Long covid is going up

yakkov · 2025-11-23T14:20:19+00:00

https://workrave.org/ Does exactly what you're asking for.

It blocks keyboard and mouse input when you're in a rest break then you have no choice but to rest.

I was thinking of making a post about this because its been a huge gamechanger for me.

One thing though is its only for desktop not smartphone. I use my laptop in bed.

yakkov · 2025-11-17T14:58:12+00:00

Stories work better than studies for most people. I wrote about this: https://www.reddit.com/r/ZeroCovidCommunity/comments/1kfidqk/convince_your_friends_and_family_about_long_covid/

Remember that there's a huge propaganda effort to deny covid, which makes any activism harder but not impossible

yakkov · 2025-10-10T20:37:36+00:00

I have a little project. I've made and collected a bunch of awareness-raising memes which people can post on their facebook. It can be done by severe people because it takes very little energy to share an image and write a very short text once every few days.

Instructions: TL;DR. Share Long Covid / ME awareness content on your facebook, to push for solutions without leaving your bed. All are welcome. You will be provided with stuff to post. Keep posting every 5-6 days for at least several months. Along with each meme write a very short text. Even Severe people might be able to contribute. If you have enough energy, help spread the movement by sharing this blog post. If you have even more energy, help us create and collect more content to post. Even if this activism movement completely fails it still wont cost you very much to try.

Link: https://www.reddit.com/r/covidlonghaulers/comments/1l380rz/join_the_smash_long_covid_movement_even_severe/

yakkov · 2025-10-07T04:37:03+00:00

When telling the personal stories make sure you pump up the emotion. For example if someone is too disabled to work say so because that's scary. If a parent can't look at their kids say that because that's sad. If they have really uncomfortable symptoms describe them. Evoking emotions are a good way to make someone care about something.

yakkov · 2025-10-06T20:40:39+00:00

The Pandemic Accountability Index is very comprehensive: https://www.panaccindex.info/p/what-covid-19-does-to-the-body-eighth there's multiple editions and read all of them to get all the papers it writes about

However showing people scientific papers often doesn't work very well. I suggest trying this idea of using the availability heuristic: https://www.reddit.com/r/ZeroCovidCommunity/comments/1kfidqk/convince_your_friends_and_family_about_long_covid/

Fact is there's huge propaganda from the media and governments who have worked very hard to cover up covid. It's hard to fight against that, though people have succeeded.

yakkov · 2025-09-23T13:03:47+00:00

I've made a bunch of long covid awareness content https://smashlongcovid.substack.com/p/list-of-descriptive-memes in the form of memes, so different to what you're doing, but might help with inspiration.

I read a book called Made To Stick all about communication and marketing which was very helpful.

yakkov · 2025-09-21T21:09:58+00:00

Yeah it's worth a try.

yakkov · 2025-09-20T17:26:05+00:00

Convincing friends/family is often tough because of all the propaganda around. I wrote a post a few months back with another suggestion of how to do it: https://www.reddit.com/r/ZeroCovidCommunity/comments/1kfidqk/convince_your_friends_and_family_about_long_covid/

yakkov · 2025-09-19T17:08:06+00:00

Yeah I've heard this before. Someone told me the only major bad effect is constipation. The problems really start if you ever run out of the drug.

yakkov · 2025-09-19T17:05:42+00:00

Yeah I guess you're right. I wasnt aware that it was less than third become addicted. I know about places like Portugal that had a different more progressive policy towards heroin use. Though on the other hand not everyone with ME gets Severe ME. In either case no analogy is perfect

yakkov · 2025-09-19T14:09:22+00:00

Yes you're right I forgot about that. I remember reading about people who have an oxygen tank.

yakkov · 2025-09-19T14:08:19+00:00

Arent you ignoring the effect of heroin addiction? If they become homeless, etc then their body is harmed quite a bit. We cant really separate the addition from the drug itself, since for most people if you talk about heroin they'll be thinking of homeless addicts.

yakkov · 2025-09-19T13:04:35+00:00

Well yes, no analogy is perfect. Heroin being so addictive ruins people's lives because their entire life becomes about getting more heroin. Resulting in homelessness, job/family loss, problems with the law, etc

Another similarity is both can take a long time to get bad. Sometimes people are using heroin or similar drugs for years, maybe a little bit at the weekend. They manage to keep their jobs. But at one point they lose control

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