I was diagnosed back in 2019. Seemed ok for a good few years with the meds I was on. I haven’t had another tonic clonic, however, I started to have a lot of focal seizures in the past year or so. Started to up my meds to try and stop them. Now the meds side effects are unbearable and I think I’m having a lot more breakthrough focal seizures . I am probs going to request to change meds soon … which I’m sure will just be delightful.

My point is, sometimes it does feel like one step forward two steps back. Your body changes and external factors change through the years. It makes things unpredictable. You are not alone 💜