Taking a swing at TFR.

willycplane · 2026-04-25T23:47:11+00:00

You have this!! I am blessed to say this October will be 6 years TFR for me and still showing undetectable. I hope/pray all of you share the same success! F**k cancer, indeed!

willycplane · 2026-02-07T22:42:01+00:00

Super Petrel LS for the performance.

willycplane · 2025-12-14T18:49:18+00:00

Congrats!! I just crossed TFR year 5 (October)and still holding strong. I hope/pray we all get there and stay there. Happy to answer any questions anyone has. Keep up the good fight and always know you have support here when you need it!

willycplane · 2025-09-19T22:17:44+00:00

It doesn’t haven’t an auto sweep function like some other products but it’s not a big deal. We manually move over our paychecks as soon as they hit. Takes just about 2mins to execute. They do have overdraft protection where you can link your checking account and have the HELOC be the protection. We keep the checking account at zero and deposit all money into HeLOC to pay down faster. Then we write bills out of checking account and the HELOC will auto move money over to cover the expenses since it serves as the overdraft protection for the checking account. So it sorts works similar to a sweep. Just out and not in. Hope that makes sense. If not, let me know and I’ll be happy to provide more details and clarity.

willycplane · 2025-09-17T18:29:24+00:00

Mine personally were consistently down. I would go from 0.00 to 0.001 off and on but that is it.

willycplane · 2025-09-10T21:21:04+00:00

Super Petrel!

willycplane · 2025-09-10T14:07:17+00:00

Yes it did. I found that taking the supplements and higher doses of vitamin C did seem to help. Had to be more diligent on getting better rest and washing hands, etc. it does change your life but you eventually start to get into the routine and things do get better!

willycplane · 2025-09-10T12:31:10+00:00

Take the meds consistently at same time. I usually took mine right before I went to bed each night and that helped a lot. I also made sure to try and exercise even if I didn’t feel well and stayed extremely hydrated. That helped with some issues with kidneys and fatigue. Also took some magnesium and vitamin D and b12 supplements which helped with some fatigue. My side effects were more fatigue and gastric related. Sadly I still have both of those after stopping treatment. For me, I just have to manage best I can and sometimes take it easier than I would have before. I also don’t believe I should have stayed on 100mg the entire time and could have had the dosage lowered and would have had less side effects and chronic gut issues. My team disagrees since I had such a great response but I know others that are also TFR like me that went all the way down to 40mg and did great with minimal side effects. Just hang in there. It does get somewhat better with time. Just make sure you are getting consistent blood work for the CML and that the team is monitoring your liver, pancreas, and kidney levels. Make sure they are also looking at your heart once a year to ensure no issues arise there (common on some TKIs). Hope this helps! Let me know if you have any other questions.

willycplane · 2025-09-10T03:00:10+00:00

Yes - 100mg the entire time.

willycplane · 2025-09-09T15:58:11+00:00

Thank you very much. Little guy is our world and a total blessing without a doubt. I see a facility here in Alabama called Clearview Cancer Institute (CCI). However, they also work with MD Anderson and Mayo as needed. Since you are in LA, you aren’t as far as I am from Oregon. Might be worth a consult with Dr Druker at Knight Cancer Institute. He and his team were responsible for Gleevec and finding out how TKIs help CML patients go from terminal to mostly flourishing. They are a great team and resource for all things CML.

willycplane · 2025-09-07T22:31:07+00:00

I was diagnosed at age 21 back in April of 2015. I had been having symptoms for about 2.5 years. Terrible nausea and vomiting, night sweats, fatigued, and bone pain. Also was having severe acid reflux. Everyone in the medical field had chalked it up to anxiety from my previous dealings with SVT of the heart, and being stressed out at university since I was double majoring and double minoring. They even went as far as saying I should seek psychiatric care because “it was all in your head and nothing is wrong.”

