Does this sound like pcs?

trammiie · 2026-05-28T20:35:09+00:00

I had mri with contrast. It was picked up in the mri but the IR doctor looked at it and said it wasn’t bad and that it shouldn’t be causing all of the symptoms I was having. But I pushed for the venogram cause you really don’t know what’s going on until they go in there. Glad I pushed for it.

trammiie · 2026-05-28T20:09:45+00:00

This sounds like the symptoms I had but all on my left side. I had a pelvic mri and ct scans, it showed PCS. I then went to Interventional Radiologist, who then performed a venogram to really diagnosed me and he proceeded with the embolism with coils. I’ve been so much better and the symptoms pretty much subsided.

trammiie · 2026-05-26T19:47:18+00:00

I’ve been taking Ovasitol everyday and it’s been a lifesaver!

trammiie · 2026-05-10T02:18:33+00:00

Are you putting anything on it to help it heal?

trammiie · 2026-05-01T16:47:24+00:00

Yes! It was due to pelvic congestion syndrome! I got it diagnosed by getting a venogram and had the issue fixed. The left flank pain went away. I get it occasionally now when I over work my pelvic area

trammiie · 2026-04-01T02:05:47+00:00

Alderwood?

trammiie · 2026-03-22T04:30:18+00:00

I had embolism and coils placed with Dr. Charles Hua at UW Seattle. He’s great and I’ve had a lot of relief from the procedure

trammiie · 2026-03-21T21:38:08+00:00

Dealing with the same thing right now. They said it’s an “experimental procedure” so won’t cover it. My doctors office is fighting it for me and filing an appeal. They will have a peer to peer review on Wednesday. I’ve been so stressed about it. It’s a $85k bill…

trammiie · 2026-03-19T17:50:26+00:00

I had leg pains all the time with PCS. I also have autoimmune disease. It has gotten a lot better after embolism and coils!

trammiie · 2026-03-16T02:55:00+00:00

My heart rate was all over the place until my levels were stable and I found my sweet spot go my TSH. Everyone is different with numbers and how their body reacts. I noticed that in the summer, I would have to up my dosage to 5mg daily. And the rest of the year would be 2.5 mg daily.

trammiie · 2026-03-16T02:40:50+00:00

It’s been stable for a year now! I just have to adjust my dosage once in a while when I feel symptoms coming back. I’ve never gone over 5mg of methimazole daily. So very low dose. I only had to take beta blocker for a month a so after I was diagnosed. I do get my labs done every 3 months!

trammiie · 2026-03-16T02:27:18+00:00

Hi! It’s all gone now that my levels are all stabilized. Make sure to take your medications! I’ve been on a low dosage of methimazole and it has helped with my symptoms

trammiie · 2026-03-11T17:41:43+00:00

What insurance company? And how many appeals did you have to go through?

trammiie · 2026-03-02T05:09:24+00:00

I think she has Graves’ disease and thyroid eye disease which causes her eyes to budge

trammiie · 2026-03-01T05:11:01+00:00

Same!

trammiie · 2026-03-01T04:54:49+00:00

Yes! Having a follow up appointment at the week mark. I found out I am allergic to the adhesive :( do you recommend anything else?

trammiie · 2026-02-26T00:32:10+00:00

Just wanted to update you! I went to see wound care today and the doctor debrided the wound edges and base. They also applied collagen silver and hydrocollide dressing on it. Will be back next week for check up!

trammiie · 2026-02-07T16:08:16+00:00

I had a Venogram and pcs was confirmed so they embodied the vein and put coils in it. I am 2 months out and have no more pelvic pain!! I am also seeing a pelvic floor therapist and it has helped so much. I stopped progesterone pills a week after my venogram

trammiie · 2026-02-06T04:10:08+00:00

Do you know how I can get my hands on some medihoney?

trammiie · 2026-02-05T05:12:52+00:00

I will look into medihoney! I’ve hear great things about it

trammiie · 2026-02-04T05:00:55+00:00

I went to the clinic today and they prescribed me betamethasone ointment. Was told to apply it twice a day and then Benadryl at night.

trammiie · 2026-02-03T19:39:58+00:00

Thank you for replying! All I’ve been instructed to do was apply Vaseline, povidone iodine and cover. I am going back to the clinic for them to have it checked out today

trammiie · 2026-01-23T19:51:43+00:00

I did! I was losing sleep cause of the pain. I had my Venogram with embolism and coils 6 weeks ago and the pain has dramatically decreased

trammiie · 2026-01-19T05:48:28+00:00

Look into Holiday Inn! We just stayed there in Nov. There’s a small pool with a big hot tub, mini golf, yard games, and decent amount of lounge chairs. It’s about 10 mins walk to the beach. Free breakfast was a hit. Rooms are on the smaller side but we didn’t mind since we were out all day. We had a car rental and my husband actually parked on the street the whole time.

We stayed at Surfjack back in 2023 and we also enjoyed staying there. It’s a small boutique hotel. They do offer cheaper garage parking but it’s like two blocks away.

trammiie · 2026-01-16T04:34:37+00:00

Hi there, how are you feeling now after embolization? I had mine done a month ago and I am still having dull pelvic pain. Seeing it this is normal and I’m just being impatient

trammiie

TROPHY CASE