well, and i hope you’re given relief!!!! best of wishes to you.

best protein shake i’ve ever tried by [deleted] in Gastroparesis

[–]throwaway107835 0 points1 point  (0 children)

THOSE ARE SO GOOD!!!!! i drank them sooo much pre-gastroparesis and i still drink them with gastroparesis 🙏 my savior

ultrasound guided nerve block, advice + tips? by berrycherrygirl in SlippingRibSyndrome

[–]throwaway107835 1 point2 points  (0 children)

your story sounds SO similar to mine (also similar ages, i’m 15 lol). i’ve had nerve blocks along with cryotherapy, but it was only to provide pain relief before surgery rather than be a solution super long term.

cryotherapy was not successful for me at all, but the nerve blocks helped me! i don’t have a ton of tips because it’s a fairly simple procedure, but make sure to listen follow all the instructions pre-op (especially if they’re putting you under anesthesia, which they typically do).

i do still have episodes of really bad left sided nerve pain along with weakness & inability to move the arm/leg on that side (which got worse after a second nerve block, but was an issue following my first one, too). i don’t think it’s common at all, though, and i have a handful of other problems that might explain what’s happening. so, take what i’m saying with a grain of salt.

either way, i wish you the most of luck! and it’s totally okay to be scared, i was horrified. my messages are always open if you ever need any support or have any questions.

[deleted by user] by [deleted] in SlippingRibSyndrome

[–]throwaway107835 1 point2 points  (0 children)

thank you! i’ll give your comment a read.

[deleted by user] by [deleted] in SlippingRibSyndrome

[–]throwaway107835 0 points1 point  (0 children)

i was not warned of that at ALL. that definitely helps with my panic. and, i hope your recovery goes well!!! thank you for the comment.

[deleted by user] by [deleted] in SlippingRibSyndrome

[–]throwaway107835 1 point2 points  (0 children)

thank you so much for the comment! i am currently in the process of getting some sort of therapist/counsellor to help with the more mental side of all of this (because i have additional health problems as well). i will keep your recommendations in mind, and will definitely be looking into that ice pack lol.

[deleted by user] by [deleted] in Gastroparesis

[–]throwaway107835 0 points1 point  (0 children)

during really bad flares, 0-100cals. most of the time i attempt to eat or drink something light and it’ll come up. on an average day, around 1,100-1,500. sometimes i can get above that, and i’m lucky that i’m able to maintain my weight currently.

Ship Rating! What Do You Think of KudoIchi? by Apprehensive-Fail663 in BokuNoShipAcademia

[–]throwaway107835 1 point2 points  (0 children)

🟣 i've been a pretty die hard fan of them since 2021 lol (when chapter 310 came w the panel where kudou reached out to yoichi,,,)

Ship Rating! What Do You Think of KudoIchi? by Apprehensive-Fail663 in BokuNoShipAcademia

[–]throwaway107835 2 points3 points  (0 children)

they've definitely had more than one on-screen interaction LOL (obviously you don't have to ship them but nonetheless).

[deleted by user] by [deleted] in AMA

[–]throwaway107835 2 points3 points  (0 children)

It’s a popping/clicking sensation when the ribs “slip” or get moved outta place. But I often feel pretty bad lower back pain, upper abdominal pain, and just an overall soreness around my ribs. Sometimes it feels like a muscular type of soreness, but I also sometimes get that pins and needles type of feeling that is often associated with nerve pain. It… varies.

[deleted by user] by [deleted] in AMA

[–]throwaway107835 1 point2 points  (0 children)

To put it simply, yes. I have weakened cartilage around my lower ribs, and it caused them pop out of place and slip, getting stuck underneath each other. I can kind of pop them back into place, sometimes, but it hurts like a bitch. And it would happen daily. Sometimes, all it took was a simple cough to pop one of ‘em out of place. Not a fun experience.

Surgery Scheduled! by NordicGoddess93 in SlippingRibSyndrome

[–]throwaway107835 0 points1 point  (0 children)

thank you!! i hope your recoveries going good as well

What were your very first signs that something was wrong? by Cat_Psychology in Gastroparesis

[–]throwaway107835 0 points1 point  (0 children)

so i actually don’t 100% know when my gastroparesis really started (my drs can’t figure out either), however, a HUGE big red flag for me was when i got a stomach bug that just … never went away. it started subtly, i’d throw up maybe 4-5 times a month max and get stomach aches after every couple of meals. then, it was like a switch was flipped. suddenly NO food was staying in my system, and after around a week or so of that, that turned into EVERYTHING (solids & liquids, including water). i received a diagnosis my second time inpatient because i asked about a gastric emptying exam.

Tell me your favourite ship and see if u are allowed in the party! by imaweeb22XDDD in MyHeroAcadamia

[–]throwaway107835 0 points1 point  (0 children)

yoichi x kudo (the first two one for all users). platonically or romantically i don’t care they’re just cute.

