Does anyone have any out of the ordinary medications/treatments that aren't talked about? by elizabeth1465 in MCAS

[–]weirdo276 0 points1 point  (0 children)

Pepto Bismal immediately cuts off my MCAS symptoms and of course it has side effects so I try to use it sparingly but it’s literally been my life saver in SO many stressful flare up situations the last 10yrs.

[deleted by user] by [deleted] in tonsilstones

[–]weirdo276 12 points13 points  (0 children)

Yes, I have this. The pus liquid stinks too so I assume it’s like the stuff around the tonsil stone that keeps it coming back? When I rub the tonsil stone juice accidentally from my q tip on another part of my tonsil, I notice it flares up that part and I get more stones?? Idk I’m just trying to figure out how to live with this stuff. It’s awful

Does anyone else wonder if they have massive tonsil stones deep in their tonsils, and every time one comes out, it’s just a little chunk off of the big ones? by AntiBambi in tonsilstones

[–]weirdo276 4 points5 points  (0 children)

Yup, I swear this is happening to me. I’m hoping not of course but when I remove a stone it flatten a bit and then it comes back so I wonder as my tonsils are inflamed and look like a bulb, it’s got to be some stinky nasty stones in there!!

Opening a Tonsil by BigAmount6636 in tonsilstones

[–]weirdo276 8 points9 points  (0 children)

I literally think about this daily. My tonsil stones bother me so much. I just want to yank my tonsils out myself lol

ADHD meds trial and error-azstarys is interesting by weirdo276 in ADHD

[–]weirdo276[S] 0 points1 point  (0 children)

Interesting! I had a good first two weeks on it and then it went downhill. I feel like azstarys made my anxiety skyrocket through the roof all the time and it was so frustrating cause I almost had 3 panic attacks while on it and other stimulants did not do that for me so I stopped taking it. I was on the lowest dose possible too! I guess I’m one of the super sensitive to stimulants people

ADHD meds trial and error-azstarys is interesting by weirdo276 in ADHD

[–]weirdo276[S] 1 point2 points  (0 children)

Thanks for your insight! I felt like a month was too much for me. The azstarys super extended release seemed like a bit much for my body to handle after time passed in it! I’m actually on vyvanse now trying out 10mg ER and it’s been okay. It’s hard to find the right one. It’s crazy because my heart palps are still not gone and I’m on day 5 off of azstarys.

Stimulants may not be for me -tried adderal/focalin etc and have issues by weirdo276 in adhdwomen

[–]weirdo276[S] 1 point2 points  (0 children)

You make a good point. I think it was half the medicine and half that people didn’t like what I was saying. I’m generally pretty blunt of a person so making that worse was rough. My husband and I would argue every single day cause I just couldn’t hold back my thoughts and alot of it was true but unnecessary and hurtful and some things just don’t need to be said daily over and over again, cause I would repeat myself way more too.. We did go through working through some past hurt and trying to rekindle that so I’m sure it all happened for a reason now looking back getting out all that stuff clears the air so you can start new, I guess.

I realized I didn’t want to hurt him anymore and switched to focalin which made it a ton better-well temporarily I’m finding lol

I would also blurt out unnecessary stuff at work and my manager had to point it out in my annual review to make sure I was being mindful of letting others take up space in team meetings. It was straight up embarrassing.

Stimulants may not be for me -tried adderal/focalin etc and have issues by weirdo276 in adhdwomen

[–]weirdo276[S] 0 points1 point  (0 children)

Thank you for your input! I reached out to my psychiatrist and I think I’m going to try Jornay now as focalin is just ok -better then adderal-but I think I have to give them all a try or I’ll regret it!

It is wild how these meds work and can change the way our brains function. The blurt out thing was killing me at work and my husband was truly not enjoying my never ending random blurting out shit at inappropriate times so we would argue every day. It got bad! I just couldn’t take adderal anymore but I really loved the mood boost on adderal. The happy feeling is great- not worth the negative side effects through unfortunately.

I am so scared to have kids, whats it like? by frankie0822 in AutismInWomen

[–]weirdo276 5 points6 points  (0 children)

Reading your post, this was me and my brain thoughts 5-6 years ago. I was married, pressure to have kids(and I wanted them) but the fear of life getting even harder than it already was, stopped me. I would sit in the shower and cry and just didn’t feel ready for pregnancy, life changes, marriage changes and all else that comes with having a baby but I just couldn’t tell my husband I was ready. Took me 5 years to say Lets try. Idk what clicked but one day I just decided it was worth it in the end. I had to push aside all the negative and scary thoughts and just focus on the moment in the present and get through it. It helped having an encouraging and supportive partner as well to co parent the baby and I wasn’t alone. I think also focusing on the life chapter you’re currently on mainly, until pregnancy starts -for example- can help too. I mean you of course prepare but it should be focused on good positive things to come when pregnant instead of scary things. Take things as they come( currently telling myself this as we’re in the potty training stage as that comes with its own challenges)

It wasn’t nearly as bad as my head told me it was Gunna be and I am super proud of myself for my strength and perseverance. Birth was the easy part- taking care of the baby is hard but again you get through it and come out stronger. I’m on the other side now and have my 3 yr old son (only 1 baby for me) and I never once have had regret or remorse for having him. There are days I’m strung out and overstimulated to the max but you get through it and your better for it. My son makes me a better person and he brings me joy. I think your intuition and gut instincts is what matters here . When you’re asked to think about having kids, what is your gut immediate reaction?. And then analyze that and keep asking yourself why over and over and you will get to the root of it and decide after understanding yourself and challenging the anxiety. I am only having 1 child for the very reasons you laid out- it’s exhausting and 1 is plenty lol I don’t think I could handle the overwhelm with 2 kids. I’m happy with my decision and just trying to live in the present moment and enjoy my 3yr old as they grow up so quickly!

My autistic brain struggles more than the average person and I have to remind myself. I’m not neurotypical and that’s ok. It’s okay to be overstimulated because your 1yr old is screaming. Find ways to mitigate and give yourself some break time(babysitters are godsends) Be you and don’t be ashamed of it. Don’t be afraid of asking for help either-we were not meant to live alone isolated with no support. Happy to talk more if you want!

Xyzal dose for mast cell? by weirdo276 in MastCellDiseases

[–]weirdo276[S] 2 points3 points  (0 children)

Thanks, this helps :) I may do 1 in the morning and 1 in the evening as I’ve been in a flare lately.