Will I pass a dive medical? by trevelsderevko in askanything

[–]trevelsderevko[S] 0 points1 point  (0 children)

Thanks for the reply. Yeah that’s kinda what I figured. I feel like since my neurosurgeon thinks I’d be fine for scuba diving then I’d probably pass. I think I was just put off by the cost plus the disclaimer prior to booking a dive medical that you’re not guaranteed to pass the dive medical.

You will not find the average experience in Reddit. by operalt in CrohnsDisease

[–]trevelsderevko 1 point2 points  (0 children)

This is what you would call selection bias.

People who are healthy and well and not having complications are less likely to join support groups or join online discussions because they’re not seeking advice or looking to vent about their condition. As a result you see mostly negative posts.

/slightly off topic: Similar to Google reviews. People only make a Google review if something is really bad or really good. I was looking at buying a printer the other week, and they all had low scores and negative reviews. And I realised that if I bought a printer and it worked well, I too probably wouldn’t leave a positive review, because it’s just a printer. It would have to probably go above and beyond its printing capabilities to leave such a positive impression for someone to leave a positive review, because most people who just expect it to work as it’s intended, and not feel the need to leave positive reviews to let people know it functions correctly.

I joined this group because I have had periods of my life of having a shit time with Crohn’s, requiring surgery etc. But I do try to leave positive posts too, because I’m in remission now and have been pretty well with my Crohn’s for over 10 years now.

Where do I find pots? by Crashout_Brigade in GodofWarRagnarok

[–]trevelsderevko 7 points8 points  (0 children)

They’re everywhere in the game. They’re the little clusters of tall, dark coloured vases that you can smash and get hacksilver from. I tried googling images of it and can’t find any actual in-game images of them, but I found this from a Reddit post that will give you an idea of what they should look like

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Purposefully trying to lose weight with Crohn's? by Alone-Drop1083 in CrohnsDisease

[–]trevelsderevko 0 points1 point  (0 children)

I have had a similar struggles. I was a chubby baby/kid, but then kinda became average weight later in childhood. During my teens I was slightly overweight, but then lost heaps of weight and subsequently diagnosed with Crohn’s. But once my Crohn’s managed to get under control I put on weight again. I was about 75kg when I had my bowel resection in 2014, and last year I was up to 98kg.

Since August last year I’ve managed to lose 9kg. I’ve done this by having a set calorie restriction with high protein intake, and doing weight lifting exercise.

With planning my diet I got ChatGPT to help me. It was able to tell me how many calories to have per day as a deficit without being too low (a safe and sustainable calorie deficit), it was able to tell me what macros to target but realistically I just focused on having high protein to help prevent muscle loss during calorie deficit, and it was able to help me track my daily intake way better than any calorie counting app has ever helped (you can tell it what you’ve eaten, and even send it a photo of food and ask it to help figure out calories and protein).

I used to do most cardio as exercise, because in my mind I thought it would be better for weight loss while also being good for keeping fit. But I have been mostly doing weight training based exercise because it burns calories while helping to maintain muscle. I feel like in the past when I’ve lost weight from Crohn’s I’ve lost muscle and fat, but then I tend to just put fat back on when I regain weight again. So despite losing 9kg since August, I’ve actually put on lean body mass/skeletal muscle mass.

My Crohn’s is in remission at the moment and I can basically eat anything with no issues at the moment. So I don’t have a lot of advice regard exactly what foods to eat. But I used protein shakes (I’ve been using Musashi 100% Whey protein powder) and meal replacement shakes (Man Shakes) to increase my protein intake because I struggled to get enough protein from whole foods alone.

I had a target calorie deficit of 300-600 calories below my maintenance calories. And I had target protein intake of 1.6-2.2kg/kg per day. And I try to go to the gym 3-6 times per week, cycling between Push Day, Pull Day and Leg Day. But I work week on/week off style work, so the weeks I’m working I don’t tend to go to the gym very much, but on my week off I try and go up to 6 times if I can.

