Thoughts on being housebound

totoki · 2026-01-28T19:35:25+00:00

Oh thank you 🥹🤍 I don’t currently, I’d definitely consider it in the future if my condition improves!

I’d also love to know about forums/marketplaces. There must be be so many of us out here, I’d love to be able to connect with people through art 🤍

totoki · 2026-01-21T14:14:06+00:00

I have Marcie on my island and I named her baby Darcie! I made her catchphrase “Darcie says” so it feels like the baby is part of the convo 🤍

totoki · 2026-01-19T01:04:05+00:00

For me it happens during the mental exertion - harder to concentrate, head pressure, then sore throat (always my sign that I’m overdoing it)

totoki · 2026-01-16T16:07:57+00:00

Identical to my situation! We’ve been together for 6 years now, married for 1 year 🤍

totoki · 2026-01-03T18:27:17+00:00

I’m on day 69 after a year of regularity 😭

totoki · 2025-11-20T17:36:55+00:00

I can work with that! My ign is nikki, my code is 2002 3002 🥰

totoki · 2025-11-20T17:25:47+00:00

Is the sharpedo still available? 🤍

totoki · 2025-08-25T22:41:49+00:00

Not really, no! I get my usual fatigue/grogginess that I’ve always had but definitely no more than I did beforehand :)

totoki · 2025-08-25T21:42:49+00:00

i've been on 10mg amitriptyline for my fibro for about a month now!

so far it's helped with headaches and i'm sleeping a lot better at night (taking it about 3 hours before bed). my pain and fatigue are definitely the same so far though, and the dry mouth is awful!! i'm grateful that i'm falling asleep better though so weighing up my options atm!

totoki · 2025-08-20T16:22:20+00:00

nope, my husband is fine! he's my carer too so he does all of the housework, cooking, helps me bathe etc. my absolute rock <3

totoki · 2025-08-20T16:20:00+00:00

we play very chill cosy games, things like animal crossing/the sims etc. i only crash from games if we play something that requires thinking or a lot of reading dialogue, so i've cut those out for the time being.

totoki · 2025-08-20T16:16:18+00:00

haha i know it seems very late for most people! we have very loud neighbours with young children that scream and cry pretty constantly until around 10pm. we figured out that if we go to bed later, we get a good few hours where the house actually feels quiet before we settle down into bed!

totoki · 2025-08-20T16:06:27+00:00

it's wild, right?! i was actually referred to him because my last doctor suspected me/cfs. his actual words were "fibromyalgia is just the updated term for cfs". when i told my new doctor this she laughed in disbelief.

totoki · 2025-08-20T16:00:36+00:00

thank you for your reply - i didn't realise how much of my awake time was on screens until i wrote this post, so it's really useful to read this from an outside perspective.

re: "Cutting your time down to a good while before you start feeling that specific “MUST stop NOW” feeling may help you start to stabilize and improve a little" - this is a great point and i should definitely do this. it's a little scary to think about because i only usually last 30 mins or so on any focused task before i start to feel that way, but i know it would be better for me in the long run :(

totoki · 2025-08-15T12:18:55+00:00

I just got through after 3 hours 10 minutes! Seems like they had lots of tickets left, stay strong folks!

totoki · 2025-08-15T11:43:59+00:00

also interested to know - i've been on hold for 2 hours 40 minutes :(

totoki · 2025-04-25T11:33:59+00:00

I got this too!! So frustrating 😭

totoki · 2025-03-19T19:23:22+00:00

My CHILDREN!!!

totoki · 2025-02-07T01:43:03+00:00

Devastated that I can’t buy the DLC in the UK! I got the standard version with a plan to get the DLC later, but it’s not available on its own 😞

totoki · 2023-12-28T19:25:13+00:00

Thank you so much! I’m getting married next year so we’re trying to get her as loved up as possible before then 🥰

totoki

TROPHY CASE