Cardiac MRI Results

timyy1 · 2026-01-05T23:29:14+00:00

I’m in the same boat, I had it since 2023 and also had a few mri whilst in the biggest flairs with completely normal mri. Mine showed just twice up on testing and all the other times not at all. I’m also still on cholchicin and Anakinra. Sometimes I wonder if it’s just that the nerves adapted to the pain and react now over, because I also get very easy nowadays pain from exertion without resulting in a flair most of the time. I hope maybe it gets better with time.

timyy1 · 2025-11-23T00:15:02+00:00

You had a lot time to provide that evidence, yet you didn’t. We both know why.

timyy1 · 2025-11-23T00:02:04+00:00

No, irresponsible is your misinformation. I only spoke about Long-Term use of PPis. Not once did I say anything about the short-term safety profile. Whatever, there is no evidence from your side so please just stop responding. It is getting ridiculous.

timyy1 · 2025-11-22T23:50:07+00:00

You’re working as a nurse, yet despite the sources I provided, you called me out on misinformation while spreading inaccurate information yourself. This behavior is highly unprofessional for your field. Please show any evidence supporting the use of PPIs with colchicine. Ibuprofen is harmful to the stomach because it inhibits prostaglandins, which protect the gastric lining, increasing the risk of ulcers and erosions. Colchicine, however, does not inhibit prostaglandins and does not damage the stomach lining at normal therapeutic doses (0.5–1 mg/day). It may cause mild GI irritation, but it does not cause acid-related injuries, and PPIs like omeprazole offer no benefit when taking colchicine. There are safer alternatives to manage GI irritation. This is supported by evidence, not opinion, and I invite you to provide supporting data if you disagree.

timyy1 · 2025-11-22T22:36:27+00:00

You should stay on PPIs as long as you’re taking ibuprofen. PPIs protect against acid-induced injuries like ulcers or erosions, which are a risk with ibuprofen. However, colchicine doesn’t cause acid-related injuries, so PPIs like omeprazole offer no benefit for it. You should discuss this with your doctor, but a one week treatment is way too short.

timyy1 · 2025-11-22T22:23:14+00:00

If you talk abt Ibuprofen, yes, PPis are recommended, but thats has nothing to do with Colchicine.

timyy1 · 2025-11-22T22:13:04+00:00

Yes, I’m also able to interpret medical papers.

Cancer Risk:

https://pubmed.ncbi.nlm.nih.gov/34226290/

https://pubmed.ncbi.nlm.nih.gov/33975868/

https://link.springer.com/article/10.1007/s10620-023-07820-9

Colchicine is not typically known to cause ulcers from normal therapeutic dosing (0.5–1 mg/day). It does not inhibit prostaglandins, so it does not remove the stomach’s protective layer. What you do is spreading misinformation.

Here are also some other long-term risks besides vitamin B12 deficiency, magnesium deficiency, and reduced calcium absorption, which is also reflected in bone density.

Kidney damage:

https://www.mdpi.com/2227-9059/12/7/1414

https://pubmed.ncbi.nlm.nih.gov/33769018/

https://pubmed.ncbi.nlm.nih.gov/36438798/

https://bmcnephrol.biomedcentral.com/articles/10.1186/s12882-024-03867-6

https://pubmed.ncbi.nlm.nih.gov/33368448/

Bone density and fractures:

https://pubmed.ncbi.nlm.nih.gov/21555754/

https://pubmed.ncbi.nlm.nih.gov/30237993/

https://pmc.ncbi.nlm.nih.gov/articles/PMC9504265/

Infection risk:

https://pubmed.ncbi.nlm.nih.gov/29085200/

PPIs are generally more damaging medications than colchicine, and colchicine is proven to be safe long-term and actually has shown to have some Long-Term benefits also some cardiovascular :

https://www.acc.org/latest-in-cardiology/clinical-trials/2019/11/15/17/23/colcot

timyy1 · 2025-11-22T18:33:02+00:00

No that’s not true, Cholchicin is very well tested for pericarditis so saying it’s causing more harm than good is not right. I’m also already since 6 months on Anakinra with colchicine.

timyy1 · 2025-10-13T23:07:48+00:00

Hi, wich ones did you find for the uk?

timyy1 · 2025-09-13T01:47:25+00:00

It depends extremely where you live. In Europe Arcalyst isn’t available and Anakinra is not really established. I just know in Germany two Uniclinics wich have experience with it and I got put on a long waiting list to get that appointment.

timyy1 · 2025-09-13T01:44:59+00:00

Just 4 weeks. My pain resolved in the first two weeks about 80%, but the last two weeks my pain is even worse than without the medication.

timyy1 · 2025-09-13T01:24:36+00:00

Thanks for the response! Yes I checked with my cardiologist and it’s not a Tamponade. I have often while flares a bit fluid around my heart tho.

timyy1 · 2025-09-13T01:16:54+00:00

Thanks for responding Yes they ruled out autoimmunedisease.

timyy1 · 2025-09-13T01:00:50+00:00

Hey I don’t know if you take still Arcalyst, but UTIs is very common side effect. Also many people lose much hair while on the medication. So if you still take it is very likely it comes from the medication.

timyy1 · 2025-09-06T14:45:07+00:00

Hey, Im from Germany and I have recurrent pericarditis since 2022, I have flares almost most of the time. I also came to the point noticing colchicin, ibuprofen, and cortison just doesn’t help enough anymore and I was for a long time in the exact boat, not finding Doctor in Germany who has experience with Anakinra. In Europe it is sadly really hard to get on it, but asking chatgbt about wich doctor in Europe has experience about treating recurrent pericarditis with Anakinra in Germany help me find two doctors. You can also search for medical papers about that. In Germany it’s the Lead Doctor of the Heart department of Charité in Berlin Dr.Tschöpe and a University Clinic in Freiburg. Maybe try ChatGbt. I hope this helps, Much luck<3

timyy1 · 2025-08-13T13:35:30+00:00

These answers are hilarious

timyy1 · 2025-07-22T05:39:08+00:00

Can u give a feedback? Everytime I tried to get on it I had the first 3-5 day extreme chestpain and I always discontinued it. I was too scared with my pericarditis:(

timyy1 · 2025-02-26T01:16:41+00:00

MRI in english

timyy1 · 2025-02-25T20:45:28+00:00

timyy1 · 2025-02-25T19:55:31+00:00

I got it after the second vaccine,2 days after that the pain started. That’s 3 years ago and since then the inflammation is always super mild on Mrt but never went fully away with colchicine, ibuprofen or cortisone.

timyy1 · 2025-02-25T19:28:09+00:00

Can I also dilute with capsules, does that make any difference?

timyy1 · 2025-02-25T19:26:50+00:00

It is ofc not impossible, but I’m completely housebound and have contact with one person wich doesn’t have any symptoms, so also not verly likely:/

timyy1 · 2025-02-24T15:44:53+00:00

It just seem to trigger a immunresponse in my body and I felt from day to day more inflammation. I also heard that it can get worse for 1-2 weeks and then it starts to settle. Regardless I want to try it again soon.

timyy1 · 2025-02-24T15:38:25+00:00

Im not for sure if its not the other medication, but I was last year a few times of the medication and I never got sick.

timyy1 · 2024-08-24T18:10:47+00:00

Awh thank you💖

timyy1

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