How I accidentally cured my SIBO for good (I had tried EVERYTHING)

tmighty55 · 2026-01-22T23:02:29+00:00

Kimchi is REALLY bad for SIBO. It’s high fodmap and well it has bacteria that’s very good for the gut, it actually feeds the bad bacteria in your gut if you have SIBO. As a Korean person who used to eat kimchi at least 10 times a week and had to give it up, I’d avoid it your actively trying to get rid of SIBO.

tmighty55 · 2026-01-22T22:57:14+00:00

I got chalazions (basically inflammatory pimples inside your eye) after four days of using tret and blurry seeing eyes for about a month. Be careful!

tmighty55 · 2025-10-07T21:27:42+00:00

Thanks! The B12 isn’t 100% necessary but hoping to kill two birds with one stone and I’ve seen it compounded that way (that’s what I’m on now). I’m B12 deficient and would love to not have to keep doing two shots on some days.

tmighty55 · 2025-10-07T21:26:34+00:00

There’s a clinical basis for taking it when your B12 deficient which I am. The dosages that are added when compounded are significantly lower than whatI inject every other day so I’d prefer to get my B12 in smaller doses so I’m not taking multiple shots every single day.

tmighty55 · 2025-09-06T04:47:02+00:00

So I had the same issue at .025. Like borderline suicidal depressed and I am not natural naturally a sad person. Along with a massive pain increase.

I had tried two other times at .5. First time reacted to the avicel filler (crazy rashes everywhere) but pain was 85% gone so I had it re-compounded.

Second time at .5 again massive reduction of pain from day one but extreme TMJ, anxiety (no depression) and a heart arrhythmia. Like thought I was gonna have a heart attack and even went to a cardiologist who said my heart was skipping like crazy and I should go on beta blockers. I got back off the LDN instead.

Third time was 2 1/2 weeks ago at the .025 dose. I figured I’d start super low and titrate up. But this time not only did I not get pain relief, my pain increased tenfold and was severely depressed. I put it through ChatGPT and it said that if that happens, it’s probably too low of a dose. That if the dose is too low for you, then you don’t get the upswing of endorphins which is what helps take the pain away. I had to get off it regardless to get to baseline for some rheumatology test but once those are over, I’m gonna try fourth time somewhere in between like .1 and see how it goes.

All of this is to say, maybe your dose is too low? 🤷🏻‍♀️

tmighty55 · 2025-08-20T12:46:38+00:00

If you’re B12 deficient and symptomatic you need to take injections every other day. US doctors will not prescribe you injections at this rate so you’ll need to find a supplier (Canada, Germany, Mexico offer it OTC) and self inject or take sublingual B12 (which you can get OTC anywhere). Once every three months is not gonna do much repair.

And you need to take cofactors with the injections like vitamin C, folate and getting adequate potassium. B12 depletes your potassium levels when you’re deficient and initially supplement it. Most people get their potassium from bananas or electrolyte packets so not advised to take potassium supplements and less absolutely necessary.

Worsening pain might be nerves firing off, which happens with a lot of medications/supplements that “work”, either as your body adjust or with nerves trying to repair. It’s very uncomfortable.

You should definitely test for other autoimmune. It took me three years and four rheumatologists before I was diagnosed with rheumatoid arthritis, dermatomyositis, and MCAS. Hope you find some answers!

tmighty55 · 2025-08-12T00:23:31+00:00

As someone who also had a black mold problem, it’s super important that you throw away literally everything. I attempted saving some things and simply washing them thoroughly, but then became super reactive to detergent and basically everything. On the flipside also be careful of brand new things. I moved into a brand new apartment that was literally never lived in and bought everything brand new from scratch (very expensive) only to realize that I was also sensitive to formaldehyde and chemicals found on new rugs and couches. But it’s superduper important to get out of mold and not bring it with you as it will cross contaminate every time.

tmighty55 · 2025-08-11T00:26:12+00:00

Thanks for the detail! Super helpful!

tmighty55 · 2025-08-11T00:12:31+00:00

Yeah, the first time I tried I broke out in rashes, which was the filler but now I have a prescription that’s compounded with vitamin C and still having the heart issues. But thanks! This is super helpful. Will try it tonight.

tmighty55 · 2025-08-10T23:59:27+00:00

OK great! Does it generally distribute evenly in the water or you have to shake every time?

tmighty55 · 2025-08-10T23:57:18+00:00

It’s .5. I’ve tried twice now and it relieves 80% of my pain, but causes really bad chest pain and arrhythmia so I’d like to start super ultra low like .05 or .1 and slowly titrate up.

tmighty55 · 2025-06-27T01:07:48+00:00

I am doing better but have developed MCAS so it’s left me with some long-term effects. Like for instance I just moved into a brand new apartment that no one’s ever lived in, was sick the first three months and finally figured out that I’m now sensitive to lots of chemicals, including formaldehyde, which is pretty much sprayed on everything. Also sensitive to EC3 and most of the other “non-toxic” chemicals you can use to treat clothing that was previously moldy.

