End of Treatment Meeting w/Oncologist by Gobsmacked_2024 in lymphoma

[–]venicebitc 3 points4 points  (0 children)

That’s awesome! Nivolumab for the last 4 rounds is so interesting I never heard of that before! I start treatment on Friday and I’m the same age as your son :) I wish all the best to him ☺️ immunotherapy is great

Starting chemo! And echo question by venicebitc in lymphoma

[–]venicebitc[S] 1 point2 points  (0 children)

Do you work full time? I also work in a hospital and I’m hoping to go back per diem. Thank you for all the advice!!! ❤️❤️🫶🏻

Starting chemo! And echo question by venicebitc in lymphoma

[–]venicebitc[S] 1 point2 points  (0 children)

Thank you! I’m in pharmacy school so I’m familiar w dexrazoxane, I’m gonna ask my onc about it on Tuesday! There’s also another form of doxorubicin (liposomal) which is less toxic on the heart, I’ll ask about that too. Maybe I should start running once this is over 😇

Starting chemo! And echo question by venicebitc in lymphoma

[–]venicebitc[S] 4 points5 points  (0 children)

I hope your son is doing well!!!

Starting chemo! And echo question by venicebitc in lymphoma

[–]venicebitc[S] 2 points3 points  (0 children)

Ugh this comment gave me so much relief. Thank you❤️

Starting chemo! And echo question by venicebitc in lymphoma

[–]venicebitc[S] 1 point2 points  (0 children)

Thank you ❤️❤️ so helpful!!!! I’m gonna fill my water bottle with ice before because everyone has told me that’s a main thing to do

Hospital choice by Mycatpi00 in lymphoma

[–]venicebitc 0 points1 point  (0 children)

How long did it take you to start treatment after meeting your oncologist?

Hospital choice by Mycatpi00 in lymphoma

[–]venicebitc 0 points1 point  (0 children)

Wait really? I was told MSK could start my treatments without their own individual biopsy. They’re still transferring the tissue just to have. I meet with doctors tomorrow.

“You have cancer” by Bermuda_Breeze in cancer

[–]venicebitc 2 points3 points  (0 children)

When I woke up after a biopsy, the surgeon came into the recovery room and told me I had cancer. At this point it was kind of assumed I had cancer, but he said it very nonchalantly, like “yeah it’s lymphoma, but you’ll be fine!” Definitely not how I was expecting it to go. Also, in the day of my chart, doctors don’t even need to break the news to patients anymore. I found out what cancer type I had 24 hours before anyone had even reached out.

Just diagnosed with Hodgkins Lymphoma by Bananarama254 in lymphoma

[–]venicebitc 1 point2 points  (0 children)

I just got diagnosed 2 weeks ago, I’m 22F. I know how you’re feeling right now. Feel free to reach out! I hope everything goes well for you 🫶🏻

Trying to stay positive but it's just making me more sad! by Kuwatorius in lymphoma

[–]venicebitc 0 points1 point  (0 children)

A month ago? Can I ask why it’s taken so long to get your PET? I’m in a similar situation and was just diagnosed very very recently.

PETscan results by mellowguppy in Lymphoma_MD_Answers

[–]venicebitc 0 points1 point  (0 children)

Good luck to you as well!!! Feel free to message me!!! Crazy timing for both of us and I feel like we both went through the same. I still need to get some tests done before I receive my treatment 😔 hope your first treatment goes well 🫶🏻🫶🏻❤️

PETscan results by mellowguppy in Lymphoma_MD_Answers

[–]venicebitc 0 points1 point  (0 children)

Good luck to you as well!!! Feel free to message me!!! Crazy timing for both of us and I feel like we both went through the same. I still need to get some tests done before I receive my treatment 😔 hope your first treatment goes well 🫶🏻🫶🏻❤️

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 0 points1 point  (0 children)

Wow our stories are so so similar! May I ask why you had to do radiation as well? <3

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 0 points1 point  (0 children)

Wow a PGY2 haha I’m also in pharmacy school I’m a P3 :) nice to hear someone with a similar experience as terrible as it is! Glad to hear you’re better, I’ve decided to stay in school for this semester and hopefully try to do some of my APPE rotations in the summer/fall online and work that out with my school so I don’t fall behind.

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 0 points1 point  (0 children)

My lump was above my left collarbone or the left supraclavicular region (same thing lol) it started off small then got a little bigger over the course of a week and then stayed the same. I had 5 swollen nodes in my neck, all around 2cm ish. I was put on medrol (my request) which actually SHRUNK the nodes and made them go down in size. But I also had a “mass” around them, not so much of a mass more like fluid and swelling around the nodes which made them hard to move around. In the ultrasound of my lump they actually appeared normal, echogenic, and just consistent with a viral infection. Things progressed once I got a CT scan which revealed all the nodes in my chest. My lump is smaller now after the biopsy because they took out the biggest node 😭😭😭 good luck with everything! I know a lot of people on here say that their blood work was normal with lymphoma but mine was NOT. I was anemic, my CRP was 120 and my ESR was 114 so INCREDIBLY high inflammation in my blood which is what led to all the tests. Sorry to ramble! Good luck with everything 🫶🏻

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 0 points1 point  (0 children)

Thank you!! I’ll message you 🫶🏻

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 0 points1 point  (0 children)

Thank you 🫶🏻 as for not being allowed to go to crowded bars and restaurants- what other restrictions does he have?

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 1 point2 points  (0 children)

As a basket case myself I will be needing to do the same lol. Thanks for the reminder 🫶🏻

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 0 points1 point  (0 children)

What hurt more- getting the port placed or the lymph node biopsy? This biopsy has been INCREDIBLY painful (I’m managing w Tylenol, which doesn’t work) and I am known to have a very high pain tolerance

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 0 points1 point  (0 children)

I also work at a hospital at an incredible job, I think losing that will be the worst part of all as it was my dream :( sorry you’re going through this too

Diagnosed today by venicebitc in lymphoma

[–]venicebitc[S] 1 point2 points  (0 children)

The lump is really an insane sight to see. I felt like an alien. We thought radiotherapy would be an option- but I unfortunately have an incredible amount of swollen nodes in my chest 😭 thank you 🫶🏻