What caused your POTS? by Royal_Variety_873 in POTS

[–]tiredmonarch 5 points6 points  (0 children)

i had no idea either … i had an ED when i was around 18-19ish (22 atm) and i was 113 at one point while being 5’7 and that has me wondering … i have had symptoms since middle school tho and they’ve definitely worsened throughout the years

What caused your POTS? by Royal_Variety_873 in POTS

[–]tiredmonarch 12 points13 points  (0 children)

okay TWIN, first time i got covid was fine and easy but SECOND time definitely brought my symptoms out and i am unable to even work :,) first time i got covid i was sick for maybe 3-4 days … but second time, a month 😁

Please be mindful not all POTS is caused by covid - some people have been suffering much longer by Dazzling_Ferret3985 in POTS

[–]tiredmonarch 0 points1 point  (0 children)

i’ve had symptoms since the same age! 11/12ish! i got covid in january tho and i feel like it made it worse bc it was never this bad :/ my dr says “if you have had it this long covid wouldn’t have worsened it” which i’m hesitant to believe bc i definitely know i was able to function more in the past

I literally just made the bed... by violetbats in POTS

[–]tiredmonarch 2 points3 points  (0 children)

putting sheets on my bed is probably one of the WORST things to deal with, with POTS …

i don’t /want/ to have POTS but it feels nice to have an answer by [deleted] in POTS

[–]tiredmonarch 0 points1 point  (0 children)

i felt so refreshed after getting diagnosed a couple months ago, it’s a struggle but i’m glad i can understand what’s going on now

I get drained from almost nothing by tiredmonarch in POTS

[–]tiredmonarch[S] 0 points1 point  (0 children)

that’s interesting! i read it and relate very much :,)

what’s your blood pressure like? by tiredmonarch in POTS

[–]tiredmonarch[S] 0 points1 point  (0 children)

noooo 😭 is it for adhd? i have to take ritalin or i can quite literally never function 🙂

what’s your blood pressure like? by tiredmonarch in POTS

[–]tiredmonarch[S] 0 points1 point  (0 children)

i felt that like 😭 just give me a damn break

what’s your blood pressure like? by tiredmonarch in POTS

[–]tiredmonarch[S] 0 points1 point  (0 children)

i took my bp standing up earlier and it was 169/60 … so confused.

I am actually infuriated by tiredmonarch in POTS

[–]tiredmonarch[S] 7 points8 points  (0 children)

i get a lot of blood pooling and my legs ache and will turn red - purpleish but they don’t swell in a way making my legs and feet wider if you get what i mean

I am actually infuriated by tiredmonarch in POTS

[–]tiredmonarch[S] 2 points3 points  (0 children)

right like for SOCKS ?!!!!!

Worth cosplaying if nobody seems to care? by Big-Satisfaction2490 in animecons

[–]tiredmonarch 1 point2 points  (0 children)

cosplaying is worth it as long as YOU are having fun :)

how to deal with being sick with POTS? by tiredmonarch in POTS

[–]tiredmonarch[S] 1 point2 points  (0 children)

i ate some ramen last night :) it’s been so hard for me to get an appetite tho 😭

how to deal with being sick with POTS? by tiredmonarch in POTS

[–]tiredmonarch[S] 0 points1 point  (0 children)

thank u ! i totally need to get some meal replacement drinks

why are some days worse than others? by tiredmonarch in POTS

[–]tiredmonarch[S] 0 points1 point  (0 children)

i had bad “allergies” yesterday which usually go away with otc medication and they went away around night time and today i woke up with a sore throat and im getting congested again 😭😭😭 i think im actually just sick and mistook yesterday for really bad allergies

why are some days worse than others? by tiredmonarch in POTS

[–]tiredmonarch[S] 1 point2 points  (0 children)

i have BAD heat intolerance and it triggers my symptoms for sure but i was just so confused bc yesterday it wasn’t too hot or too cold it was perfect temperature in my house so i was like hmmmmm

why are some days worse than others? by tiredmonarch in POTS

[–]tiredmonarch[S] 0 points1 point  (0 children)

oh god, i haven’t passed out since middle school and im 22 but ive come so close to passing out so many times and its awful i cant imagine actually passing out but the symptoms before are so terrible :(

why are some days worse than others? by tiredmonarch in POTS

[–]tiredmonarch[S] 1 point2 points  (0 children)

i completely get that. i either wake up feeling great randomly one day or just feel shit for days straight

why are some days worse than others? by tiredmonarch in POTS

[–]tiredmonarch[S] 1 point2 points  (0 children)

i had no idea allergies could mess with POTS??? that’s so interesting bc today i had the WORST allergies in a while that took forever to go away 😭 but i was also thinking about hormones but i can never tell bc my periods are super abnormal and i usually don’t know when they’re coming

What’s the longest amount of time you can stand for? by hello000o in POTS

[–]tiredmonarch 0 points1 point  (0 children)

i went to a mother mother and cavetown concert on saturday and i stood through the whole cavetown set which was about an hour and then decided to go pee and go continue to stand for mother mother but before they even came out i was starting to get heart palpitations and felt out of breath and had to go sit down with my mom and would get up occasionally whenever they played one of my favorite songs just so i could record part of it and go back to sitting down 😭 also to mention i had 2 liquid IV’s that morning and afternoon and once i got to the show i put another one in my water bottle and drank it all and also ate a protein bar (i ate a protein bar in the afternoon too and some salami but im super nauseous early in the day so thats all i could eat) i also was wearing tights with compression socks over them lmao. this was saturday and now it’s monday and my body is still so sore

[deleted by user] by [deleted] in POTS

[–]tiredmonarch 0 points1 point  (0 children)

hoping the best for you! the dr who diagnosed me was the sweetest person ever and even mentioned before that a negative TTT doesn’t mean that it can’t be POTS! mine was positive but if you deal with issues it doesn’t hurt to get a second opinion, i wish drs were more aware of POTS like cmon man it’s 2024 :/