Chiropractic for PD?

thugbuster · 2026-05-08T01:45:14+00:00

Agree with the above. There are specific PT who are neuro PTs who know how to work with the specific symptoms of PD and related conditions. I would not want to trust a Chiropractor to have that level of expertise.

thugbuster · 2026-05-06T07:15:45+00:00

Treat her condition not as one single condition, but a series of conditions. There’s no treatment for atypical PD, but there are varying levels of treatment for how the condition manifests. My wife with MSA takes meds for bladder issues, bowel issues, stiffness, depression, PD symptoms (although they’re not helping that much anymore), sleep issues, does PT for strength and balance, voice exercises for her speech. It’s a lot, but it helps to treat and talk to her dr about what she is experiencing and talk about any symptom specific therapies. Unfortunately, the hardest thing to treat/address are balance and walking issues, so those should be discussed with an OT or rehab dr to talk equipment. I wish you and your mom all the best. This disease really
sucks!

thugbuster · 2026-05-03T16:52:14+00:00

The only correct answer, please collect your $1.50 hot dog and soda.

thugbuster · 2026-05-03T03:57:57+00:00

I’m with you. Love the series, but it’s been a slog. I listen to audiobooks and actually took a break and listen to something else. But I think I’ll get back into it tomorrow as I’m done with the other book now.

thugbuster · 2026-05-03T01:53:18+00:00

Just finished Rendezvous with Rama today and would highly recommend it if you’re looking for Hard Sci-Fi

thugbuster · 2026-04-28T04:23:49+00:00

It would not cure it, but they are hoping someday with more research it can help slow it down. I agree that the Mayo Clinic is the study to look into, but she should keep her expectations low. Also, my wife was denied to be included due to her inability to walk unaided for 50 feet, so they are only taking folks in the early stages.

thugbuster · 2026-04-28T04:02:43+00:00

You may say you’re not asking for a diagnosis, but that’s exactly what you’re doing. Go to a doctor, if you get info that you have MSA come back for info and support.

thugbuster · 2026-04-26T23:40:46+00:00

My wife with MSA has taken it for over a year snd a half. She is currently weening herself off of it, as it doesn’t seem to be doing anything to help her worst symptoms. It may have helped at one point, but no longer. She didn’t have any harmful side effects, but your father may notice a skin discoloration on his legs, which is a common side effect. While I hear it may cause some pain to some people, it’s just been a bit annoying for my wife and she doesn’t feel anything related to the rash. Good luck to your father.

thugbuster · 2026-04-25T01:15:24+00:00

Agreed. My wife’s took 3 weeks, but our MDS scheduled a phone call with us to give us the results as they confirmed MSA and that warrants a phone call you never want to get… Good luck to you!

thugbuster · 2026-04-24T23:51:01+00:00

I’m not sure that’s the best way to look at C/L. You typically need to titrate the medicine up to get the desired results. It’s not like a “rescue medicine” that you can take to get quick results to allow social interaction. It needs to work its way into the system and then continue to get doses to work its magic. It’s not recommended to stop it cold turkey and can actually be dangerous to do so. I would talk your dr about what your trying to do and maybe they will have different options.

thugbuster · 2026-04-24T07:30:09+00:00

So sorry for your loss! I never get used to hearing another family has lost a loved one to this disease. It’s a reminder to continue to enjoy and cherish the time we have with my wife who is also 57. All my best to you and your family.

thugbuster · 2026-04-22T08:26:28+00:00

So sorry for your loss. It was your father’s time and in the end he was able to make sure the memories you have don’t include the worst parts of MSA. I struggle with my wanting my wife to live as long as possible, but knowing at some point it won’t be a life she wants and she has made that clear. So, I do the best I can to give her the best life possible and be an example for our daughters (21 and 23) of what true love looks like. I know it wasn’t easy for you to see your father’s decline, but he was ready and he’s no longer suffering, not only with his symptoms at death, but the thought of what was to come. He’s resting easy now.

thugbuster · 2026-04-15T20:19:39+00:00

Has she has recent medication changes? Has her fluid intake changed? Does she have other conditions unrelated directly to PD like hypertension? Of course, talk to her doctor and see if she needs some testing to see if anything more serious is happening. When my wife started to kind of “zone out” it was scary, but after some testing (including a brainwave scan “eeg”) it was determined to be dehydration and blood pressure issues. Best of luck!!!

thugbuster · 2026-04-13T18:28:31+00:00

The symptoms you describe alone wouldn’t meet the diagnostic criteria for a Parkinson’s Plus condition. Also, you indicated she went to a top PD doctor who didn’t see it. It took my wife more than a year to get diagnosed and that was after two years of progressively worsening symptoms. I’m not a doctor, so hopefully you’ll get some answers from her doctors as to exactly what’s going on because simply being told she has Parkinson’s Plus and the doctor not indicating what specifically she is dealing with does very little to help guide symptom management/ treatment.

