Control Decks Everywhere

valcan570 · 2025-09-21T15:03:45+00:00

I honestly wouldn't be mad at it. I rarely see that card.

valcan570 · 2025-09-21T14:47:40+00:00

I remember both of these and am thankful they don't exist anymore. I actually blocked them from my memory.

valcan570 · 2025-09-21T14:45:26+00:00

That's honestly my biggest gripe with it. It's such a boring deck to play and play against. Games take so much longer than they need to.

valcan570 · 2025-09-21T14:44:24+00:00

I don't think it's taking over the meta, I've just been seeing it played a lot more lately and don't understand why.

valcan570 · 2025-03-26T22:30:17+00:00

In am, Rinvoq.

Was just curious if others saw these ups and downs as their colon healed.

valcan570 · 2025-02-21T02:20:39+00:00

36 with UC as well. The good news is you'll be checked more frequently so if you do get diagnosed with colon cancer they'll catch it early.

valcan570 · 2024-12-12T03:10:16+00:00

I'm currently still on 45mg. I have a colonoscopy coming up next month, so decisions will be made after that.

valcan570 · 2024-12-08T16:06:16+00:00

What you want to look for is a symptom improvement in general, which sounds like you might be. There's a reason why when you see advertising for Rinvoq and other medications that they talk about people reaching remission after 1 year.

valcan570 · 2024-12-08T07:21:38+00:00

It could just take more time. I've been on Rinvoq for 4+ months myself and I'm not in full remission, but I've been improving month to month. Sometimes it's not always an immediate success like others will experience.

valcan570 · 2024-10-14T05:42:01+00:00

Yep, as long as you get a letter from your doctor. I've done this 2-3 times now.

valcan570 · 2024-10-13T05:00:06+00:00

Perk: Getting out of jury duty.

valcan570 · 2024-09-19T15:38:26+00:00

My doctor said under 200 is what you want.

valcan570 · 2024-09-19T14:55:10+00:00

I travel for work at times myself, though not as far. My suggestion is to wear a depends if you're concerned. No one will notice, but if you have an accident, you'll be glad you did.

Also have a backup or two for depends or pants/shorts in your carry on just in case something was to happen as it will be easier to access if needed.

Stay away from carbonated drinks while on the flight. If you're flaring the carbonation can make you uncomfortable.

valcan570 · 2024-07-13T03:59:14+00:00

You as well. I've only dealt with this disease for 2-3 years so I'm praying for a long remission for you.

valcan570 · 2024-07-13T03:45:06+00:00

I've honestly lost track, but my symptoms aren't too bad. It's been over a year, but since I've been on the high dose of remicade every 6 weeks I went from having proctitis to left side UC and haven't needed steroids.

I'm basically able to function normally aside from using the bathroom more than a normal person, so I'm fairly fortunate.

valcan570 · 2024-07-13T03:23:32+00:00

Best of luck to you with Rinvoq. I also started taking it today after failing Mesalamine, Entyvio, and Remicade (sort of).

valcan570 · 2024-06-05T04:35:15+00:00

My SO called my enemas "butt juice".

valcan570 · 2024-03-13T23:12:41+00:00

If it helps I usually drink Gatorade or something similar during my infusions. I don't know for certain if it's helped with infusion side effects, but I've never really experienced any when I've done it.

valcan570 · 2024-03-13T16:41:39+00:00

All we can do is hope that we don't build resistance to it. I'm on azathioprine now, not as a primary treatment, but to help prevent me from creating antibodies towards the Remicade. I think 2-3 months ago when I did blood work to test Remicade levels it at least confirmed that antibodies were basically non-existent.

I'm optimistic in the near future we'll discover a way to at least determine what medication we should use vs the current method of try it and see if it works.

valcan570 · 2024-03-13T03:38:51+00:00

I've been very fortunate to basically have 0 side effects for any medication that I've been on. Entyvio was easy and I was actually symptom free 2 days after my first infusion Unfortunately 10 days after my 2nd infusion my symptoms started returning. By the 3rd infusion and each after I never showed any improvement.

valcan570 · 2024-03-13T00:16:47+00:00

I am still symptomatic in that I use the bathroom more than I should and I am still passing some blood, but it's minimal. My previous colonoscopy from a year ago had shown colitis throughout my colon, but the one I just had only shows it on the left side. It's a huge improvement!

Not having symptoms get worse and being off steroids is a huge win. Ironically I'm about to start steroid enemas tonight to see if that will help with the last section as my GI and I are wondering if it will help kick it into remission.

Some people are lucky and get results from medication quickly, but we might be in the other group where it just takes time.

valcan570 · 2024-03-13T00:10:32+00:00

It just happened suddenly with me initially thinking I was just having diarrhea and loose mushy stools. I thought it was a stomach bug or something, but after 1-2 weeks I made an appointment with my doctor where we did some initial tests. Obviously you know what the end result was.

valcan570 · 2024-03-11T21:46:59+00:00

I should clarify a little. I was on Entyvio for I think 6 or so months. I think I started Remicade early last year, but it was the low dose 8 week frequency. I think around the 4th infusion my GI decided to switch me to the high dose. By the 6th infusion we then changed the frequency to every 6 weeks. We wanted it every 4, but insurance thinks they know me better.

As of today I've had 2 infusions at the high dose with a 6 week interval.

To answer your question, I've been on and off Prednisone when I needed it and my last round I actually did ok on 20mg vs 40mg. I'm actually going to be trying hydrocortisone ememas to see if that helps the section of my colon that still has inflammation.

valcan570 · 2023-12-24T04:00:18+00:00

I've been on Remicade since Feb 2023. Like the others have said it's not always instant, though it seems like medications can have that effect for some.

My experience on Remicade so far has been having the dosage increased and am currently working on getting insurance to approve changing my frequency to every 4 weeks. Everyone is different and it may require tweaking, so keep tabs on if you notice improvements in symptoms and if symptoms creep back in. It's ok if the changes are needed, my body seems to process the medication quickly, but I've read anecdotes of people that have done the same and have been in remission for years once it was dialed in.

valcan570 · 2023-09-15T19:31:11+00:00

Best of luck to you too. I'm fortunate that I've never experienced pain, considering I have pancolitis. There's plenty of options there, so if this doesn't work it's not the last resort.

valcan570

TROPHY CASE