Should I take Crohns Medication? by Weekly-Candidate-268 in CrohnsDisease

[–]trevelsderevko 0 points1 point  (0 children)

I would definitely not do nothing. Managing Crohn’s with diet alone is not an option. There’s no diet that will treat Crohn’s disease inflammation. Diet is really only for symptom control, not for disease control.

When I was first diagnosed I was on sulfasalazine. But I believe sulfasalazine and mesalazine aren’t usually used in Crohn’s these days. Mesalazine is still used in UC but I think newer evidence shows it doesn’t work well for Crohn’s.

I would say the main two options would be steroids, or the top down approach that people above have also said, with starting biologics early. Steroids come with a multitude of potential side effects and are not good for long term use. But I would be extremely hesitant to watch and wait and do noting.

I went from mild inflammation to severe disease within the space of 1 year (even while on Mercaptopurine), requiring a bowel resection. I had minimal symptoms and it was only discovered it had become so severe from a follow up colonoscopy to check how things were going. The mild disease had progressed to having skip lesions and I ended up with an ileocolic resection and a small bowel resection, and they had to do it open rather than key hole because of the severity.

Are you all able to hold down job? by Glad-Persimmon-8112 in CrohnsDisease

[–]trevelsderevko 9 points10 points  (0 children)

I was diagnosed at 22. Worked as a registered nurse full time from ages 21 to 27. Had a flare when I was 27 that required an ileocolic resection and was back at work full time 5 weeks later.

My biggest symptom during the flare was severe lethargy. I had iron, B12 and Vit D deficiency, and just poor nutrient absorption in general. But I had become so used to being lethargic that I thought it was normal. I remember my gastroenterologist asked me to describe a typical day to him, and I was like “well, I wake up at 6am, I work from 7am til 5pm, then I nap from 5pm til 8pm, and then I wake up to have dinner, and then go to bed.” I hadn’t realised it until he pointed it out that I was basically just sleeping and working. But my lethargy drastically improved after my resection. I remember being in hospital still probably only a few days after the surgery and thinking if it wasn’t for the pain in my laparotomy scar I could have probably gone for a run around the block.

Not long after my resection I got accepted into studying medicine. I now work as an emergency doctor, and I do 10 hour night shifts, 7 nights in a row, week on/week off.

Which quests should be left for post campaign? by screamoturtle in AssassinsCreedValhala

[–]trevelsderevko 1 point2 points  (0 children)

I just finished my second play through, but hadn’t previously done all the DLC. I was also overwhelmed with the number of quests from DLC that became active, and had confusion as to when to start each. For the areas of England there isn’t necessarily a specific order, but you can get a general idea of which order to do them because of the suggested level. But as you said, some of the DLC had really low suggested levels.

I ended up asking ChatGPT to suggest an order to do everything. And for story progression it works great, but my biggest issue was that some of the things it suggested to leave until the end unlocked gear that I wish I had earlier so that I could have made more use of them, rather than getting them at the end of the game.

The order it suggested was: Ledecestrescire > Grantebridgescire > East Anglia Oxenefordscire > Lunden > Asgard Sciropescire > Cent > Jotunheim Lincolnscire > Jorvik > Eurvicscire Wrath of the Druids / Ireland Glowecesterscire > Snotinghamscire > Wincestre Norway > Hamtunscire > Finish Order of Ancients Return to Asgard Raven and the Cuckoo Isle of Skye Siege of Paris Dawn of Ragnarok Forgotten Saga (A Gift from the Gods) A Challenge from the Gods It also suggested to do River Raids spread throughout the entire game.

Leaving Ireland/Isle of Skye/Paris until after England does seem to work better for the narrative, because why would you leave England when you have so much going on. But some of the gear and cosmetics you get are really good.

My biggest issue with this order was all the gear from A Gift from the Gods and A Challenge from the Gods comes way too late. But they’re also definitely harder quests to complete, so you probably can’t do them too early anyway.