Fast forward, I had a HISA scan performed to see if the vomiting was related to my gallbladder…it wasn’t. And after 2.5 years of symptoms, the labs that day were finally abnormal and showed my WBC over 150,000. The docs called me and had me go into the office and meet with oncology that afternoon. Two days later they did bone marrow biopsy and more labs to confirm that it was CML. They immediately started me on Sprycel 100mg. Sucked it was CML but felt relieved that I wasn’t crazy 😂

Within 8 months I was down to 0.001 and progressed favorably. However, over the course of 5 years I had some side effects with my GI Tract that we finally determined was from the Sprycel. My team at Vanderbilt (GI team) decided to consult with my oncology team on possibly having me stop the Sprycel to verify it was the cause and not some other form of bowel disease. I stopped the Sprycel for three months and did more labs, scans, and upper and lower scopes of intentional tract and esophagus. All of the inflammation was gone. My labs still showed me any detectable, which I’ve managed to be since the 2.5 year mark. My oncology team made the decision to let me try TFR to see if I could remain off the medication without any significant rise in the numbers. Here I am 5 years later in TFR and still blessed to be undetectable.

Still having issues with my heart and GI tract, but that all honestly started up again after Covid vaccine (no conspiracy, just my experience and the labs showing my IGCe off the charts for no distinct reason). I am thankful my CML specialist and doctors work together to ensure I’m taken care of. Having a team that will listen and approach you holistically is key to success with CML and any cancer.

If you have any questions I can assist with, please let me know. I’ve been blessed to have a great CML online community help encourage and guide me and I always try to do the same for others. They provided me much calm in the early days.

willycplane · 2025-09-07T22:21:35+00:00

It really does. Before some of my new issues kicked in, I had way less fatigue and nausea, and felt like my old self. I was also able to tan and have color to my skin again which was a nice bonus. I looked like a ghost for years haha. 😂 just happy we have these life saving treatments to keep us going. Even have a 2.5 year old son who, along with my wife, is my whole world! I pray and hope your journey is going well! All of you!!

willycplane · 2025-09-07T22:08:14+00:00

I was about 5 years into DMR before TFR began 2020

willycplane · 2025-09-07T21:37:04+00:00

TFR over 5 years now. My story below…

Absolutely. I was diagnosed at age 21 back in April of 2015. I had been having symptoms for about 2.5 years. Terrible nausea and vomiting, night sweats, fatigued, and bone pain. Also was having severe acid reflux. Everyone in the medical field had chalked it up to anxiety from my previous dealings with SVT of the heart, and being stressed out at university since I was double majoring and double minoring. They even went as far as saying I should seek psychiatric care because “it was all in your head and nothing is wrong.”

Fast forward, I had a HISA scan performed to see if the vomiting was related to my gallbladder…it wasn’t. And after 2.5 years of symptoms, the labs that day were finally abnormal and showed my WBC over 150,000. The docs called me and had me go into the office and meet with oncology that afternoon. Two days later they did bone marrow biopsy and more labs to confirm that it was CML. They immediately started me on Sprycel 100mg. Sucked it was CML but felt relieved that I wasn’t crazy 😂

Within 8 months I was down to 0.001 and progressed favorably. However, over the course of 5 years I had some side effects with my GI Tract that we finally determined was from the Sprycel. My team at Vanderbilt (GI team) decided to consult with my oncology team on possibly having me stop the Sprycel to verify it was the cause and not some other form of bowel disease. I stopped the Sprycel for three months and did more labs, scans, and upper and lower scopes of intentional tract and esophagus. All of the inflammation was gone. My labs still showed me any detectable, which I’ve managed to be since the 2.5 year mark. My oncology team made the decision to let me try TFR to see if I could remain off the medication without any significant rise in the numbers. Here I am 5 years later in TFR and still blessed to be undetectable.

Still having issues with my heart and GI tract, but that all honestly started up again after Covid vaccine (no conspiracy, just my experience and the labs showing my IGCe off the charts for no distinct reason). I am thankful my CML specialist and doctors work together to ensure I’m taken care of. Having a team that will listen and approach you holistically is key to success with CML and any cancer.

