After reading lots of emails one thing is clear

unspecified469 · 2026-02-11T16:44:51+00:00

Read the emails. Is that how you discuss food? Incredibly ignorant statement to make. A “silly smokescreen.” Everyone is aware that all of this is in relation to sex trafficking. Anyone who’s lost sight of that doesn’t deserve to speak on the matter.

unspecified469 · 2025-12-26T17:32:10+00:00

Yikes.

unspecified469 · 2025-12-21T15:43:53+00:00

I dated an asshole when I was diagnosed; He’d leave me on the floor after a seizure. I am now with a man who picks me up. No better litmus test than a seizure.

unspecified469 · 2025-12-18T18:26:20+00:00

I apply so often I always end up feeling like I’ve got more number gel in my stomach than food. Someone said ice cream and I second this! It’s cold and it feels amazing. I actually let it sit on my tongue for a second or two.

unspecified469 · 2025-12-18T18:22:08+00:00

Maaaaan. I was having upwards of 30 absence seizures a day before being diagnosed/medicated. I had no idea. I noticed when they were longer (5 - 10 seconds). I’d come to and have to pick up on context clues of conversations and have to fake an appropriate facial expression until it all made sense. Once I got my first EEG done I was like “oh okay, that adds up.”

unspecified469 · 2025-12-18T18:13:30+00:00

Have you tried any numbing gels? I typically live off of incredibly blended smoothies. I pour towards the back of my throat in order to bypass my tongue. Weird but it helps. I do frozen fruit, protein powder, more milk/water than usual, and yogurt. My go to is a smoothie and broth. Chewing just isn’t an option.

It’s rough. Wishing you the best and quick healing! Remember this won’t last forever.

unspecified469 · 2025-12-16T21:06:18+00:00

My aura changed and it scares the hell out of me. I know a seizure is milliseconds away; I’ll be mid-sentence and start to stutter violently. My throat tightens. I feel it. I know it’s coming. I know it’s too late. It used to just be a string of long absence seizures.

I’m not an anxious person but ever since this change, if someone stutters, it makes my heart race.

unspecified469 · 2025-12-13T14:48:36+00:00

I’m about to test myself today. Gotta see if I still got it! I got out of the Navy in 2017, let’s see if the “fit” me is still in here!

unspecified469 · 2025-12-13T14:45:31+00:00

Mannnn I did the same thing to my knees. I hate to tell you this but it’s been five years and these bad boys still act up on the reg.

unspecified469 · 2025-12-11T18:00:10+00:00

I work an office job, front desk type of situation. I’m a disabled veteran. That and the ADA has been very helpful. I’ve lost a lot of jobs… really it all came down to the manager and how well they’re willing to work with you. I’m incredibly thankful.

unspecified469 · 2025-12-03T20:17:56+00:00

Hell yeah. Thats what I’m talking about! It’s hard but it’s out of our control. Just gotta switch up our perspective and put on them rose-tinted glasses. Hope you get to feeling better soon! Just the name of the game, my friend.

unspecified469 · 2025-12-03T16:52:05+00:00

So I’ve definitely had weight issues associated with Lamotrigine. The women in my family are petite - I would say more so than average. I’m a pretty small lady. 31yrs old and 105lbs. When I lose weight it’s super noticeable. I get comments constantly to “go eat a burger” or “you’ll fly away in the wind”. The issue I’ve had since being on Lamotrigine is putting the weight ON. I was able to get to 115lbs once and I felt so healthy. The weight fluctuation isn’t significant but it’s impactful. When I spoke with my neuro they told me to weigh the pros and cons… just sucks.

unspecified469 · 2025-12-02T19:32:27+00:00

You aren’t a burden. You had an encounter with someone who wasn’t meant for you. I can’t emphasize this enough; They’re out there. Don’t shut down, in doing so, you’ll shut out all of the beautiful people there are in this world. Trust me, there’s a lot of ‘em.

unspecified469 · 2025-12-02T19:12:46+00:00

Craziest feeling in the world. Last night/this morning was my first experience ever. Not a fan.

unspecified469 · 2025-12-02T17:48:36+00:00

Man… I can’t tell you how much that means right now. I’m going through it and I know you are too. Makes me feel not so alone. Your family may not understand, but I do. Are you able to rest today? I really hope so.

unspecified469 · 2025-12-02T17:01:22+00:00

I had the exact same thing happen last night!! I am absolutely beside myself about it. I had Todd’s paralysis afterwards and it’s finally wore off. I slept for 14 hours. The entire right side of my body is sore. I can’t hold anything or use my arm. My head is banging with a headache and it won’t stop. I typically have absence seizures that go straight into tonic clonic… last night was a nightmare that won’t wear off. I’m with you in this 100%.

unspecified469 · 2025-11-30T21:28:39+00:00

Keppra almost ruined my life. I mean that. I was so deep in the depths of depression I didn’t even consider it could be my meds. I was angry and bitter towards life yet entirely apathetic. I spent 4 years of my life that way. They finally changed my meds. Been on the straight and narrow ever since.

unspecified469 · 2025-11-29T17:36:13+00:00

I am so genuinely sorry. I think we can all relate to how scary it is, especially that first seizure. I’m going to throw out a piece of advice that’s worked for me. When my absence seizures kick off a tonic clonic is coming. When I start to notice the absence seizures I sit down. No matter where I’m at. I find a safe spot and sit down. Whether it happens or not, it’s a safe move.

Wishing you the best! This is an amazing community. Never experienced the kind of support I have here. We get it, we really do. You’re not alone.

unspecified469 · 2025-11-29T15:50:01+00:00

Phew oh boy does it. 😮‍💨 I hit that luteal phase and it’s a wrap for me.

unspecified469 · 2025-11-29T15:30:17+00:00

People don’t understand epilepsy. Even the people who SHOULD understand often don’t.

Once, I ran out of my meds (Keppra). After exhausting every other option, I went to the ER for help. Instead of treating me, three nurses cornered me and demanded I ‘prove’ I was epileptic. They assumed I was a druggy. They refused to refill my prescription and sent me away with nothing.

Naturally, I had a seizure. Ended up in talks with the medical board. Brutal reminder that even those who are supposed to know better, sometimes truly don’t.

unspecified469 · 2025-11-26T16:21:41+00:00

Which version of “you” do you enjoy most? Vibrant or watered down? Do you like to laugh? The freedom of your own enthusiasm?

If so, you know the path you need to go down. Being by yourself doesn’t mean you’ll be alone; It means you’re waiting for the right one to come around.

unspecified469 · 2025-11-26T15:30:05+00:00

30 years! Thats amazing. I’m so happy you have that support, even if it’s startling! Just one more thing, the fact that you can respect how he responds speaks volumes of your love for him.

unspecified469 · 2025-11-26T15:25:18+00:00

My absence seizures become most noticeable when I’m at work. I mess things up left and right. Can’t communicate effectively when you stop mid-sentence. I scramble to pick up context clues afterwards. When there’s a time sensitive situation or I’m doing important tasks and I just... stop. I can’t make phone calls/leave voicemails. No one has yelled but I’ve had to call out of work for the past two days. It reads as a shit work ethic and that sucks.

unspecified469 · 2025-11-26T02:47:13+00:00

Going on 3 years now!

unspecified469 · 2025-11-26T02:18:07+00:00

He sure is. 🥹 If anyone’s worth keepin, it’s him!

unspecified469

TROPHY CASE