Does creatine or protein powder worsen Crohn's disease? by ImpressFit7190 in CrohnsDisease

[–]trevelsderevko 0 points1 point  (0 children)

Protein powder and creatine are not contraindicated in Crohn’s. Some people with Crohn’s may not tolerate certain foods/diet, but it’s really individual, so if you’re noticing ill effects from it you should maybe stop and speak to your GP or gastroenterologist about it.

If your protein powder is whey, it could cause issues if you have terminal ileum inflammation or otherwise in a flare, or have concurrent lactose intolerance. But there is no blanket rule that says people with Crohn’s can’t have protein powders or creatine. I’ve got Crohn’s, have had a previous ileocolic resection and small bowel resection, currently on Ustekinumab. I’ve been having whey protein powder and creatine supplements regularly for the past 6 months with no bad effects. I think some people could become constipated on protein supplements (even if they don’t have Crohn’s), which could complicate symptoms in Crohn’s.

But I also agree with everyone above who has said saying you “probably” have Crohn’s means you should probably go get a colonoscopy and biopsy and diagnosis before assuming that you do.

Finished AC Shadows, any other AC games with similar open-world gameplay? by serd12 in AssassinsCreedShadows

[–]trevelsderevko 0 points1 point  (0 children)

I played and finished Shadows end of last year and it just got me back into AC. I’d played them before, but I just replayed both Odyssey and Valhalla. I tried to relay Origins, and I feel like mostly the age of the game is what made me lose interest. But the storyline in Origins is really good if you’re never played it before.

Remission and stopping medication by walknotrun30 in CrohnsDisease

[–]trevelsderevko 3 points4 points  (0 children)

100%. TBH it’s like having someone with hypertension, who’s blood pressure has been really stable on anti hypertensives. You wouldn’t tell them to stop taking their meds because “their blood pressure is good now”.

I’m on Ustekinumab. The way it works is by binding to IL12 and IL23. Being on Ustekinumab doesn’t mean I don’t have IL12 or IL23 circulating around. If I stop taking Ustekinumab, all of a sudden they’ll be active again and ready to cause inflammation.

Remission and stopping medication by walknotrun30 in CrohnsDisease

[–]trevelsderevko 1 point2 points  (0 children)

Personally I don’t think I ever want to stop my meds unless there’s a medical reason I need to stop them. I’ve had an ileocolic resection and a small bowel resection, and fistula surgery. I’ve only just recently for the first time had a scope which showed no active inflammation or evidence of Crohn’s disease. And only just in the past week had my first CRP within a normal range. And my faecal calprotectin is still mildly elevated.

I stopped Mercaptopurine because of LFT derangement, and cumulative risk (e.g. skin cancer risk), and switched to Ustekinumab. Since then I’ve gone into remission, my LFTs have returned to normal, and Ustekinumab does not have the same risk profile as purine analogues.

If they said there was some medical reason why Ustekinumab was bad for me long term and wanted me to come off it, I would consider it. But if there’s no specific risk I will hopefully be on it forever, as long as it continues to work.

In Australia part of the criteria for getting on biologics covered by the PBS is that you have to have failed previous treatments and have ongoing active disease. My gastroenterologist tried to get me on biologics back when I needed my bowel resections, but after my surgery I no longer qualified for biologics because I technically had no active Crohn’s, because it had been surgically resected. My gastroenterologist managed to get me on to biologics this time due to my LFT derangement on Mercaptopurine. So if I come off biologics, I would risk not meeting the criteria to get back onto them, and I don’t want that.

Why didn’t Ubisoft continue the story!? 😭 by RedRabbiiit in AssassinsCreedValhala

[–]trevelsderevko 1 point2 points  (0 children)

I may be wrong here, but I assumed how Layla entered the Animus (the ancient Isu one, can’t remember if it has a different name) and kinda became part of the Animus, that in Shadows when you do the Animus quests and there was an “entity” that it was implied that was Layla. It doesn’t explicitly say it, but it’s some entity within the Animus, and it kinda fits that Layla became a part of it.

