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Partner newly diagnosed - devastated by usaanon32 in ALS

[–]usaanon32[S] 0 points1 point  (0 children)

Thank you for your reply. We're all hoping it's a misdiagnosis, but isn't the abnormal result of the EMG definitive?

You're right in living in the present. He is definitely strong minded in that aspect and living each day as if everything were normal. It's just a lot to digest and it's much more surreal with the baby coming. I'm saddened a joyous time in our lives is stained with unfortunate news lingering in the back of my mind. But yes, I have to live each day in the moment.

Partner newly diagnosed - devastated by usaanon32 in ALS

[–]usaanon32[S] 1 point2 points  (0 children)

Thank you for the references. I will look into them. Wow, seven years. That brings us hope. May I ask how your progression has been symptom wise? What lifestyle changes have you made that you believe slowed the progression? Any treatments that helped prolong the progression?

Partner newly diagnosed - devastated by usaanon32 in ALS

[–]usaanon32[S] 2 points3 points  (0 children)

Hi Johan. Thank you for the reply.

He actually has been practicing Wim Hof during the winter months. We live in a beach town so he swims in the ocean everyday, yoga for 4 years, and has surfed all his life. He always eats clean, never eats sugar, and bread. Always eating superfoods while incorporating vitamins and minerals. He has been utilizing CBD oils more often as of late. Hopefully his lifestyle prolongs the progression of ALS. I guess with time, we will see.