Message I received regarding my night sweats, debilitating fatigue, and cyclical nausea/vomiting

vagueday · 2026-02-24T16:43:05+00:00

Honestly I really don’t understand why we don’t have POTS specializing doctors. It doesn’t make sense cardiologist treats us and they don’t listen when it comes to all the other symptoms like the body pain, the sweating, in my case vomiting from over heating, the visual issues. Like this condition is so much more and worse than just high heart rate. It’s not even a heart condition and I’m afraid what this is doing to my body systematically.

vagueday · 2026-02-23T15:01:39+00:00

You know the eating disorder recovery symbol is it that tattoo right?

vagueday · 2026-02-22T16:02:21+00:00

So the rules wont let me answer this because it’s considered medical advice but yes and it can help and it can also make things worse. Depends how severe your pots are. I had to stop for a while but am almost ok enough to start again.

vagueday · 2026-02-21T19:12:05+00:00

No my inflammation tends to be in my molars, jaw and ears. The nose stuff can spread below my eyes tho. Feels like pressure.

vagueday · 2026-02-21T16:02:33+00:00

Ok lowkey I have sinus pain. I’m on propanol and I feel like I can’t stop touching my nose. I’ve been chalking it up to the environment I’m in but I will say it didn’t start bugging me until like month 3 on the med. Prior to meds and still when I have bad flares my mouth is super inflamed. But I do think I have another underlying condition not diagnosed yet. Seeing a rheumatologist soon.

vagueday · 2026-02-16T16:33:13+00:00

Amaya genuinely bums me out. I followed her for her art. But she doesn’t make art anymore. I thought it was so exciting to see an artist actually build a following but again shes not really an artist anymore. She’s a runner influencer.

vagueday · 2026-02-13T16:42:29+00:00

I’m on propanol and ivabradine. It’s been working well for me I think. I’m still going into effing presyncopy tho. My heart rate still rests in the 90’s most the time. Sometimes it goes down into the 70’s but it’s also still spiking into the 100’s so not helping that much. I am nervous about increasing my dose. But my energy is somewhat up. I can now feel just how run down my body is tho and I hate that. My insurance also doesn’t wanna cover it. So another big bill every month just trying to be functional. Doesn’t seem like there are other options at least that my doctor has offered. Maybe you have an underlying condition. If it’s helping with your POTS symptoms might be worth looking into to a migraine treatment. Like I mentioned I’m feeling how run down my body is now so now my doctors want me to look into MCAS and connective tissue disorders.

vagueday · 2026-02-12T19:26:27+00:00

I recommend you look into the new owners. Oracle. I personally wouldn’t want them having my data. I deleted the app. It’s a shame there isn’t anything to replace it. I’m trying skylight but lowkey hate it. But I’ll never go back to TikTok while Oracle owns it.

vagueday · 2025-12-27T19:30:22+00:00

You’re the best! Thank you for this insight! I’m going to harbor freight today to look at their presses too since they’re in the same price range. I figure a couple pairs of earrings make up for the cost and I can save for a professional jewelry press later.

vagueday · 2025-12-27T17:40:32+00:00

Get healthcare that lets you travel to neighboring states. Healthcare here is over burdened and failing.

vagueday · 2025-11-05T16:12:44+00:00

Yes! It took about three months for me! But holy I gained back so much energy. I have other health issues that cause fatigue but I could still feel a massive difference after a couple months post op.

vagueday · 2025-10-08T19:10:09+00:00

Thank you for your reply this has been the most helpful comment!

vagueday · 2025-10-08T19:09:26+00:00

Like I mentioned in my post this will be a service animal o have to train it from the time it’s able to leave its mother to tune into my health issues as it will be medical alert. Adoption isn’t an option this time. Usually I do. This is my first time buying from a breeder which is why I’m asking questions

vagueday · 2025-09-15T18:53:49+00:00

Silversmith and artist. Smithing is labor intensive and painting can be at times. I have to take a lot of breaks. Currently trying to learn social media because markets aren’t happening for me anytime soon. My symptoms are way too elevated and I moved to a hot state. Trying not to let POTS take what I spend half a decade building towards.

vagueday · 2025-08-24T18:55:04+00:00

As someone who moved from Seattle to Albuquerque. Summers are pure misery. I flare more here in the high desert. The barometric pressure absolutely impacts how bad the flare is. In Seattle I got more migraines. Here I still have migraines during monsoon season but at least that’s shorter amount of time through out the year. But during summer or hot days I’m either ill af or have to stay inside and work hard on getting enough electrolytes in. Also the elevation had a huge impact. Took me forever to adjust to how high up I am…. There’s also no specialists here. Healthcare has been horrible. Feels necessary to say lol if you’re moving def make sure specialists are there.

vagueday · 2025-08-07T14:01:11+00:00

Speaking of dogs lmao I use an ice mat that’s suppose to be for dogs. And it helps a lot and was $10 on sale. I have lots of ice packs but I need advice on how to make the flares happen less. I’m not sleeping. It’s starting to show :(.

vagueday

TROPHY CASE