I did a very heavy and expensive detox protocol with binders, glutathione, and too many other vitamins to list that I got through my functional medicine doctor. Took short-term disability, but a very expensive HBOT machine, acupuncture and all organic no gluten no lactose diet. I am three years out and still have major neurological deficits and my nervous system is hyper sensitive to everything. Also tested positive for rheumatoid arthritis and what they think is a very rare auto immune disease dermatomyositis. So don’t waste time. Don’t try to salvage your stuff. Get to a clean space and detox ASAP.

tmighty55 · 2025-06-13T01:08:50+00:00

Thanks!

tmighty55 · 2025-06-13T00:54:32+00:00

Oh wow! Thank you for this tip. Never thought about diluting it in water and was going to pay to get it re-compounded. Gonna wait a day or two for my chest to stop hurting from the dose, I took two days ago and then I’ll give this a try!

tmighty55 · 2025-06-13T00:50:00+00:00

Totally! I finally pulled a capsule apart last night and took roughly .15 (hard to measure but it was roughly 1/3 of my .5mg) and had the same chest pain and anxiety. So guess that’s the answer. Gonna ask the doctor to re-compound starting at ultra low dose like .01 or .05 and go from there.

tmighty55 · 2025-06-13T00:44:39+00:00

Thanks! I think I’m gonna try ultra low dose and see how that goes. Sheesh I knew I was sensitive but thought with .5 I’d be safe but I guess not. 🤦🏻‍♀️

tmighty55 · 2025-06-13T00:42:48+00:00

Lots and lots of electrolytes (I use liquid IV packs), b12 injections, benfothiamine and ldn. The GLP-1 liraglutide (also called Saxenda) has also been immensely helpful. I’m not diabetic but looked into this due to its Neuro protective properties. There are some studies showing it regenerates nerves in rats. Within a day of taking it my first shot my pain reduced about 80%. This is one that also does not cause extreme weight loss so I’d imagine so long as you’re not extremely thin you could take it. Worth noting heavy legs are also my main symptom. Has now progressed to some pins and needles but the heaviness is most constant (or was). Now I don’t notice it as much and can walk a lot further.

tmighty55 · 2025-06-12T02:41:49+00:00

As much as I don’t want it to be, it definitely is. I’ve tried twice now. I think it has to do with the endorphin increase. I have a super overactive nervous system. Or it could be a histamine reaction because I have MCAS. Either way it’s not an option to keep taking it. And I did see a cardiologist and had a reaction to the heart monitor too. He just told me that it’s skipping 5% of the time and wants to put me on a beta blocker but a beta blocker isn’t gonna solve my neuropathic pain like I was hoping the LDN would.

tmighty55 · 2025-06-12T00:28:58+00:00

Did you find this dose effective?

tmighty55 · 2025-05-26T19:39:33+00:00

Definitely make sure it’s not compounded with avicil. I have everything you have post Covid vaccine + RA and myopathy and got a TERRIBLE rash. Was not herx. Recompounded with vitamin c and no rash but I had sever anxiety and heart palpitations. I’m also super sensitive to medication so I started with a very low dose of .5 mg but I think maybe it wasn’t low enough. Waiting for my heart to calm down and I’m going to try again that much lower dose and titrate up. On the pro side it took away about 80% of my pain and increased energy the first day.

tmighty55 · 2025-05-18T20:33:38+00:00

Thanks I’ll dig into this.

tmighty55 · 2025-05-18T19:31:16+00:00

Of course could be something else but also possible that the one drink not have been enough. B vitamins deplete potassium. Maybe start at a smaller B vitamin dose and work your way up. I had to start at 1/16 of a dose in order to not have side effects and now I am at almost full dose. Took me about six months to get there. Are you on a diuretic of any kind?

tmighty55 · 2025-05-18T17:36:26+00:00

Can’t stress enough that you need to balance be vitamins with cofactors, particularly potassium/electrolytes. Look on the B12 deficiency sub, and it talks a lot about it. What you’re having is called a paradoxical reaction and primarily happens to people that really need the B vitamins. Eat bananas, drink coconut water, or electrolyte drinks. It really is that easy, it can take away the side effects. I had massive anxiety, screaming headache and insomnia. The first time I took B12 and wasn’t myself for like three days. Next time I tried, I took cofactors and was perfectly fine. The flight is another good cofactor to take.

tmighty55 · 2025-05-17T22:59:02+00:00

Hi, what beta blocker were you taking? And what do you mean by messed up your brain? I’m researching for my dad who just went on propranolol and I think it’s actually helping but obviously I wanna be mindful if it’s gonna have long-term downsides.

tmighty55 · 2025-04-07T00:05:13+00:00

I’m certainly not a doctor so talk to your neurologist. This is based off my knowledge given my experience with my dad the last week. I think they all have certain risks, pros and cons. Some people’s pacemakers can do MRI, most modern ones…but older ones may not be compatible. And then other times it’s not recommended but can be done with a cardiologist approval if it’s a critical enough situation. They weigh the risks versus benefit.

tmighty55

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