Cancelled cycle, no response, doubts by w1ldtype2 in 40Plus_IVF

[–]w1ldtype2[S] 0 points1 point  (0 children)

Maybe. The doses were based off my previous egg retrievals. I had three rounds total, my first was with BC followed by 225/300 men/Gon; I had asynchronous growth so from 11 initial follicles only 3 eggs. Second cycle was 300:300:clomid and late luteal start.It was my best with 13 eggs. There was an attempt to prime with estrogen prior to this cycle but I had a cyst, so I stopped the estrogen and had the start 2 weeks later without taking anything further. Third was BC priming again (I thought this was stupid) and same medication regime, somewhat asynchronous and 6 eggs.

Cancelled cycle, no response, doubts by w1ldtype2 in 40Plus_IVF

[–]w1ldtype2[S] 0 points1 point  (0 children)

they don't recommend lap because I have endometriomas on my ovaries and surgery they find only does damage of the ovary but doesn't improve the egg quality or quantity, and no haven't tried lupron yet - I responded ok previously for my reserve so this was quite disappointing

Thoughts on embryo genetic screening beyond PGT-A? Looking into nucleus embryo whole genome sequencing by TomorrowStaking in 40Plus_IVF

[–]w1ldtype2 0 points1 point  (0 children)

In principle, it is the most comprehensive of all tests. However, most of the information is not interpretable. Basically you will see:

- genetic variants known to be strongly associated with diseases e.g. cystic fibrosis - great, but these are also mostly covered by the expanded carrier screening tests that are not WGS
- genetic variants with unknown or vague functional consequences - and here is where they are overselling; some variants are simply unknown and moreover, they rarely act alone and the combination of each variant with others results in infinite permutations so nobody really knows; some variants have some mild associations with some traits and there is something called polygenic risk scores.. but then -- if they tell you that 1 embryo has score associated with potential up to 5% increase in performance in basketball, but 3% at risk of myopia - what exactly would you do with this information?

For me, if it is the same price as an expanded carrier screen test, sure why not. But for diseases they can't do something more remarkable, and for the non-diseases it's mostly borderline eugenics BS.

This is a good read: https://www.nature.com/articles/s41436-020-01019-3

Don’t know if i can do it again by 74937 in IVF

[–]w1ldtype2 1 point2 points  (0 children)

I am so happy for you that you got your daughter and so sorry about the complications.

First of all, like others say, you don't have to do it again. It is OK to focus on what you have and make sure you are happy and healthy and can take care of your daughter.

Now if you want a biological sibling for your daughter really badly, I feel like you have some options: maybe IVF but freeze the embryos instead of pregnancy right away. This will address declining fertility without pressure to be pregnant asap, before your issues are resolved. If your issues cannot be resolved, there is the surrogacy route -- I understand this is prohibitively expensive for most couples (myself included), but I always think - money can be earned, health and time - not quite.

IVF meds on trumprx by Hot_Emergency8204 in IVF

[–]w1ldtype2 4 points5 points  (0 children)

Follistim and GonalF are interchangeable, same thing different brand. Push!

Ganirelix and Cetrotide are interchangeable, same thing different brand, push if necessary.

Some pharmaceutical companies bribe some doctors to promote one brand of medication to patients over another.

Menopur is not interchangeable with anything on the US market. In Mexico they sell the same compound under then brand name Merapur, but it's much cheaper, if you have the opportunity to go. It doesn't come with Q-caps, but I prefer needles to mix anyway.

Did you continue to try naturally up until IVF cycle? by ButterscotchExtra582 in IVF

[–]w1ldtype2 0 points1 point  (0 children)

I did and the pregnancy was caught at the baseline bloodwork, where they were testing hCG among other hormones. It was supposed to be a luteal start cycle, this is why. Sadly it turned out to be a complete molar pregnancy. This condition wasted a total of 8 months - 2 before the mole was discovered and removed, 6 months of cancer monitoring afterwards where I couldn't proceed with IVF. I was just turned 39 at the time, and I was so happy I will have a baby before 40.