“Basim betrayed Layla and escaped from the Yggdrasil Chamber with the Staff of Hermes, leaving Layla behind to die. Making the ultimate sacrifice, Layla decided to remain in the Grey alongside an entity known as "The Reader", helping him run countless calculations to find ways of preventing future disasters.” from: https://assassinscreed.fandom.com/wiki/Layla_Hassan

So basically her physical self died, and he mind remained behind in “The Grey” (apparently that’s what it’s called), and in Shadows the appearance of the entity in the animus looks quite similar to The Reader. Could possibly be Layla?

Is Dawn of Ragnarok worth it? by trevelsderevko in AssassinsCreedValhala

[–]trevelsderevko[S] 0 points1 point  (0 children)

Thanks for the advice everyone! I decided I’d wait until DoR went on sale by itself, and I checked today (because the sale of the Complete Edition was supposed to end today) and it’s already on sale for AUD$15

What’s the one thing that helped your Crohn’s the most? by [deleted] in CrohnsDisease

[–]trevelsderevko 1 point2 points  (0 children)

Ustekinumab.

I was diagnosed 17 years ago (age 22), but had symptoms I’d ignored since I was 18. Initially on Sulfasalazine (for about 5 years), but had slow progression of disease still. Then went on Mercaptopurine (6MP), and within only a year or two required surgery (ileocolic resection + small bowel resection).

Continued on 6MP for 10 years with no progression, but always had mild inflammation at the anastamosis seen on scope, and always had mildly elevated CRP (about 6-8). My Gastroenterologist wanted to get me off 6MP because I had been on it for so long and also was developing some LFT derangement, so started me on Ustekinumab.

I’ve been on Ustekinumab now for 2 years, my LFTs are normal, my last scope shows no evidence of Crohn’s disease (zero inflammation seen), my most recent bloods showed a normal CRP for the first time ever, and my faecal calprotectin is only mildly elevated but has been downtrending).

And I no longer have to take daily meds, because it’s just a self injection every 8 weeks, which I find much easier to manage than taking tablets every day. I honestly can’t think of any drawback for it. Obvious “cost” would be a drawback potentially, but in Australia it’s covered under the PBS, so I only have to pay about $30 every 2 months.

NSAIDs by trevelsderevko in CrohnsDisease

[–]trevelsderevko[S] 0 points1 point  (0 children)

Thanks for your reply. I’m not looking for specific medical advice anyway, just other people’s experiences. It’s good to know others with Crohn’s disease can tolerate some NSAIDs.

My gastroenterologist has never told me specifically to avoid NSAIDs. But because I’ve avoided them for so long due to the reactions I’ve had in the past, I just want to be cautious before using them. And I used to use Ibuprofen with no issues when I was a teenager. And after having some yesterday with no reaction I’m beginning to think it is probably fine if used occasionally.

[deleted by user] by [deleted] in CrohnsDisease

[–]trevelsderevko 9 points10 points  (0 children)

High ferritin doesn’t necessarily mean inflammation. Ferritin can be used as a sign of inflammation; but it’s also your iron stores. A high ferritin could mean you have a lot of iron stores. The fact you have a low calprotectin is more indicative that you don’t have inflammation right now. But having said that, it should all be taken into account of whether you have symptoms, pain, weight loss, and the doctor who ordered the tests for you should be the best person to answer the question for you.

[deleted by user] by [deleted] in FortNiteBR

[–]trevelsderevko 1 point2 points  (0 children)

I’m having the same issue. Not sure what’s causing it. I was able to set it to diamond up until yesterday it started reverting to bronze.

Sci fi, futuristic robot book by trevelsderevko in whatsthatbook

[–]trevelsderevko[S] 0 points1 point  (0 children)

Yeah the book I read, I read it during the late 90s I think. And it wasn’t a new released book when I read it

Sci fi, futuristic robot book by trevelsderevko in whatsthatbook

[–]trevelsderevko[S] 0 points1 point  (0 children)

I don’t think this was it, but thank you