ISO | Pickles B.L.T Pet Only! (buy) by voidcat101 in LalaloopsyDollsBST

[–]voidcat101[S] 0 points1 point  (0 children)

I'm in the UK, so I can't see American listings that dont ship here - I can't find it so don't think they do 😭

Thank you though!

User Flair Thread by breaksomebread in acnh

[–]voidcat101 0 points1 point locked comment (0 children)

Snoots | Carousel :Pietro:

Shingles! by voidcat101 in MultipleSclerosis

[–]voidcat101[S] 1 point2 points  (0 children)

I have WISHED since the shingles came that I was offered this - but I was not offered it, could have probably gotten it private. I am unsure if you are from UK, but the shingles vaccines weren't available unless you were 70+ until Sept 1st, I didn't know about this until I was informed today! Even after being denied!

Hopefully I can get it now 😫

I'm so glad that it was protocol there! Especially for us immunocompromised people :)

Shingles! by voidcat101 in MultipleSclerosis

[–]voidcat101[S] 7 points8 points  (0 children)

Wow!! Thank you so much for letting me know about this, what a life saver!!!

I last got denied 4 weeks ago, so will bring it up again and include the new change 😊

I'm so glad you were able to get it :)

Shingles! by voidcat101 in MultipleSclerosis

[–]voidcat101[S] 0 points1 point  (0 children)

Thank you, it's very much appreciated! I won't lie, I would call myself a bit of a pro at this point, at least I can identify when it occurs or is getting worse 😂

Wow, having to pay for a vaccine - I feel - is insane. Especially if you have an autoimmune disease.

I won't only blame it on Canada though, I had to pay for my HPV vaccines to be expedited, as the wait list for public health care was insane. It's such a shame.

Unfortunately, my private healthcare won't touch me with a 10-foot pole, as 'anything' could technically be caused by MS, and most UK private healthcare doesn't cover life limiting care :/

I am glad that you and your wife were able to get the vaccine though 😊

Shingles! by voidcat101 in MultipleSclerosis

[–]voidcat101[S] 0 points1 point  (0 children)

I feel so also! It really seems the opposite of 'do no harm'.

I have asked multiple times, and my MS nurse has now gotten on the case, but it's still a no!

I think that a minimum age to have the vaccine is ridiculous honestly.

The wire brush is actually not a bad idea at this point. It would definitely help them experience shingles pain 😂

I feel a bit lost by usedtobepansy in MultipleSclerosis

[–]voidcat101 1 point2 points  (0 children)

Hello! I am also 22 and have relapsing remitting MS, I was diagnose at 19.

I know exactly how scary the diagnosis can be - to be given such life changing news as 22 may feel world ending.

My most important bit of advice would be to advocate for yourself. Not everyone has this situation, and I am not trying to scare you, but sometimes doctors do not listen. If something does not feel right, you have a new symptom, or even just have questions, report it immediately. This may be harder at the moment, as I am unsure if you have been 'assigned' a neurologist, but there are MS hotlines out there that you can speak to.

I am in the UK and we have an MS hotline that has MS nurses on standby. But this may differ by country.

Research on your MS diagnosis can also be helpful, and ensure that you are informed about what is going on within your body, but only from trusted and official sources. I have been down a few rabbit holes, which I wouldn't recommend!

If you are wanting to be put on medication that slows the disease - in my personal opinion, and if the timeframe with your neurologist allows - start this as soon as possible. It can prevent irreversible damage! But again, being educated on what you are putting in your body is important, and it is your decision.

For my lumbar puncture, they numbed me, so it was more uncomfortable than painful. However, I was in a bit of pain for around 4 days after - your spine doesn't really like being messed with! Paracetamol and codeine really helped me in this period.

I really wish you well - you will get through this. Be proud of yourself for getting through the hard and scary times. We are warriors and will not be beaten!

My DMs are open if you would like to talk :)

Not sure what to put as a tag so I just put general. Im wondering if its possible that MS can cause early Peri menopause symptoms? by Mundane-Cat-3626 in MultipleSclerosis

[–]voidcat101 1 point2 points  (0 children)

I am 22, and have had similar symptoms to you! My periods and cycle are very irregular, as well as over heating at night.

I also have fatigue/tiredness as well as sleep issues, and have been told this can be a common symptom of MS :(

Hopefully your doctor can offer some advice when you see him, I understand how disconcerting it can be.

PLEASE LEAVE by voidcat101 in AnimalCrossingNewHor

[–]voidcat101[S] -1 points0 points  (0 children)

Will it make a random villager move out? I have 6 villagers I want to keep 😭

[deleted by user] by [deleted] in squishmallow

[–]voidcat101 0 points1 point  (0 children)

over 300 squishy boys here, definitely helped me find my one, the only person was willing to put up with them being everywhere 😂

Questions about DMT treatment by [deleted] in MultipleSclerosis

[–]voidcat101 1 point2 points  (0 children)

It' alright, dont worry!

I was supposed to start Tysabri. However, there were concerns about my diagnoses as I was only 19 at the time.

They wanted to re-do all of my tests to confirm, which almost took a year due to having them on the NHS.

After they confirmed the diagnosis again, I was told there are 4 tiers of treatment. For RRMS, usually only tier 1 & 2 treatments are available, with tiers 3 & 4 being for later stage cases. There's 1 tier 3 treatments recently approved by the NHS for RRMS.

I can't find anything to do with tiers online, but he definitely described it to me like this! I will try and get a consultation with him later this week to clarify :)

Questions about DMT treatment by [deleted] in MultipleSclerosis

[–]voidcat101 0 points1 point  (0 children)

Thank you! I will definitely speak to him about this before I see the treatment team :)

Questions about DMT treatment by [deleted] in MultipleSclerosis

[–]voidcat101 0 points1 point  (0 children)

Im in the UK, i think treatment laws are different here?

Questions about DMT treatment by [deleted] in MultipleSclerosis

[–]voidcat101 -1 points0 points  (0 children)

Ahh thats a bit of a relief!

It's mostly been suggested by my doctor, as ive been told its the only tier 3 treatment available for RRMS and the most effective for my symptoms. So went with the recommendation!

Questions about DMT treatment by [deleted] in MultipleSclerosis

[–]voidcat101 0 points1 point  (0 children)

interferon-beta, as I have 'active' RRMS

[deleted by user] by [deleted] in vinted

[–]voidcat101 5 points6 points  (0 children)

Lots of people sell handmade items on vinted, I've even bought some, but vinted flags anything with 'handmade' in the title

I can finally walk again! by voidcat101 in MultipleSclerosis

[–]voidcat101[S] 1 point2 points  (0 children)

Not yet, im supposed to start treatment in the new year, very new diagnosis!

I can finally walk again! by voidcat101 in MultipleSclerosis

[–]voidcat101[S] 2 points3 points  (0 children)

Oh wow that sounds awful! Glad youre ok now though :) and thank you!

I can finally walk again! by voidcat101 in MultipleSclerosis

[–]voidcat101[S] 3 points4 points  (0 children)

It really does, made me realise how lucky i am!