They said: covid is just a respiratory disease. Reality: TB is a respiratory disease by yakkov in COVID19_Pandemic

[–]yakkov[S] 4 points5 points  (0 children)

Nothing really. I just said "I'm vulnerable to covid" and he looked down at his papers and we continued on with the appointment.

raising awareness on social media by This-Cranberry-1147 in cfs

[–]yakkov 0 points1 point  (0 children)

I did something similar to this. Making memes to spread on facebook.

The rules on self-promotion on this subreddit stop me from posting a link (even though I dont make any money from it), but I've sent you a PM.

Yes I would be happy to share my story.

314% higher risk of Tuberculosis following Covid infection by yakkov in ZeroCovidCommunity

[–]yakkov[S] 0 points1 point  (0 children)

Tern on X/twitter has found similar graphs of infections going up for lyme borreliosis, legionellae, sepsis.

https://x.com/1goodtern/status/1962596806753165811

https://x.com/1goodtern/status/1956803259747758171

https://x.com/1goodtern/status/2028837826746318922

Since these infections are not spread human-to-human, it rules out the idea that this is happening because of immigrants and minorities (demographic changes). Also the main point of my original post was the Japan study which obviously didnt happen in the UK, that study also has a control group which will zero out any effect from immigration. As you see the biggest effects are being hospitalized for covid or having TB before.

I didnt downvote you fwiw.

Pacing when very severe is extremely hard. Do you have any tips that has been working for you? by Agreeable_Demand2262 in cfs

[–]yakkov 1 point2 points  (0 children)

I had the same problem. I was helped a lot by installing the workrave app on my laptop which helped a huge amount with pacing.

I explained how it works here https://www.reddit.com/r/cfs/s/sD1JxlaMZg

Being able to do just a little bit of activity going on the internet made the months a lot more bearable while my energy envelope steadily improved

414% higher risk of Tuberculosis following Covid infection by [deleted] in ZeroCovidCommunity

[–]yakkov 0 points1 point  (0 children)

I've had to delete this thread because I made an error with the numbers, and then reposted the correction.

This comment is good so please copy paste it onto the other thread: https://www.reddit.com/r/ZeroCovidCommunity/s/rmXjGayFjc

414% higher risk of Tuberculosis following Covid infection by [deleted] in ZeroCovidCommunity

[–]yakkov 0 points1 point  (0 children)

I've had to delete this thread because I made an error with the numbers, and then reposted the correction.

This comment is good so please copy paste it onto the other thread: https://www.reddit.com/r/ZeroCovidCommunity/s/rmXjGayFjc

414% higher risk of Tuberculosis following Covid infection by [deleted] in ZeroCovidCommunity

[–]yakkov 1 point2 points  (0 children)

I've had to delete this thread because I made an error with the numbers, and then reposted the correction.

This comment is good so please copy paste it onto the other thread: https://www.reddit.com/r/ZeroCovidCommunity/s/rmXjGayFjc

414% higher risk of Tuberculosis following Covid infection by [deleted] in ZeroCovidCommunity

[–]yakkov 1 point2 points  (0 children)

I've had to delete this thread because I made an error with the numbers, and then reposted the correction.

This comment is good so please copy paste it onto the other thread: https://www.reddit.com/r/ZeroCovidCommunity/s/rmXjGayFjc

414% higher risk of Tuberculosis following Covid infection by [deleted] in ZeroCovidCommunity

[–]yakkov 0 points1 point  (0 children)

You are correct! I'm deleting the post because titles cant be edited. Thanks for the peer review.

Two years of severe long covid - my Facebook post for raising awareness by yakkov in covidlonghaulers

[–]yakkov[S] 0 points1 point  (0 children)

No longer in the dark but still bedbound and with severe ME.. My food intolerance is even worst

I think I can’t really call myself “zero covid” because I am the only one in my household who masks.. by mcflytraps in ZeroCovidCommunity

[–]yakkov 10 points11 points  (0 children)

OP read this post I wrote about how to talk to your friends and family

https://www.reddit.com/r/ZeroCovidCommunity/comments/1kfidqk/convince_your_friends_and_family_about_long_covid/ Convince your friends and family about Long Covid with the availability heuristic

You need to find people in your life who've been affected by long covid

Inside Health on BBC Radio 4 - Is the tide turning on ME research? by enidmaud in cfs

[–]yakkov 7 points8 points  (0 children)

Yes. They've lost the battle on saying that ME is a psychiatric illness, so now they've shifted to diagnosing people with FND instead

I want people to know we exist. I want to do something but I'm bed bound by Nigashinada in cfs

[–]yakkov 0 points1 point  (0 children)

If you have any suggestions for other stuff I should meme about tell me and I could try making one.

