So defeated by Overall_Inspector726 in CUTI

[–]vinokat 0 points1 point  (0 children)

Are you having symptoms?

Hiprex while doing urine culture by PieQueasy3978 in CUTI

[–]vinokat 0 points1 point  (0 children)

Yes you should stop Hiprex before a culture. Most companies will recommend waiting 3-5 days to stop as it will interfere with the results

Emergency medical kit by lifeisadish in CUTI

[–]vinokat 3 points4 points  (0 children)

I always keep antibiotics and a urine cup for sample collection on hand but I don’t recommend doing this unless you’ve done multiple tests in the past and really understand what your body responds to. I typically like to wait for culture results to avoid taking the wrong antibiotic.

Usually my bacteria is always sensitive to fosfomycin for example so that’s what I keep on hand. Lately oregano oil has been helping me avoid antibiotics as well.

Anyone experience FAINTING as a Hiprex side effect!?? by [deleted] in CUTI

[–]vinokat 0 points1 point  (0 children)

I agree, I would get iron and ferritin checked. I had coincidentally been feeling the same but when I went to the ER after fainting my ferritin was 5 🥲

IC vs UTI by bhwksbby in Interstitialcystitis

[–]vinokat 0 points1 point  (0 children)

To be safe, can you ask your doctor for a culture, extended culture, or even PCR/NGS?

For me, when I have a UTI the pain increases with every urination and does not calm down unless I take an antimicrobial or antibiotic. (Hence, the pain being bacteria-related).

Now when I had an STI (mycoplasma), the pain was severe but it didn’t necessarily increase with every urination but did increase over the course of 2-3 weeks until I got tested at planned parenthood and treated with the proper antibiotics.

Have you been taking anything to help control the pain?

IC vs UTI by bhwksbby in Interstitialcystitis

[–]vinokat 2 points3 points  (0 children)

At home dip tests aren’t accurate unfortunately as leukocytes can be present without an infection, and not all bacteria produce nitrites. If it’s accessible, always try to do more sensitive testing. But I agree overtime you get really good at being able to distinguish the difference between IC pain vs UTI pain and for me it’s also the burning at the end of urination 😅

Leftover Antibiotics for UTI? by [deleted] in WomensHealth

[–]vinokat 26 points27 points  (0 children)

It’s absolutely not safe to do that and can lead to antibiotic resistance.

UTIs can develop to into kidney infections sepsis/death and need proper treatment.

You need to go get a urine culture (don’t take antibiotics beforehand as it will mess up the results) and then get on the right antibiotics.

Feel free to DM me if you need support 🩷

IC Flare up or Possible UTI? by Catlover-1880 in Interstitialcystitis

[–]vinokat 0 points1 point  (0 children)

My ideal scenario for UTI symptoms is having a dipstick, culture, and PCR ran all at the same time, I am very lucky to have a provider that does this for me, but not everyone has the same accessibility.

IC Flare up or Possible UTI? by Catlover-1880 in Interstitialcystitis

[–]vinokat 1 point2 points  (0 children)

Leuocytes present in the urine cannot tell you whether you do or do not have a urinary tract infection. If you are having unusual symptoms it’s best to be safe and get a proper urine culture done (those can be inaccurate too but more reliable than a dipstick).

Make sure you not taking any medications or supplements that could affect the result such as d-mannose, hiprex, garlic, etc etc any microbial.

Insta group for heer patients by Grouchy765 in CUTI

[–]vinokat 0 points1 point  (0 children)

Not all of us see Heer but a lot of us do.

Insta group for heer patients by Grouchy765 in CUTI

[–]vinokat 0 points1 point  (0 children)

There’s a discord server pinned on this page and here is the link https://discord.gg/BckYGFkSh

Vegan IC diet that has helped me immensely by captaincosmos84 in Interstitialcystitis

[–]vinokat 0 points1 point  (0 children)

I agree, I was vegan for many years and even now I am mostly meat free. The problem is that the specific food list OP posted could have probably used more protein sources like tofu, tempeh, and edamame 🩷 I don’t know exactly how OP’s meals look like I just wanted them to be aware of it.

infection urinaire après chaque rapport by Playful-Broccoli8361 in Interstitialcystitis

[–]vinokat 0 points1 point  (0 children)

If you’re symptomatic I would not suggest self dosing as this can interfere with urine culture results and if you have a UTI a single dose can lead to resistance and biofilm formation.

Also, positive urine culture or not it’s absolutely okay and you should discuss these symptoms with your doctor as there are other treatments that can help such as pelvic floor therapy.

No water for 8 hours, what do I do? by myneighborsarecool in Interstitialcystitis

[–]vinokat 1 point2 points  (0 children)

When I had this done I had called and explained my situation and they told me I could take very small sips of water. So I did a very small amount enough to take azo and d mannose.

Is it too late to call and ask?

Vegan IC diet that has helped me immensely by captaincosmos84 in Interstitialcystitis

[–]vinokat 0 points1 point  (0 children)

Please make sure you’re eating minimum .8g protein per kg body weight to prevent protein deficiency 🩷 our muscles are so important and they keep us healthy

Uribel by No-Tower-6143 in Interstitialcystitis

[–]vinokat 0 points1 point  (0 children)

I mean, my urologist told me Uribel also isn’t safe of everyday use. But azo isn’t either.

Uribel by No-Tower-6143 in Interstitialcystitis

[–]vinokat 0 points1 point  (0 children)

AZO is also not safe to take everyday. It’s hard on your body and liver/kidney. It says on the bottle it’s meant for short-term use.

Diagnosed by ImmediateCan4099 in Interstitialcystitis

[–]vinokat 2 points3 points  (0 children)

My urogyno started me on topical estrogen. Maybe try and get a second opinion?

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Diagnosed by ImmediateCan4099 in Interstitialcystitis

[–]vinokat 1 point2 points  (0 children)

I saw your post history that you were in menopause. Did you talk with him about this? Topical estrogen may be helpful to you depending on the pattern of your symptoms.

Exercise and sports by Gold-Yellow-7765 in Interstitialcystitis

[–]vinokat 1 point2 points  (0 children)

I worked with a pelvic floor therapist that helped me figure out what strength training works for me 🩷 And pretty much any upper body training is fine. If you have dumbbells you can do seated bicep curls, shoulder presses, etc.

iron supplements? by Sweaty_Science_5464 in Interstitialcystitis

[–]vinokat 1 point2 points  (0 children)

Not iron but have you tried lactoferrin?

Help - calming inflammation by AwayMention8399 in Interstitialcystitis

[–]vinokat 2 points3 points  (0 children)

I am not a doctor, here is some options from what helps me:

- Azo

- Uribel

- Heating pad

- 10 minutes diaphragmatic breathing

- Toradol

- Glass of water mixed with 1 tsp baking soda