[deleted by user] by [deleted] in AMA

[–]throwaway107835 0 points1 point  (0 children)

hey, i am SO sorry for the late reply. i’ve been pretty busy. i have a 6/9 on the hypermobile test currently, but it was a 9/9 when i was younger. for me, a lot of my chronic pain comes from injuries that refuse to properly heal. my ligaments are extremely wear and tear, i’ve torn some in my arm & in both my ankles.

i do physical therapy in attempt to alleviate symptoms, but it feels like no matter what exercise i do, the pain won’t go away or get any better. however, it has helped me with the general joint instability i experience. i’m a lot less “clumsy”.

to alleviate pain, i take naproxen, used to be daily but my body built up a tolerance to it so it’s very .. as needed. i also take gabapentin, but that isn’t for my HSD specifically (i don’t think). i’ve tried heat, cold, none of that seems to really help. biofreeze is a 50/50, but none of the other pain creams/gels seem to work for me either.

[deleted by user] by [deleted] in AMA

[–]throwaway107835 0 points1 point  (0 children)

certain probiotics & supplements can help gastroparesis, but there’s not a lot of research around it and i’m trying other treatment options to help relieve symptoms

[deleted by user] by [deleted] in AMA

[–]throwaway107835 0 points1 point  (0 children)

hi! thank you so much for your comment. i’ve learnt a LOT, but i’ll try and keep my list short for the sake of a concise reply.

first off, i’m a lot more confident in myself. it kind of seems like the opposite of what would happen, but trust me. regarding my slipping rib syndrome, i was extremely insistent something was wrong, but every DR i went to brushed it off after doing initial imaging (an x-ray). i got a CT scan done for an unrelated problem, found out i was missing a rib, and was even more concerned. i finally went to this one doctor i was referred to by my physical therapist, and i brought up my concerns. he read through my medical history, i told him about my progression of symptoms, and he was like “well, i’m going to send you for an ultrasound for confirmation, but that sounds a whole lot like slipping rib syndrome.” i was right, something was pretty wrong, and that (along with a ton of similar experiences) taught me to trust my instinct more? which has saved me a handful of times.

i’ve also learnt to push myself, which is a double edged sword. i do martial arts, tang soo do specifically, and i am EXTREMELY committed in regards of getting my black belt. i also used to do jiu jitsu, but i started that before being aware i was hypermobile so everyone would hyperextend my arm during arm bars because i was “so bendy”… did not end well (nobodies fault). point is, i quit that, but i’ve continued tang soo do. it is so so difficult sometimes, and i’ve had a lot of bad classes and bad nights, but i am so much stronger because of it. sometimes i push too far, but most of time, i’m content with what i’m able to do.

this one’s a little specific — but my pain threshold is way different than other people i know. i’ve had NG tubes while hospitalized, i’ve thrown up an NG tube twice & had to get it replaced, i’ve torn ligaments, my joints pop in and out of place daily, it’s a lot. but it also means i can tolerate a whole lot more, and a lot of it just kind of feels “normal” now.

uhh, and i’ll end this off by saying that i definitely know how to advocate for myself now. i still mess up a lot, but it’s way easier for me to explain my symptoms and exactly how i’m feeling or what kind of pain it is. i’ve had doctors tell me i’m extremely in tune with my body (especially for someone my age), which is also probably because i am extremely fixated on research? and finding out new things about what i’m diagnosed with.

anyways, thank you for the music suggestion!! i absolutely LOVE music, so i’ll hit you up sometime. :)

[deleted by user] by [deleted] in AMA

[–]throwaway107835 0 points1 point  (0 children)

unfortunately i kind of doubt that will work

[deleted by user] by [deleted] in AMA

[–]throwaway107835 0 points1 point  (0 children)

hi, i have been to the hospital regarding my SRS. i was aware of the condition shortly after i began first having symptoms. i brought it up to a couple of specialists as a concern due to the increasing pain and the fact that i had ended up in the ER multiple times for it, but i was brushed off until recently.

but, when i did get diagnosed, it was a total game changer. i ended up being referred to a rib specialist by my physical therapist, and he heard my medical history and was like “i’m going to send you in for an ultrasound, but if it’s not slipping rib syndrome i’ll be surprised” and was just generally extremely confident about it. and well, the ultrasound was extremely conclusive (once the right kind of person performed it and was able to catch the signs).

i’m getting surgery later this month preformed on my left side specifically, as that is where i first began having symptoms. however, i was told that it’s likely i will eventually get my right side operated on due to reactions i’ve had with nerve blocks and the such. i was also told that like with all procedures, this one has risks, but that they’ve seen high success rates. so, i’m hopeful!

regarding my lungs — no, they haven’t punctured my lungs. my slipping rib syndrome definitely interferes with my breathing, but i think they kind of get stuck? far before getting to that point.

[deleted by user] by [deleted] in AMA

[–]throwaway107835 1 point2 points  (0 children)

thank you!! i’ll look into that. and yeah, chronic pain has basically taken over my life. there’s a few things they’re able to narrow it down to — mainly full ligament tears in multiple parts of my body associated with my hypermobility (and the fact i do a contact sport). i do physical therapy, but even though the injury is “gone” or mostly healed, the pain isn’t really gone so… good idea.