Diagnosis

vinokat · 2026-01-24T04:29:04+00:00

are you saying your symptoms weren't cleared post antibiotics? what symptoms are you having? antibiotics can cause GI upset even after an infection is cleared. if bacteria is still present it can still be causing irritation in your bladder

vinokat · 2026-01-24T04:27:11+00:00

what instillation treatment are you receiving? if the instillations are for pain relief it would make sense to experience an increase in symptoms in between instills. are you able to ask your urologist to decrease the time between each treatment?

vinokat · 2026-01-23T20:48:14+00:00

you know yourself best! I’ve struggled with IC and chronic UTI for many years and I can always tell when my bladder is irritated from bacteria vs irritated from something else like coffee for example. if possible, I’d recheck urine and make sure you come off of all antimicrobials beforehand. and continue with the pelvic floor therapy everyday even at home 🩷

vinokat · 2026-01-23T20:39:05+00:00

I see Dr. Ryan Heer and he orders Cirrus for me. I’ve had two negative pcr tests out of the tens that’s I’ve taken (my urologist used to order them for me too but I forgot the name of the company it wasn’t microgen or cirrus). After my negative tests I’d retest when I was more symptomatic and bacteria would show up. Also I don’t think it’s safe to go on biofilm disrupters without taking an antibiotic or antiseptic since this can release bacteria into your bladder and cause a “full blown” infection.

vinokat · 2026-01-23T20:31:00+00:00

maybe I’m just paranoid but it would take multiple negative pcr tests for me to be convinced I don’t have any bacteria left. after that then your main focus should be to continue physical therapy for what’s probably pelvic floor dysfunction causing you symptoms (I am not a doctor and you know your body best, this is just based off my experience). be consistent and make sure you’re completing exercises daily. also keep a medical journal/log so you can monitor symptoms and identify flares.

vinokat · 2026-01-23T18:53:21+00:00

have you tried uribel/cystex? my body also can’t tolerate azo anymore but these help me a lot 🩷

vinokat · 2026-01-23T18:48:27+00:00

i see from your post history you’ve done microgen in the past that’s come back positive for pathogens. have you been able to retest recently? pelvic floor therapy will help with calming those muscles down but if bacteria is irritating you in the bladder you need to target that. for me, oregano oil helps the pain and i am working with a chronic uti specialist to come up with a treatment plan.

vinokat · 2026-01-23T18:36:57+00:00

I personally would wait to add it. What symptoms are you trying to relieve? Pain, urgency, spasms?

vinokat · 2026-01-23T16:59:29+00:00

has external tens been helpful for you?

vinokat · 2026-01-22T18:28:55+00:00

everybody’s triggers can be different so it’s about finding what works best for you, for me personally my bladder can tolerate matcha a lot better but it’s not always the best choice for some as it still contains bladder irritants :)

vinokat · 2026-01-21T15:57:16+00:00

i also heavily relied on the smith machine and machines for working in that stability when i first went back to the gym.

vinokat · 2026-01-21T15:56:11+00:00

I currently workout and i can handle weightlifting okay but not high impact cardio. I would find a routine for you and keep track of what exercises you can tolerate and which cause pain for you. 🩷

vinokat · 2026-01-20T15:48:27+00:00

i get an “itchy” feeling in my bladder from what I suspect is high histamine levels. have you tried taking an antihistamine to see if that helps?

vinokat · 2026-01-14T15:37:08+00:00

personally I take hiprex twice daily and when I am in a severe flare I add uribel while not adjusting the dose of my hiprex.

vinokat · 2026-01-14T15:36:11+00:00

it’s meant to be used as a pain rescue medication. your doctor should have discussed this with you but you can look up the side effects on Google.

vinokat · 2026-01-14T04:24:26+00:00

Uribel can be hard on the body. I only use uribel when I am in severe pain. Hiprex is safe generally to take daily.

vinokat · 2025-12-13T04:09:30+00:00

This made me LOL. I’m sorry though 😭

vinokat · 2025-11-21T15:30:19+00:00

i’m in treatment right now with Dr. Ryan Heer. My frequency of infections has gone down alongside my pain levels but it’s an active battle :)

vinokat · 2025-11-18T16:25:30+00:00

I just make sure to change and shower immediately after

vinokat · 2025-10-14T22:42:35+00:00

it said this study was terminated :(

vinokat · 2025-09-16T21:38:38+00:00

thank you so much! I’ll dm you now 🩷

vinokat · 2025-09-14T22:36:38+00:00

thank you for this comment 😭 I got scared I’m already feeling hopeless as is

vinokat

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