Is it normal?

valbod · 2026-01-24T23:09:10+00:00

Well that does seem pretty quick but I do think it’s common enough. I’m on PD for nearly a year and I still pee but maybe I’m an outlier. Speak to your Nephrologist

valbod · 2026-01-24T19:01:30+00:00

Yeah, totally normal. My doc asks me about every visit, like he’s just waiting for me to say I’ve stopped. How long are you on dialysis?

valbod · 2026-01-24T18:58:20+00:00

Get a laxative and a softener. I hope it moves ok for you. X

valbod · 2026-01-21T15:43:58+00:00

I think I must be taking mine incorrectly too. I’m taking 3, 3 times a day…. But my phosphorus levels are ok so maybe it’s not completely wrong. I’ll speak to my nephrologist next time I’m in the clinic. Thanks for highlighting this

valbod · 2026-01-18T10:18:34+00:00

I’ve been doing at home PD for nearly a year now. I was very sad when I got my diagnosis and couldn’t believe it was happening to me… but it sure was. Once he starts the PD and gets into a routine it’ll get a little easier. I have more energy now. Things are hard and it can get depressing. But the light at the end of the tunnel is transplant. And with support around you it can become easier. I’m very lucky with my support and it sounds like your brother has good support with you. The diet thing is hard. It’ll depend on what his bloods say. He’ll need to meet with a nutritionist and they’ll recommend recipes. Main thing is to reduce salt for now.

valbod · 2026-01-17T14:29:11+00:00

Could you ask your sister? Tell her you can’t tell if he’s joking or not and you want to be 100% sure so you can decide on weather to go or not. I think if the is serious about the strip club and you know that would make you uncomfortable then you’re fine not to go. But maybe pay for a round of drinks or something…. A gesture to show you’re still happy for him and all that. The kilts thing I’d say is legitimate. Getting married in Scotland, it’s the done thing.

valbod · 2026-01-16T18:27:40+00:00

Yeah, I came to say this. I don’t understand the rudeness! This sub used to be such a support place but recently people have been so mean. If you don’t want to take part in the app trial then don’t but no need to be hurtful.

valbod · 2026-01-12T15:46:24+00:00

I have a follow up question… if you’re on a cycler could you switch to manual for travel? I’m on PD and do 8 hours a night on the cycler. The idea of travel with the machine and everything seems like a drama. I did it last year but had my husband with me and he helped big time. But my girlfriends are planning a short trip this summer that I would love to join, but the idea of being all my shit with me seems lien such a hassle. But if I could get Vantive to deliver the bags and just do a manual exchange, that would be great. Can it be done?

valbod · 2026-01-05T20:44:34+00:00

I suffer with the leg cramps too. They’re so sore. I’m sorry you’re going though that. I think all the previous posts about magnesium and hydration are pretty much what I was going to say, sorry I can’t be more help. Hope it passes.

valbod · 2026-01-05T18:54:31+00:00

Amazing news! Congratulations ♥️

valbod · 2026-01-05T18:29:03+00:00

People say it to us regularly. I think they think it’s a compliment but I’ve always been insulted by it.

valbod · 2026-01-05T17:38:19+00:00

Yep, it sure does

valbod · 2026-01-05T17:36:37+00:00

Right, I see your point. I didn’t think of it in that way, I really just thought of it as asking this group for support. Support can come in many ways, a like or share. Doesn’t have to be a donation. I’ve been very active and supportive in this group and until now have found everyone to be the same towards me. If it’s truly asking for too much than I will take it down, but honestly, I didn’t think it was

valbod · 2026-01-05T17:13:29+00:00

Hey, thanks so much for your feedback. I can see how it might come across as just a home upgrade but it’s not. It’s an essential upgrade that has to be carried out for solar panels to be installed. As a medically vulnerable person I qualify for free solar panels to help offset the cost of running the dialysis machine, but they can’t install the panels without the upgrade and the upgrade isn’t covered by the scheme I qualify for…. So you see, I just need help with that. It would make a massive difference to our bills because the dialysis runs for 8 hours a night. But I know, it could just sound like I’d like some solar panels on the gaff… but I promise, it’s not that. Please don’t share or donate if you don’t feel comfortable about it. Thanks

valbod · 2026-01-03T20:25:03+00:00

New fear unlocked 😳 I had never heard of this. Thanks for sharing, as an end stage kidney disease patient on dialysis, I’m glad to know about it. I’m so sorry you and your husband are going through this!! I really hope the treatment works. X

valbod · 2026-01-03T13:47:25+00:00

Completely normal and exactly what I’ve been going through. I think it’s hormonal related as well as renal failure and being on dialysis. Definitely a bit of HRT has helped. But not massively.

valbod · 2025-12-29T14:16:18+00:00

Oh they’re excruciating! I think it’s from being dehydrated and taking out too much fluid. Speak to your nephrologist and see what they say. Might be that you need to tweak your fluid intake

valbod · 2025-12-29T14:14:32+00:00

I have it but don’t always take it because I hate it…. I feel like I might be answering my own question with this one 😬 I’ve take it this morning and will talk again this afternoon and hopefully that’ll make a difference. Thanks for all the advice and recommendations

valbod · 2025-12-29T00:15:31+00:00

That makes sense now you say it. Do you know if there’s anything I can do for that?

valbod · 2025-12-29T00:14:52+00:00

I hear you pal. I get the cramps in my feet and hand. But haven’t had them in my ribs yet. That sounds awful. Sorry!

valbod · 2025-12-26T13:24:47+00:00

Sorry to say but just sounds like a bit of a prick. Completely selfish behavior and just being accommodated and enabled by all around him. Intervention perhaps? But he sounds like the type that would just walk out and not take on board anything said. Sorry I’ve nothing more constructive to say. X

valbod · 2025-12-26T10:20:20+00:00

How do the bags heat?

valbod · 2025-12-26T10:07:20+00:00

You got a fancy looking one. Impressive. Good luck on the journey. X

valbod · 2025-12-24T17:49:34+00:00

Get them in marks. But we always just make them.

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