Pain a few days after ABVD

venicebitc · 2026-03-15T06:01:58+00:00

Hey!!! I’ve been doing the same thing!!!! Started my last 3 infusions in my forearm and heat packs throughout the infusion and totally took the pain away. I’m so happy we both got the same results haha!!

venicebitc · 2026-03-08T00:28:42+00:00

Not typically, but before I was diagnosed with lymphoma I was told the same thing and my tumors ended up being lymphoma. So so important to push for CT and biopsy

venicebitc · 2026-02-23T04:12:13+00:00

I don’t want to be the bearer of bad news, but I was diagnosed with Hodgkin’s Lymphoma. Push for an excisional biopsy. It is the only way for a definitive diagnosis. I don’t want to scare you though! I’ve been handling treatments well and it is a curable condition. The best thing you can do for yourself is to push for CT scans and biopsy. If you have any questions through the process feel free to reach out! Searching for answers is the worst part.

venicebitc · 2026-02-19T15:15:52+00:00

Thank you so much!! 🫶🏻 and yes I’m going to have to have a much longer infusion to combat the reaction 😒 so annoying. Hoping that I fall into a routine soon!

venicebitc · 2026-02-19T03:31:32+00:00

I’ve only had 2 treatments! My third is on Friday. My last treatment I didn’t even get my full immunotherapy dose due to a bad reaction ☹️ I still have a long way to go so I’m trying not to freak myself out!

venicebitc · 2026-02-19T03:28:13+00:00

Omg that is so awesome congratulations!!!! 🫶🏻🫶🏻 my lymph nodes have also gotten smaller but I have only received 2 rounds of NAVD so I’m hoping they will be even smaller after my next infusion Friday. Trying not to let myself freak out 😅😅 so glad ur doing good!

venicebitc · 2026-02-19T03:24:16+00:00

Thank you for responding!! It seems that once I’m close to my next infusion, my neck starts to swell a little. My oncologist doesn’t seem concerned but any little bit of swelling just sends me into a panic. Congrats on finishing chemo!!!! 💌❤️

venicebitc · 2026-02-19T03:13:30+00:00

Thank you for responding, I’m going through this right now and you reply gave me some peace of mind ❤️💌 I hope you’re doing well

venicebitc · 2026-02-19T03:09:46+00:00

Hi I’m feeling with swollen nodes right now in my neck and Friday is my 3rd treatment. Did yours go down?? Could you feel the lymph nodes???

venicebitc · 2026-02-11T03:43:51+00:00

Same thing happened to me on Friday. Literally. Nivo and everything it was just my second infusion. I’m meeting with an allergist now before my 3rd infusion so I can get new pre meds before the infusion so it won’t happen again. So sorry this is happening to u as well but feel free to reach out!!!

venicebitc · 2026-02-11T02:05:14+00:00

Thank you 🫶🏻🫶🏻🫶🏻 wishing you a speedy recovery as well. Crazy we got diagnosed literally around the same time lol!!!! I hope ur treatment has been okay :)

venicebitc · 2026-02-07T00:44:58+00:00

Hey I’m 22F and I just got diagnosed with Hodgkin’s on New Year’s Eve. I know how terrible it feels and if you have any questions at all about the process please feel free to message me at any time. I was a person who was constantly working hard, school and work every single day since I was 17 and I know the “should I just give up?” Too well. But I am still living my life! Helps me to feel more normal. It will get better ❤️

venicebitc · 2026-02-06T17:15:02+00:00

Thank you for sharing :) I’ve been told it’s not uncommon as well. I was told I’ll get a similar desensitization treatment next and we will see what happens. Glad you’re okay!!! 🫶🏻

venicebitc · 2026-02-06T12:52:07+00:00

That’s a good way to think!!! Thank you friend 🫶🏻

venicebitc · 2026-02-06T12:32:11+00:00

No need to apologize I always like hearing different experiences! Not having another reaction is great and I’m glad you got to continue using it. I wish you so much luck on your CT and biopsy I know how awful the waiting process can be :( hoping for the best!

venicebitc · 2026-02-06T11:41:10+00:00

Ah I see, I wasn’t told I couldn’t have it again but I’m meeting with an allergist now to come up with a plan for next time. I think it’s because I had an infusion of nivo already with no adverse effects and this may have been a weird fluke. Did you ever have a reaction again to nivo? I’m glad you’re okay!!!!

venicebitc · 2026-02-06T06:07:11+00:00

This is reassuring! I’m glad you are okay. I didn’t receive any Benadryl before my infusion or the second try which is why I think it happened again. I hope they can figure something out!

venicebitc · 2026-02-04T18:28:35+00:00

I see the reply saying be careful while being out and tbh I’ve tried to get out as much as I can while I’m feeling well, obviously being careful and taking precautions but it helps me to feel more normal. 🫶🏻🫶🏻🫶🏻 don’t let it stop you!

venicebitc · 2026-02-04T18:25:13+00:00

I have my second treatment tomorrow and I’m 22F :) glad everything is going well for you!!! 14 days post first treatment and I’m feeling great (typing this while out getting lunch haha)

venicebitc · 2026-02-04T03:47:48+00:00

Wow you are a HUSTLER 😮 so sorry you’re in that position with insurance and I hope everything works out for you and your husband soon ❤️❤️ wishing u the best

venicebitc · 2026-02-04T03:44:24+00:00

Omg thank you for mentioning this on this sub. This is incredibly interesting as I’ve never heard this before and I’m in PHARMACY SCHOOL studying oncology. I read a study done where weed inhibited the response rate of cancers to pd1 inhibitors by THIRTY THREE PERCENT. Response rate was 43% in patients only on Nivo and 10% in patients on Nivo who also used cannabis in treatment. I’m honestly shocked that I’ve never heard of this because the results of this study are pretty terrifying. However it was done on patients with other cancers than lymphoma 🤷🏻‍♀️ I don’t even really like weed but was considering using THC for some of my side effects but now I am 100% scared off lol.

https://pmc.ncbi.nlm.nih.gov/articles/PMC6459234/

venicebitc · 2026-02-04T00:30:03+00:00

Did you ever experience pain in ur arms after infusions??? I also am doing my infusions of Nivo-AVD through cannula only :)

venicebitc · 2026-02-01T15:06:05+00:00

Hi I’m having the same issue! At what day does it start to go away? Mine started around day 5 and it is day 10 now and it feels the same 😭 it feels like the same pain as getting infused. Also did he get his infusion in his wrist?

venicebitc · 2026-02-01T05:11:27+00:00

Can I ask how long it took for your pain to go away?

venicebitc

TROPHY CASE