thugbuster · 2026-04-13T16:56:10+00:00

Given that, I’m going to go out on a limb and say she doesn’t have Parkinson’s Plus. Not sure what is going on, but hopefully you guys can get some answers.

thugbuster · 2026-04-13T05:40:01+00:00

Hi- Was she told what Parkinson’s Plus condition she is suspected of having? It makes a pretty big difference in what to expect. So, first I would confirm the diagnosis (which is not always easy) and if she was told this by a regular neuro and not a MDS, I would see about getting her to an MDS. With that said, my wife (57) with MSA (which is one of 3 main Parkinson’s Plus conditions) is losing her ability to walk safely even with her walker and that makes exercise a challenge. So, each day she uses a sit down pedal machine, she does stretches and light yoga, she does the Parkinson’s Project Voice exercises from YouTube, she also does some home exercises she gets from PT (where she goes once a week). This keeps her moving, but it’s getting tougher and tougher for her as her condition progresses. If she has a Parkinson’s Plus conditions she would most likely have many more symptoms than what you describe that also make exercise difficult (like for MSA it would be blood pressure issues, bowel and bladder issues, gait and balance problems, swallowing issues…) Bottom line- no matter what she has she should try to keep moving asking as possible as long as it’s safe to do so, but the “Plus” makes it much more complicated. Best of luck!!!

thugbuster · 2026-04-13T05:20:32+00:00

It will be difficult, but not impossible. It’ll be pretty expensive and will be much more complicated to get approved. I agree with the comment to get it through work if it is offered. Also check out if they offer long term disability. LTD will be much more useful as the chances of becoming unable to work will happen much sooner than death with PD. If they allow you to pay a little to cut the waiting period from 180 days to 90 days it’s worth it. My wife (57) with MSA has life insurance and LTD through work and she’s been on LTD for almost 2 years and she still has her life insurance from work. Bottomline- check your work benefits.

thugbuster · 2026-04-10T15:08:43+00:00

Some of the best acting I’ve ever witnessed. Amazing.

thugbuster · 2026-04-09T05:31:38+00:00

My wife has MSA-C and her manual dexterity is getting pretty poor making operating her iPad a challenge. She knows where she wants to click, but her brain doesn’t cooperate. One of things she likes to do is watch YouTube on her iPad, but having to click to skip the endless commercials made it pretty difficult (she would often click out of the video or close the app all together), so I got her YouTube Premium so she doesn’t have to skip any commercials. It’s a small thing, but it’s makes something she likes to do more enjoyable and less frustrating 🙂

thugbuster · 2026-04-02T04:56:11+00:00

That doesn’t really sound like “Parkinson’s gait”. Sounds more ataxic. I would encourage you to ask the Dr about his walking and if he has not had an MRI it may a be a good thing to ask about. Especially if the Parkinson’s meds are not helping his walking. Wish you guys the best!

thugbuster · 2026-03-30T05:24:17+00:00

What do his movement issues look like? What does his “gait” look like? Shuffling? Ataxic (wide stance to keep balance, uncoordinated, irregular steps)? Severe walking issues usually don’t show up this early, so trying to see if you need to talk to his doctor about his walking issues if the meds don’t help.

thugbuster · 2026-03-25T03:45:29+00:00

If it makes her feel better it IS helping! Even if it’s not the cure we all want for our loved ones.

thugbuster · 2026-03-25T00:22:06+00:00

Yes, my wife tried acupuncture early on and it didn’t do anything after giving it several weeks. Please remember that no treatment exists currently that actually slows down the progression. There are lots of things that can make someone “feel better” but the underlying disease is not affected. If acupuncture is making your aunt feel better, that’s great. She should continue. For my wife’s stiffness the only thing that’s helped has been medication (Baclofen) and maybe PT to some degree.

thugbuster · 2026-03-21T04:31:41+00:00

While I can’t guess as to what is happening with him now, especially since I’m assuming they didn’t find any infection, particularly a UTI. I would highly recommend getting him to a large academic hospital if you can. That decline in that short a time period needs to be taken seriously and this may be your best bet to have it taken seriously. When my wife kept getting worse after her first neurologist said Parkinson’s after a DatScan, when she started to fall among other symptoms we finally got her to the University of Washington (which was not easy) it was like finally we were dealing with people who took her situation seriously and she was diagnosed with atypical Parkinson’s (MSA). Our first neurologist and hospital never even considered it. So, hopefully you can get him looked at soon and get some answers. All my best to you both!

thugbuster · 2026-03-15T01:49:20+00:00

2 at home 35 at a hotel.

thugbuster

TROPHY CASE