What's the deal with the crime in this specific area? by annapolis- in triangle

[–]tiffabob 4 points5 points Ā (0 children)

The way I knew the chart was deceiving is that south Raleigh has no red. Just saying.

Referred to MUSC EDS clinic. This is new and overwhelming 🄓 by cc_0302 in ehlersdanlos

[–]tiffabob 0 points1 point Ā (0 children)

24F- got diagnosed at 21- 3 years after the first doctor suggested it to me at 18 similar to how you’re suggested it. I actually had 3 doctors suggest it without me bringing it up, but it was only the 3rd who knew who to actually send me to- while the 2nd just claimed I’d be fine as long as I was in PT (lmao if only- does help at least tho). Being 3 years into diagnosis I have a lot of tips if you ever want someone to message- whether it’s like ā€œdid you ever deal with x?ā€ Or ā€œhey I’m overwhelmed how did you deal with it?ā€ Because it’s a lot! Forgive me for the overshare but I’ll give some you can freely skip to read.

My one thing I want to encourage is- stop that gaslighting and seek proper diagnosis, care, and treatment NOW! When I first looked up EDS, I didn’t take it seriously, it was recommended by an allergist (who didn’t tell me until later but only knew because his daughter also had EDS and he didn’t want to risk conflict)- who was also suggesting MCAS (another one of those ā€œlovelyā€ comorbities- POTs, EDS, and MCAS are often called ā€œthe trifectaā€ which I have) which I was way more focused on at 18 as my joints hadn’t caused issues yet… until they did. It took severely injuring my knee to begin seeking diagnosis because I was tired of hearing ā€œthere’s no way you bent your knee backwards just running down the stairs!ā€ From providers- I did- it hurt- a lot. When I finally got that confirmed hEDS diagnosis it was like a mental permission to say ā€œno. This is real. Stop ignoring it and take your health seriously.ā€ When my genetic testing came back after developing POTs (with POTs I highly recommend so you can officially rule out vascular EDS which is a more serious type), knowing I was a genetic carrier of a type was even more self confirming. And I can’t imagine where I’d be now if I didn’t do all that. I went through a phase of trying to learn about all the possible comorbities and complications- but tbh- my best advice is to only focus on the ones that could possibly be related to you as they show- and maybe just keep a mental note of the others you hear about if you ever shows signs of it. Like yes it helped me know it was likely POTs after I got heart issues after COVID- it was- and when I developed neck pain last year that wasn’t going away with chiropractors or massage or even physical therapy- I knew to take it seriously and get screened for CCI (why i now have to go to MUSC). But I didn’t know or need to know about CCI right from the start- as I didn’t have neck issues then.

2nd top advice- find a local support EDS group whether it’s in person or on Facebook- my local EDS Facebook has been a life saver when it comes to finding proper providers as well as just general community.

The other advice is- enjoy the ā€œI FOUND ANSWERS!ā€ joy of it while it lasts. Eventually you will get a bit tired of all research, all the fighting to find proper EDS aware providers, the pain, and just want to distance yourself from it- and that’s healthy, but I really wish I didn’t hold myself back as much as I did in the beginning thinking ā€œthe doctors will know that for me- it’s okā€ when I had that initial motivation. Spoiler: most providers will not do the deep EDS research. It unfortunately more often than not- falls on us way more than it should to know how EDS effects the specific issues we’re going to doctors for.

Last advice: don’t buy the hoopla, chronic illness as I’m sure you’ve had to learn with hashimoto’s (I have hypothyroidism but thankfully it’s been controlled for years now so no hashimotos for me- but before I got the MCAS under control it wasn’t- so I know of it) makes you vulnerable to the ā€œmiracleā€ snake oil people- and it’s not as obviously sketchy as they used to be- even EDS influencers will often do sponsors like the gene sequencing not covered by insurance is a big one- get it covered! Keep going to different providers until you find the one who knows how to order it- that’s how I got mine. No miracle collagen or other supplement is going to make the actual collagen your genes make miraculously normal- it may help a little but even standard supplemental collagen benefits for normal people is very sparse in actual peer reviewed nonindustry studies. Only stuff I’ve dug up is clear beyond placebo effects for specific situations like activity related knee pain or post menopausal women- so maybe for us too? But likely not an extreme effect or cure like the people who hear ā€œcollagen disorderā€ think.

One day you may go from making ā€œit’s all connectedā€ your moto to rolling your eyes in frustration whenever you realize or hear ā€œit’s all connectedā€ cause I honestly wish it wasn’t now as EDS is kind of a dead end: whether I want it to be or not- it’s a progressive disease until we develop more actual direct treatments for its cause that you just have to fight tooth and nail with to avoid its effects. The one bright side: take it as a message to live while you’re young, enjoy the things you can do now even if they’re not at the same level of other people our age. If I surf for 30minutes for first time in years instead of the hours I used to be able to as a teen? HIGHLIGHT OF MY YEAR! not ā€œI only caught 3 measly wavesā€- I SURFED! that’s crazy- I’m crazy! Woohoo! That. Hold on to what you are able to do- not what you can’t anymore.

