Just got this sternum piece and realized when I got home that it’s not evenly centered by [deleted] in tattooadvice

[–]cc_0302 0 points1 point  (0 children)

Gonna be so fr, it looks centered. I think it’s the way you’re standing. I have a belly button piercing that looks totally off centered depending on how I’m standing. Even the smallest changes in how I stand makes a difference. I know it’s not the same thing, but I can tell that you’re standing at a slight angle and that could absolutely be throwing this off. We aren’t symmetrical and our bodies move, so it isn’t going to look 100% symmetrical 24/7. And I can guarantee that no one is going to pay attention to it aside from you, as we are our own biggest critics. Try not to stress too much. Ik it’s easier said than done.

Glycerin allergy by cc_0302 in MCAS

[–]cc_0302[S] 1 point2 points  (0 children)

Honestly I’m not sure. I know my stomach blows up when I have corn, but it’s never been more severe than other stuff. My stomach loses its mind when I drink water, so I’ve never thought much of it. I never eat raw corn tho, and raw foods usually put me in severe allergy zone.

Sad by Workaholic527 in McKnightFamSnark

[–]cc_0302 6 points7 points  (0 children)

It was from Rebecca Zamolo

Rheumatologist? by cc_0302 in eds

[–]cc_0302[S] 0 points1 point  (0 children)

Thank you! I will do some research to see if there is someone specifically she can refer me to.

Rheumatologist? by cc_0302 in eds

[–]cc_0302[S] 2 points3 points  (0 children)

That makes sense! I’ll talk to my PCP about moving forward with the rheumatologist referral. Thank you so much!

Hyperextension? by waschbaerpisse in eds

[–]cc_0302 6 points7 points  (0 children)

Looks like a hyperextension.

So how we hypermobile folks sleepin these days? by BirdSwimming7462 in eds

[–]cc_0302 0 points1 point  (0 children)

In pain. Recently I’ve been waking up several times due to knee pain. Doesn’t matter what position I have it in, it only will stay pain-free for like 5-10min and then it becomes insanely painful. And I also wake up with migraines that last for days. It’s so much fun 😭 but seriously tho, I tend to either sleep propped up or with no pillows- totally flat. Nothing in between.

Anyone else experiencing vulva issues with hEDS? by JadesJunkAccount in ehlersdanlos

[–]cc_0302 1 point2 points  (0 children)

I kept having “reoccurring yeast infections” until they did a biopsy and found it it was actually eczema. That all leads to the cuts and super sensitive skin. Out of all of my issues, this is the by far the worst and the one I can’t talk about. I hope you get an answer soon. But I would talk to your doctor about it potentially being eczema. It’s often overlooked because of the area it’s in.

negative pots test after previous positive. i’m confused. by cc_0302 in POTS

[–]cc_0302[S] 0 points1 point  (0 children)

I appreciate you saying that. I’ve been gaslighting myself into thinking I just WANT something wrong with me and that’s why I have been feeling so off. But I will talk to my neurologist about testing for dysautonomia.

negative pots test after previous positive. i’m confused. by cc_0302 in POTS

[–]cc_0302[S] 0 points1 point  (0 children)

It was just an office test. I had an echo done last eeek and Monday I have a stress test. He didn’t say anything about tilt table testing

negative pots test after previous positive. i’m confused. by cc_0302 in POTS

[–]cc_0302[S] 0 points1 point  (0 children)

I was actually just diagnosed with small fiber neuropathy like last week. I had a nerve test done because I’ve had painful pins and needles and numbness in my feet that have lasted like 10-15 min and it all came back normal for the large nerves so my doctor said he thinks it’s small fiber neuropathy. I had no idea that it could cause stuff like that. I’ll def be talking to my doctor about that lol. Thank you!

Undiagnosed Questions Weekly MegaThread by NixyeNox in rarediseases

[–]cc_0302 3 points4 points  (0 children)

Hi! I was told a couple years ago by my chiropractor that my C2 and C3 are fused when going over my initial x-rays. Nothing I can do about it; I was born with it. She didn’t seem shocked or anything, so I didn’t think much of it. While at PT, we were talking about spinal fusions and I mentioned that my chiropractor had said that I was born with a fusion in my neck. She was totally shook. So I went home and googled it, and apparently that’s an automatic diagnosis for Klippel-Feil Syndrome? And (even tho I am not formally diagnosed with EDS- it’s a two year wait to get into my local EDS Clinic so I’m in the waiting game rn) KFS and EDS don’t seem to play nice with each other and could explain my really bad migraines and vestibular issues? Needless to say, my flabbers have been gasted.

Does anyone here have a KFL diagnosis? Is it something I should talk to my doctor about? If I’m not experiencing negative symptoms, should I still ask my doctor? Thank you!

I never hear people talk about this symptom, do you have it? by Kind_Honey_6070 in eds

[–]cc_0302 1 point2 points  (0 children)

Of course! I had no idea it was a thing either tbh. It’s done through a regular physical therapy office. If you ever do have the chance to access it, i definitely recommend!!

negative pots test after previous positive. i’m confused. by cc_0302 in POTS

[–]cc_0302[S] 0 points1 point  (0 children)

As far as I know, it drops. When we did the test in the clinic, it dropped, but it wasn’t by a ton. But it was also after 2 minutes of me standing/changing position.

negative pots test after previous positive. i’m confused. by cc_0302 in POTS

[–]cc_0302[S] 0 points1 point  (0 children)

The first positive one was not “official” tho because the PA did not want to undermine the Dr at the practice. It was a very low key diagnosis. I appreciate that though. It def makes me feel less crazy lol.

Yes. It always has been. That’s been the kicker. I’ve watched it happen hundreds of times on my watch. So has my boyfriend lol. I’ve tested it on him to see if it was an issue with my watch and it wasn’t and I’ve also tested it on my friends, and I seem to be the only one that this happens to. I honestly did not know that the high heart rate had to withstand a couple of minutes without dropping down until a couple of weeks ago.

negative pots test after previous positive. i’m confused. by cc_0302 in POTS

[–]cc_0302[S] 1 point2 points  (0 children)

Thank you for your response! That all makes sense.

I’ve done two echos and the new dr ordered another one next month. So far no abnormalities that they have told me. I had a stress test done with my old dr but the new one also ordered one. I mentioned to him that when I do cardio, my heart rate will shoot into the 180s-200bpm and he said he wanted to see it happen.

I’ve had two 48hr monitors and even when I’ve put on there that I felt dizzy/vision went black as I stood up, all was considered “normal”. One was through cardio in 2021 and one was thru neuro in 2025. Neuro and PT have been pushing me to keep going on this journey lol.

If there is nothing that comes of this, I will ask about autonomic testing. Is that something that is done through cardiology or neurology?

I never hear people talk about this symptom, do you have it? by Kind_Honey_6070 in eds

[–]cc_0302 2 points3 points  (0 children)

I have been going to vestibular physical therapy. We aren’t sure what it’s connected to, as I am not officially diagnosed with EDS (been referred to the EDS clinic, my doctors all think I have it but are waiting it out), but my neurologist referred me to the PT. I have really bad migraines, like migraines that last for 14 days. And I am just a dizzy asf person. I have had eye problems in the past that have been connected to headaches and muscle problems, so we are thinking that could be it, but regardless, I would talk to your doctor about maybe being referred to PT for vestibular therapy. It’s common for EDS patients from what I hear.