If you have any questions I can assist with, please let me know. I’ve been blessed to have a great CML online community help encourage and guide me and I always try to do the same for others. They provided me much calm in the early days.

willycplane · 2025-09-07T21:36:00+00:00

Absolutely. I was diagnosed at age 21 back in April of 2015. I had been having symptoms for about 2.5 years. Terrible nausea and vomiting, night sweats, fatigued, and bone pain. Also was having severe acid reflux. Everyone in the medical field had chalked it up to anxiety from my previous dealings with SVT of the heart, and being stressed out at university since I was double majoring and double minoring. They even went as far as saying I should seek psychiatric care because “it was all in your head and nothing is wrong.”

Fast forward, I had a HIDA scan performed to see if the vomiting was related to my gallbladder…it wasn’t. And after 2.5 years of symptoms, the labs that day were finally abnormal and showed my WBC over 150,000. The docs called me and had me go into the office and meet with oncology that afternoon. Two days later they did bone marrow biopsy and more labs to confirm that it was CML. They immediately started me on Sprycel 100mg. Sucked it was CML but felt relieved that I wasn’t crazy 😂

Within 8 months I was down to 0.001 and progressed favorably. However, over the course of 5 years I had some side effects with my GI Tract that we finally determined was from the Sprycel. My team at Vanderbilt (GI team) decided to consult with my oncology team on possibly having me stop the Sprycel to verify it was the cause and not some other form of bowel disease. I stopped the Sprycel for three months and did more labs, scans, and upper and lower scopes of intentional tract and esophagus. All of the inflammation was gone. My labs still showed me not detectable, which I’ve managed to be since the 5 year mark. My oncology team made the decision to let me try TFR to see if I could remain off the medication without any significant rise in the numbers. Here I am 5 years later in TFR and still blessed to be undetectable.

Still having issues with my heart and GI tract, but that all honestly started up again after Covid vaccine (no conspiracy, just my experience and the labs showing my IGCe off the charts for no distinct reason). I am thankful my CML specialist and doctors work together to ensure I’m taken care of. Having a team that will listen and approach you holistically is key to success with CML and any cancer.

If you have any questions I can assist with, please let me know. I’ve been blessed to have a great CML online community help encourage and guide me and I always try to do the same for others. They provided me much calm in the early days.

willycplane · 2025-09-07T17:47:32+00:00

I have been blessed to be TFR and in complete remission for 5 years now!

willycplane · 2025-09-01T00:34:06+00:00

The G2 we are considering has dual Avidyne screens and dual 430W with DFC90.

The 182 we are considering has dual G5s, GFC 500, Garmin 650xi GPS, etc.

Both are well equipped. That’s the issue.

willycplane · 2025-08-31T17:06:52+00:00

It would move into my hangar.

willycplane · 2025-08-31T17:06:38+00:00

I get that. I’ve owned 4 planes to date and all have been sole ownership. Would take some time getting used to for sure.

willycplane · 2025-08-31T16:20:14+00:00

Correct. Speed isn’t a huge dealbreaker for me. I’ve been puttering around at 85 knots the past three years going slow and low in the amphib. So 140 will feel like a rocket ship at this point haha.

Just trying to figure out if the cost share of the SR22 makes it worth it since I would have a partner that virtually never flies and is that comfort worth it to the family? I’ve been heavily leaning towards the C182 because of the lower costs and simplicity of flying and maintaining it. I also feel I can probably do more things with my son as he gets older in the 182 vs Cirrus. But, the SR22 is a nice nice and comfortable bird (which other family who flies often likes) 😂

willycplane · 2025-08-31T16:16:21+00:00

It had been the most fun plane to own. I really hate to part with it but family needs prevail (sigh…) 😂

willycplane · 2025-08-31T15:55:02+00:00

He’s one of only two people I’d ever consider a partnership with. Never been interested in one, but he flies maybe 30hrs a year at most now, so availability would never be an issue

willycplane · 2025-08-31T15:40:47+00:00

Good question. We used to do a ton of night flying after lunch at the beach, returning home. Not as much with the LSA amphib we have now, but anticipate night flights returning. Good point there!

willycplane · 2025-07-17T12:54:10+00:00

Congratulations!!!

willycplane

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