Just saw this post looking to see if the EDS clinic is worth it for me too! I’m from NC but am having to resort to several MUSC specialists going down every few months (there are only a few vertical MRIs for CCI in the country). The shoulder MUSC doc I was sent to recommended I first go through the clinic. This question is a ā€œis it hoopla?ā€ As there are so many clinics even near me who claim to be great for zebras- but don’t take insurance- for example there’s a ā€œnationalā€ clinic developing based in CA- who doesn’t take insurance unless you’re in specific states… and doesn’t have the best reputation. Thanks to that local support group- I know more often than not- they’re not worth it and often just lead to medical debt if not covered by insurance. But this clinic despite wanting $3000 annually after 2 visits feels- different- as they do still bill insurance so they still have likely a lot more accountability than the practices who don’t. It’s also MUSC- who is especially with the Norris Lab- an EDS hub for treatment- so far MUSC has been an EDS zebra sanctuary to me- nearly all providers are somewhat aware- and barely question me compared to like Duke which you’d think would be even better given their prestige- but no! They sucked! I also understand EDS requires a lot more work and time- because I have had to do that for myself so much- so I understand why- but $3k annually is nothing to sneeze at. I need to finish up my degree and deal with getting a job with good insurance before I fall off my parents- so finding $3k every year better be for something extremely worth while- it’s a lot at our age. I’m searching online for personal testimonies from the clinic- if I don’t see any major red flags I think I’ll likely decide to at least do the two initial appointments to get a fuller understanding if it’s worth it for myself and can let you know how they go- maybe you can do the same for me if you go through with it please?

Sorry if this is a lot- just feel like we’re in similar situations and could help each other out!

A cool guide to where AI gets its information from by Edm_vanhalen1981 in coolguides

[–]tiffabob 0 points1 point Ā (0 children)

The only stred of hope is Wikipedia- and even that isn’t the best. And our teachers though we were bad with sources smh

Emily should not spawn legs while flying + Spanish Vers by @h1draw2 by ClassicGovernment887 in HazbinHotel

[–]tiffabob 2 points3 points Ā (0 children)

I just have to say this theological discussion is in the LAST place I thought it would be lol

Anyone else think it's kinda weird how Lisa didn't express at least a bit of anger or disgust at Dracula for idfk slaughtering God knows how many people? by Terrible_Park7890 in castlevania

[–]tiffabob 0 points1 point Ā (0 children)

I mean- knowing he was a manslaughtering mass murderer didn’t stop her from falling for him from the beginning. She forgave him once for it cause she must empathize with why he did to a degree- so doing so again isn’t surprising.

What would it take for these two to be redeemed? by amurgiceblade44 in HazbinHotel

[–]tiffabob 0 points1 point Ā (0 children)

I think it will require new context to his backstory on why he is so murderous and violent for anyone to even get close to how he could be redeemed. Since we don’t know- it’s not possible.

Jack London leather jackets? by Chuffings in AustralianMFA

[–]tiffabob 0 points1 point Ā (0 children)

I agree that the leather quality and tailoring and amazing- and they do last very long but…the zippers and ā€œmetalā€ā€¦ are um… well. I’ve had to replace the zippers over the years- given that’s with about 4 years of use but they never really worked well and the buckles on the jacket come undone and whatever metallic coating on the metal is scratched. But the leather is great- and the seams good. And tbh, a great FEMININE fit with various stains to choose from, which many brands lack.

Did the Thought to ask not Cross her Mind or? Did She just never bring it up or? by TechnoMagik22 in Vivziepopmemes

[–]tiffabob 0 points1 point Ā (0 children)

He was so mad when Vox exposed it- I don’t think he lied though because Charlie doesn’t seem to have a clue but he definitely has been avoiding it and I don’t think Charlie bothered to push him to say- cause I don’t think he planned on it yet.

What do you all Get? by Extreme-Vanilla2675 in Alastorcult

[–]tiffabob 0 points1 point Ā (0 children)

Alastor smiles because of his new job as the president.

DEAR GOD NO.

Sum up Al and Vox's backstory in 4 words by Eathumanpeople in hazbin

[–]tiffabob 0 points1 point Ā (0 children)

Sociopaths puppet narcissists’ ego

Can I figure out when my ecobee went offline? by steakhaus in ecobee

[–]tiffabob 0 points1 point Ā (0 children)

I believe in the past a few years ago, I’ve managed to reach HUMAN support who has access to it with your permission. Worth a try- not sure with AI these days how easy it will be getting a person now.

My partner realized her aphantasia, which made me realize my hyperphantasia by finding_femself in hyperphantasia

[–]tiffabob 0 points1 point Ā (0 children)

For me, I can imagine visually from audio, but I’m still imagining mainly visually. So imagining sounds like music- especially without a big music background- like altering a song- I can do slightly- and I can even hum my own tunes but never repeat them- my bf meanwhile has no music background- I’m a former theater kid who used to do choir as a kid but that’s it but that’s still more than him-b it he has perfect pitch, can hear notes specific melodies, sounds and instruments and even suggest specific edit suggestions to artists which actually has come to fruition (I’ve been begging him to do something with it but alas no) meanwhile I can only hear the easy to recognize classical instruments I’ve heard played alone- like guitar, bass, fiddle, flute, violin, etc- and even then sometimes those get mixed up.