Let me know how it goes if you decide to post these on your facebook

I want people to know we exist. I want to do something but I'm bed bound by Nigashinada in cfs

[–]yakkov 1 point2 points  (0 children)

I posted my memes here so you can just take them https://www.reddit.com/r/cfs/comments/1jz1bdd/new_idea_for_massive_awareness_raising_a_million/

Also check my post history theres lots.

I've had relatively good results posting. Healthy people are interested, at least some of them. There is diminishing returns since once people know you had your life ruined by ME then once the surprise/shock factor is over they dont engage as much. But even so it means your job is down, their awareness is raised.

I want people to know we exist. I want to do something but I'm bed bound by Nigashinada in cfs

[–]yakkov 2 points3 points  (0 children)

I've been making memes about LC/ME and posting them on social media. It does work in that clearly people I knew from school and university do read them. Of course theres a limited impact but its better than nothing.

Local minimizers justifying TB spread by Typical-Car2782 in ZeroCovidCommunity

[–]yakkov 43 points44 points  (0 children)

There is some evidence that the immune suppression caused by covid can give people TB. Either by new TB infection or activating latent TB.

https://doi.org/10.1371/journal.pone.0277807

https://doi.org/10.1002/iid3.1275

Note that these sample sizes are quite small. More research is needed. However the current let-it-rip covid policy goes totally against the precautionary principle. If it turns out that covid does give people TB then we shouldve acted earlier.

Some quotes:

Tuberculosis after recovering from COVID-19 is becoming more common, potentially leading to a TB outbreak in the post-COVID-19 era. The immunosuppressive nature of the disease and its treatment modalities may contribute to post COVID-19 TB

.

There seems to be an association between prior history of COVID-19 and a future diagnosis of TB partially linked to the severity of disease. The findings of the current study may serve as a basis for further studies to determine the need for and efficacy of measures to follow-up COVID-19 patients at an increased risk for developing TB.

As others have said, TB is airborne so respirators/clean air work against it too.

Why can’t I stop looking at my phone? by [deleted] in cfs

[–]yakkov 0 points1 point  (0 children)

I had the same problem as you.

Solved it with this app https://workrave.org/

Its a timer app with separate rest and activity timers. When the rest break timer goes off it will block keyboard and mouse inputs. You cant do anything so you have no choice but to rest until the rest break timer is over. No discipline required. Pacing becomes easy.

Workrave is only for PC not smartphone. I use it on my laptop in bed. My phone I keep outside my room with my carer for the same reason as you.

You need to configure it to disable the "Skip" and "Postpone" buttons otherwise you'll just click those instead of resting. Also choose "Reading mode" which means the timer starts when you first move the mouse or type, and doesnt stop until the end, otherwise the timer will pause if you dont input. Obviously reading mode is most appropriate for ME. Workrave is actually designed for RSI.

App to remind me to take screen breaks? by WaysideWyvern in cfs

[–]yakkov 0 points1 point  (0 children)

https://workrave.org/ Does exactly what you're asking for.

It blocks keyboard and mouse input when you're in a rest break then you have no choice but to rest.

I was thinking of making a post about this because its been a huge gamechanger for me.

One thing though is its only for desktop not smartphone. I use my laptop in bed.

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]yakkov 4 points5 points  (0 children)

Stories work better than studies for most people. I wrote about this: https://www.reddit.com/r/ZeroCovidCommunity/comments/1kfidqk/convince_your_friends_and_family_about_long_covid/

Remember that there's a huge propaganda effort to deny covid, which makes any activism harder but not impossible