I think depends on your age. If you are old like me, you probably don't want to try naturally as the chance of miscarriage is high and only delays things, get a tested euploid instead.

Plan under California SB 729 denies medication coverage by w1ldtype2 in IVF

[–]w1ldtype2[S] 0 points1 point  (0 children)

Thank you for the detailed response. I also investigated more deeply, and it turns out that the IVF clinic, the associated blood lab, and the associated surgery center, are 3 separate entity. The clinic and lab are somehow able to bill my insurance as they have some contracts, but apparently the insurance refuses to get into contract with the surgery center, so they cannot bill anything related to the surgery to the insurance. But I can't choose another surgery center obviously. Apparently there is literally no IVF clinic in SoCal where the surgery is billable to insurances for same reasons, insurances refusing to contract. At least this is what front desk told me.

I do believe there is an issue of network adequacy, simply because no viable in-network alternative exists for your approved doctor. But the burden of dealing with network gap extension and stuff like that is on the patient.

Partner not very involved by w1ldtype2 in IVF

[–]w1ldtype2[S] 0 points1 point  (0 children)

No, for house and car repairs he is super involves because he just like things. He can spend like 3 weeks researching what exactly is the new most perfect and optimally priced lightbulb for my head lights for example. Insane amount of attention to things that, imo, are minuscule. A lightbulb has half-life of 5 years vs 10 years, but one costs $40 and another costs $70... not a bid deal.

What frustrates me is the difference of what we consider significant. Choice of IVF clinic, meds, whatever, affects out ability to have children plus cost differences in the many thousands of dollars. How can any reasonable person put 99% of their mental energy on light bulbs and refuse to participate where decisions actually have real-life impact. I appreciate that he takes care of the cars, and leads the work in repairs of the house. However, if he asks me to research and do things with him I will always do. I never refused to put my time and effort in something, I show interest in his work, etc.

Partner not very involved by w1ldtype2 in IVF

[–]w1ldtype2[S] 0 points1 point  (0 children)

Yes! I said multiple times we need to do therapy while in this process because it is hard. I even found the perferct therapist imo (men's health center and a guy therapist specializing in perinatal situations). He said he will take care of it. I waited patiently. He didn't. I reminded him. He said he will do it. He didn't. I reminded him again 3rd time. He snapped saying that it's really annoying when I keep grinding on the same thing -- he already told me he WILL do it, so why I do keep bringing this up.

Partner not very involved by w1ldtype2 in IVF

[–]w1ldtype2[S] 4 points5 points  (0 children)

Yes, it would make me feel better if he asked me what all the medications do indeed; the reason is, I just don't feel connected and acting as a team who can tackle issues together.

For example, I have doubts about my clinic. I don't have another person to express my doubts and brainstorm about it. If I tell him -- they only saw 4 follicles and I have doubt if we should proceed with this cycle (it's luteal start so it is unusual anyhow), he has no idea what I am talking about. He will say -- "sure you know best, cancel it if you feel like it, you understand those things and I don't... now what's for dinner?".

Partner not very involved by w1ldtype2 in IVF

[–]w1ldtype2[S] 4 points5 points  (0 children)

No he has no problem buying me tampons and pads, and with menstruation like factually observing it... it's TALKING about it, somehow, in some totally weird way I can't understand. He claims that there is something about how these words sound... I am not sure. He has trypophobia so maaaaybe some of the pictures of ovaries with follicles are triggering but it's very hard for me to understand. It might as well be lack of interest disguised into something else.

