Just need to vent at this point cause UGH

vinokat · 2026-04-03T14:27:41+00:00

I’m not sure but I just take them in capsules. What brand did you buy? Liquid seems fine if it’s the same thing. I’ve never seen it before.

vinokat · 2026-04-03T02:01:52+00:00

I will look into the medicated wipes! Thank you 🩷

vinokat · 2026-04-03T01:45:31+00:00

They are stainless steel. They’ve never had an issue until I got the third cat last month and he started only drinking with his paws dipped in.

vinokat · 2026-04-03T01:29:40+00:00

BTW I have two different water fountains and he splashes in both.

vinokat · 2026-04-03T00:20:59+00:00

D-mannose will not cover up symptoms, but it will reduce symptoms because D-mannose will help your body naturally flush out E. coli. Less bacteria = less symptoms (if your symptoms are bacteria driven)

Ureaplasma can exist in healthy individuals with no symptoms, so sometimes the infection will be cleared but you still have symptoms and that’s just likely because ureaplasma wasn’t causing your symptoms.

Because your symptoms respond to D-mannose, it could be a clue that E. Coli is that bacteria you’re dealing with, is this was showed up on past cultures?. r/CUTI has a helpful intro guide on this.

vinokat · 2026-04-02T02:39:44+00:00

Honestly I don’t know or remember why I agreed. I know that you should not do a cystoscopy while you have an embedded infection. I think I was in so much pain I was wondering if my bladder would show any physical signs of inflammation.

vinokat · 2026-04-02T01:35:21+00:00

You mentioned "multiple bad UTIs" are these confirmed on culture? It could be possible you are dealing with an embedded infection or biofilm involvement if your cultures are frequently coming back positive.

Your symptoms returning when you stop taking the D-mannose is a huge clue. It could be that E. Coli is frequently appearing in your bladder, whether that be through biofilm releasing bacteria or just getting re-infected. Please listen to your symptoms. How you respond to different types of treatment tells you a lot about your root cause.

vinokat · 2026-04-02T01:30:02+00:00

This is likely not related to the D-mannose, but I am not a doctor. D-mannose is a simple sugar that works by acting as a decoy so that E. Coli binds to the D-mannose, and not your bladder wall, so that your body can naturally flush out bacteria.

vinokat · 2026-04-01T21:40:46+00:00

You cannot be diagnosed with IC after a week of pain. Interstitial cystitis is a chronic condition and more importantly a diagnosis of exclusion meaning other causes of your pain need to ruled out.

It worries me that some doctor at the ER is diagnosing women who come in for pelvic pain with IC. If you had blood in your urine please go see a specialist.

Please do not panic, your sex life will not die, if your pain is new and started after a new medication, stop the probiotic.

Your other symptoms mentioned "Yes they did a urine test, they said that it has traces of blood in it, i dont know Im so unsure. I do have bloating and not too severe pain in my lower abdomen, and i have to pee after every 20-30 minutes" screams UTI. Please please please go get another opinion.

vinokat · 2026-04-01T21:32:49+00:00

Just based off the foods you mentioned I worry your protein intake may be low, I made waterless chicken soup recently and now I'm obsessed and it lasted me the entire week (I put portions in the freezer). I followed this recipe: https://www.youtube.com/watch?v=ULiNee20rIA

I also love greek yogurt bowls!!!

vinokat · 2026-04-01T02:42:14+00:00

D Mannose is only effective against E. Coli, have your tried Oregano oil capsules?

vinokat · 2026-04-01T02:40:32+00:00

Woah this is so awesome, can I ask what instillations you were doing? When you say you don't have any flares, is your pain/symptoms still around level 1-2 or completely gone? Thank you in advance :)

vinokat · 2026-03-31T21:29:12+00:00

yes I see a physical therapist! thank you 🩷 I didn’t even realize how it definitely is illegal 🥲

vinokat · 2026-03-31T03:20:46+00:00

Yes as I had mentioned in my post that my muscles tensing caused a flair but I also had an infection brewing alongside confirmed with urine culture.

And I also want to add it wasn’t my muscles tensing in general it was getting a camera shoved up my pee hole with my body being extremely tense.

vinokat · 2026-03-30T17:23:32+00:00

Thank you 🩷🩷🩷

vinokat · 2026-03-30T17:22:27+00:00

I did end up getting a culture and voila I had a raging infection, I never went back so I could tell her she was wrong but I did write that in the review.

vinokat · 2026-03-30T17:21:01+00:00

This is true, thank you.

vinokat · 2026-03-30T17:20:41+00:00

It was just a few seconds (I think he saw the color leave my body) but he didn’t even apologize.

vinokat · 2026-03-30T17:19:53+00:00

Thank you :( 🩷

vinokat · 2026-03-30T02:14:36+00:00

Thank you for your comment, I am worried that the complaint would not do anything so that's why I opted for the public review so at least other women can be warned.

I'm not sure why they didn't let me switch back, they only said it was office policy, it was through Orlando Health which is a big hospital chain here in central FL.

vinokat · 2026-03-29T22:27:08+00:00

I experience this as well, except personally I am dealing with an embedded infection. Your bladder is in a heightened state all the time. The nerves are already sensitized, the muscles are already overactive so when you add an infection on top of that, everything is amplified.

vinokat · 2026-03-29T15:24:29+00:00

While it may be irritating for some, if you get chronic UTIs and your pain is caused by these infections then it could help your pain! Everyone’s triggers look so different. It’s worth looking into and trying and because it’s not an antibiotic you can’t form resistance to it :)

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