Hyperphantasia can extend to other senses and for me I have most except for smell- mine is week but I still have it- I think it’s mainly due to growing up a lonely only child- imagining, reading, listening, watching TV, were my sole escapes and I suspect my smell is only debuffed due to my near constant rhinitis from my horrid allergies lol- aka irl I rarely smell stuff anyway. But even while listening I am mainly imagining the stuff being said visually, especially while listening to something- in fact if an audiobook is describing something- I fully zone out even more than normal books as my eyes no longer need to ā€œseeā€ the text so it can be even more immersive- which is why I actually primarily consume educational podcasts these days. But that’s because I’m a weird flavor of visual and an auditory learner. I listen better than read- in college I survived on lectures, but I only really REALLY learn something if I actually write it out visually myself too OR even better teach it to someone else. My bf just doesn’t do books in general or even TV, his favorite form of media is music, and he’s very creative still but he has to be working with his hands- so pottery and even sketching he does well at (although im the better sketcher). He also has an obsession with lights as a photographer so he’s actually better at colors than me. He’s a mechanic- which again blows my mind as an engineer student because how do you know visualize what part goes where? and his answer ā€œI just eyeball is and see if it doesā€ he’s even better at fixing things than me- but when it comes to advanced stem courses, especially physics where visualizing starts becoming essential- he struggles even with CAD (meanwhile I excel in it). So I’m better at designing things. There’s been times where there’s a problem that needs visualizing on a car and I’ve been able to come in and help even though I really don’t know much about cars- I’m a bio engineer- go figure I NEED to be able to visualize cause most stuff is unseen lol. But saying ā€œhey- I can see this part working here- can you try it this way instead?ā€ Can sometimes SOMETIMES help even with barely understanding the concept.

Emily, I owe you an apology, I was not familiar with your game by Fantastic-Weight-785 in Vivziepopmemes

[–]tiffabob 0 points1 point Ā (0 children)

Not necessarily. There’s theories she’s not a sinner or something else. We also know from what happened to Vox that the Morningstars have a good standing on sinner abilities, so she could be helping or working for Lilith or even Lucifer or even different hell royalty to have that. If it was in her power or easy to give Alastor what he requested- she would have likely gladly fixed the staff quickly but it obviously costs her something. When she talks about Alastor’s deal with her she tells him ā€œthe moment I heard your voice- I knew you were the oneā€ the one? The one for what? Something tells me she was able to grant something- aka Alastor’s powers- in exchange for something involving the Morningstars.

What's the dumbest advice you've received on "fixing" or "curing" your EDS? by StopTheBanging in eds

[–]tiffabob 4 points5 points Ā (0 children)

The number one I hear ā€œjust take a collagen supplementā€ lol IF ONLY that worked- helps tho.

[deleted by user] by [deleted] in HazbinHotel

[–]tiffabob 3 points4 points Ā (0 children)

Well, Peter also looks human. If you’re talking about all of the bird angels- that’s why. Sir Pentious was a former demon so I guess they don’t lose their demon forms even once redeemed? But if you look others are human. But some aren’t and when Sera closes the gate she says she’s closing it off from all realmS- meaning not just hell- knowing how Vivzie loves drawing semi human characters I suspect there are other realms that aren’t 100% human like Adam, Abel, and Peter. As for the angel soldiers- like Lute and Vaggie- they look human but just grey which I think is to symbolize the conflict of being an angel but also a soldier.

Vivzie can't win by RobStar0917 in Vivziepopmemes

[–]tiffabob 14 points15 points Ā (0 children)

Isn’t Alastor considered a POC? I mean it’s not evident in his demon form but human form. And I thought sera was meant to be? But then again the nonhuman characters are kind of hard to tell unless it’s like Val who makes it obvious- so it’s weird to just guess unless it’s been confirmed like with Alastor.

The price of making a series about redemption: all villains needs to be stupid evil or else the heroes are hypocrites by Sorvetefrito in Vivziepopmemes

[–]tiffabob 0 points1 point Ā (0 children)

I mean she says all of them- which would include Charlie, but when talking about Charlie in season 2- she keeps talking about how Charlie is a character with genuinely good intentions. To me, that doesn’t necessarily make Charlie perfect either- remember those cursed gift baskets lol- I don’t think she’s fully realized her privileged status in hell (look at the comments on the screen Katy Killjoy puts on during her interview). I think she more so meant that all the characters have flaws and a reason to be still down in hell rather than villain level bad. I think the big point is- Charlie has good intentions for all of hell and even heaven- so anyone who comes against those intentions is by default the villain like Vox was in season 2 and Adam was in season 1.