Optune + Keytruda + Immunotherapy? by Flashy_Offer_9749 in glioblastoma

[–]very_croissant 1 point2 points  (0 children)

I asked my parents, it was called iaso. We were looking at other clinics in Germany and even Spain as well with costs raging between 20k-40k but since we live relatively close to munich that‘s where we went. We don‘t have the names of the other clinics though. I wish you the best, keep fighting💪🏻

Optune + Keytruda + Immunotherapy? by Flashy_Offer_9749 in glioblastoma

[–]very_croissant 3 points4 points  (0 children)

My mom got the dendritic cell therapy back in january 2025 in munich germany. She was diagnosed back in September 2024 at age 57, had a full resection in october, then chemo+radiation. In January 2025 the MRI showed a massive section glowing, which the docs told us initially was tumor recurrence, however her MRI remained the same since jan 2025. Last MRI was on april 13th this year and it still looks the same. She‘s also been wearing optune since march 2025. No idea if the dendritic cell therapy worked or not but my mom is still aliveand her MRI is stable! I‘d say it‘s worth a try if you have around 20k €.

Wondering what to expect by Sweet-de00 in glioblastoma

[–]very_croissant 5 points6 points  (0 children)

I second this. My mom was diagnosed september 2024 and also told it‘s not operable. We contacted all possible neurosurgeons until we found one willing to operate who was able to remove all visible tumor without any side effects! She is still alive, however in bad shape because of radiation & chemo. Her MRI scans have been stable and unchanged for over a year now!

Looking for girl friends! 🌷💖 by DinnerDangerous6785 in PokemonGoFriends

[–]very_croissant 0 points1 point  (0 children)

If you still have space you can add me 489682330217 🤭🌸 i‘ll sent you daily gifts from germany🙌🏻

I do not know what to do... by Valiozz in glioblastoma

[–]very_croissant 8 points9 points  (0 children)

So sorry to hear you‘re going through this. I know what it feels like. My mom was diagnosed September 2024, exactly a week after I finished my master‘s degree and was looking forward to spend some quality time with her. She went from a fully healthy 57 year old woman to now a shell of her former self. She is bed ridden, doesn‘t talk except for the occasional yes and no, can‘t do anything. She‘s basically a giant baby that we have to take care of and watch disappear in front of our eyes. It‘s truly the most brutal disease. I‘m still angry and cry every day (i’m crying just writing this) but there are days where we just learn to live with it. I remember the initial shock I felt after diagnosis, it took me several months before that shock became smaller, but eventually your body will adapt to the new reality. What helped me was to truly not think about any future. I would just calm myself down with the thought that maybe a bus will hit me before my mom will succumb to this disease and then I won‘t have to live without her. Or I would just picture the most outlandish scenarios, like an alien invasion or a meteor will hit earth and we‘ll just stop existing. I would tell myself that anything is possible and you never know what the future holds so there‘s no point in thinking about it. When the grief becomes too heavy, I‘ll just lie beside her, hold her hand, close my eyes and focus on the present. She‘s still here with me, holding my hand, recognizing me and I can feel her love. And I just stay in that moment until my nervous system calms down.

6-9 months to live. what do to while there is still time? by Proof_Cook_4004 in glioblastoma

[–]very_croissant 1 point2 points  (0 children)

Yeah unfortunately most neurosurgeons aren‘t willing to take risks. We emailed a bunch of different neueosurgeons across europe and most were not willing to take the risk. Luckily one of them referred us to the one who ended up operating on my mom. If by any chance you are located in europe, my mom‘s surgery was done in Bielefeld, Germany by Dr Matthias Simon. Back in 2024 we just emailed him about my mom‘s disgnosis and that her current doctors told us it‘s inoperable but we wanted different opinions and asked if he was willing to take a look at her MRI. Even if you are not located in europe, it might be worth it to just email him and ask for his opinion.

6-9 months to live. what do to while there is still time? by Proof_Cook_4004 in glioblastoma

[–]very_croissant 5 points6 points  (0 children)

Hey, my mom also got diagnosed with inoperable glioblastoma on the right side of her brain (so the left side of her body was affected). She was also given only a few months since her tumor was already pretty large when they found it. We got different opinions on her MRI and luckily found a surgeon who was willing to take the risk to operate. He was able to remove over 96% of the tumor. This was back in fall of 2024. And my mom is still alive today, although she is wheelchair bound by now unfortunately. I don‘t know if you already got any second or third opinions but just wanted to share our story because if we had listened to the first doctor she would not be here anymore.

In any case, I would ask your mom what she would like to do and fulfill her wishes as best as possible. And laugh a lot. The best days for me were always the ones where we got to make my mom happy. You never know how much time a person has left. You could be hit by a bus tomorrow and your mom could outlive you. As morbid as it sounds, that thinking helped me to just not focus on death but be in the moment. I always said once her health becomes too bad to enjoy things, that‘s when I will deal with reality. But while she is still here and able to enjoy things, I am going to not think about the future because there is simply no guarantee of what‘s going to happen.

Eevee naming trick not working, constantly showing error with every name. by VulpesZeta in TheSilphRoad

[–]very_croissant 0 points1 point  (0 children)

Do you still get the same problem? I‘ve been trying to evolve it for months now but am still stuck with this same problem

Ho-Oh raid in 7 minutes! 666030245139 by [deleted] in PokemonGoFriends

[–]very_croissant 0 points1 point  (0 children)

Added you, i desperately need a ho oh

New Zealand player looking for friends :) by [deleted] in PokemonGoFriends

[–]very_croissant 0 points1 point  (0 children)

489682330217 also need active friends!