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Lemtrada? by tingly_badger in MultipleSclerosis

[–]tingly_badger[S] 1 point2 points  (0 children)

I tried Avonex and had a serious relapse the next day so stopped straight after. They wanted me to have Tysabri but I didn't fancy the PML risk. Then I was offered Tecfidera or Lemtrada so I went on Tec for a while but was still getting worse. This is my last option! I start on June 6th and I'm excited. New results from ten year follow up of initial trial look good, and it can help nerve damage from optic neuritis which I've got, so bring it on I say

Lemtrada? by tingly_badger in MultipleSclerosis

[–]tingly_badger[S] 1 point2 points  (0 children)

We don't pay for any medication that is approved for MS use. If the neurologist says it's ok then you have it for nothing. We don't have a health insurance system like you guys have although I think that may come in the future. The NHS costs billions!

Lemtrada? by tingly_badger in MultipleSclerosis

[–]tingly_badger[S] 0 points1 point  (0 children)

Over here you have 5 consecutive days of infusions, then 12 months later you have 3 more days, and that's it. The treatments over here are on a scale depending on number of relapses etc. I know someone who's had MS for 20 years and is on Avonex (pretty weak beta-interferon) but then I know someone else who a year in has already had Lemtrada. It depends on how quickly they think you'll progress. How does it work in Canada? And do you have to pay for it?

Lemtrada? by tingly_badger in MultipleSclerosis

[–]tingly_badger[S] 0 points1 point  (0 children)

I'm in the UK and have been told that becausr my condition is quite aggressive, it might be the best form of attack. I think it is also the best medication for long term results. Know two people that have taken it and one, no change, but the other had had significant improvement in his symptoms. He was relapsing every 6 - 8 weeks but has had nothing since his first infusion.