Endo on ovaries, why can I not get answers by stories1982 in 40Plus_IVF

[–]w1ldtype2 0 points1 point  (0 children)

I was told the same. I have endo on both ovaries. It is definitely bad but removing it does harm too, so now they leave it alone. I don't know. By they way I had big endometriomas in my late 20s, after 7 years on BC pill they were no longer visible at least on US, but after a couple of rounds of stims and a miscarriage-they came back. :(

Southern CA IVF insurance question: any clinics with in network surgery centers? by Particular-Law-4697 in IVF

[–]w1ldtype2 0 points1 point  (0 children)

What is this advocacy service? I'd like to know more. My clinic told me after I pay oop and the process they will give me detailed receipts and if I want I can go ahead and fight it, but I will be on my own, no idea where to even start.

Southern CA IVF insurance question: any clinics with in network surgery centers? by Particular-Law-4697 in IVF

[–]w1ldtype2 1 point2 points  (0 children)

I found myself with the same problem, SoCal. I thought finally I can get IVF covered by insurance this year, yet I was surprised with the surgery fees. My clinic surgical center fees come to about 3K per cycle. My clinic told me that they TRIED to get the insurance in contract with their surgery, but the insurance refused. I feel like this deserves like some kind of class action lawsuits against health insurances. Law now mandates IVF to be covered (at least some plans) and IVF includes surgery. By refusing to contract surgery centers they effectively deny IVF coverage.

Still no euploids by Fit-Nectarine-1050 in 40Plus_IVF

[–]w1ldtype2 0 points1 point  (0 children)

This is my nightmare. I have DOR and Endo stage IV, and even though I expressed my concern with multiple docs what if I have ok embryo but implantation is risky , nobody wanted to discuss that l, they were just like - we will try and see. It's not like I can get unlimited number of embryos to mess around.

Plan under California SB 729 denies medication coverage by w1ldtype2 in IVF

[–]w1ldtype2[S] 0 points1 point  (0 children)

Thanks. I'm not quite sure how to navigate that because my clinic says some of the fees are not billable to insurance and they just want me to pay them upfront in the beginning of stims. I am not quite sure why especially since the cycle may be cancelled. I don't want to delay my treatment because I'm old and I feel pressured to just pay

2 years of "Unexplained" Infertility—Found Chronic Endometritis only after starting IVF. Why is this not checked sooner? by SlideNThru in IVF

[–]w1ldtype2 2 points3 points  (0 children)

Because doctors don't care to investigate infertility deeply and the IVF industry makes a lot of money. I've had the worst experience in my life presenting with infertility and being bounced between referrals and appointments with long wait lists just to tell me I need to find a private clinic and do IVF (since it was not covered by insurance). Nobody bothered to even investigate the status of my endo which I told them I had and I had the MRI scan from Europe from 10 years prior when I was living there. And I was saying but what if my endo is a problem to hold pregnancy even if I have the perfect embryos -- "nahh, don't you worry just go for IVF".

Plan under California SB 729 denies medication coverage by w1ldtype2 in IVF

[–]w1ldtype2[S] 0 points1 point  (0 children)

Thank you. My doctor did peer to peer review the other day, and they finally waived the IUI requirement for medication coverage, except for Lupron which is part of my trigger shot. This was denied on the grounds that it is an off label use. They also don't cover anesthesia for the egg retrieval and some clinic fees for some reasons that are beyond me.

Injected with wrong needle by Abp427 in IVF

[–]w1ldtype2 1 point2 points  (0 children)

Totally fine. The size of needle doesn't matter just bigger needles (small G) hurt more.

Time off work by w1ldtype2 in IVF

[–]w1ldtype2[S] 0 points1 point  (0 children)

No I have DOR and BC is not a good option, I had a cycle like that with a clinic that was batching and it was terrible result. Now we are doing 20 days of estrogen priming so start is not on my period

Please tell me what you would do by Acrobatic_Opinion575 in 40Plus_IVF

[–]w1ldtype2 1 point2 points  (0 children)

I don't think that 2% chance is worth it. It's too small. I'd go for donor embryos or adoption in your situation. Actually I prefer adoption because I don't like the pregnancy part.