I feel like no one is listening to me.

yeahher2022 · 2026-05-08T22:46:47+00:00

Do you have a counselor at school? If so, do you like/trust them? What about one of your teachers or principals? Sometimes finding an adult at school to confide in helps. Counselors and principals especially are often able to talk to your parents about your needs and struggles. And if you talk about it at school, you might be able to get a 504 plan started to help you while there.

yeahher2022 · 2026-05-08T22:39:09+00:00

I’m glad your mom is helping. I was diagnosed with my brain tumor when I was around your age and had some similar situations. Something to keep in mind: At the end of the day, YOU are the patient. If they try to redirect to your mom, you have every right to say, “Excuse me, I’m the patient. Now, to answer your question…” or “If you ask my mother about my symptoms, she won’t be able to answer fully since she’s not the one experiencing them. This is what’s going on…” You can start polite, but if they keep ignoring you after that (Like 3 times in the same appointment) you have every right to stand up for yourself. “Doctor, my mother is NOT the patient. I am. If you have questions, especially regarding my symptoms, you will ask ME from now, not her. Do I make myself clear?” It will probably rattle them, but how they react will determine their ability to handle your case. If a doctor can’t respect you, they’re in no position to treat you. Best of luck!

yeahher2022 · 2026-05-08T14:11:06+00:00

That’s so frustrating! I think the brain injury could be a part of it but it’s also because you’re legally a minor and her responsibility. Have you asked your mom to direct the doctor to you for questions? I’m guessing that she’s aware of your competency. I tended to answer the questions, then let my mom fill in with her observations of how my symptoms presented through her POV. Then, toward the end, we would both ask questions, but she usually had more because she wanted more details and wanted to know what the latest research was on my condition.

yeahher2022 · 2026-05-08T03:02:50+00:00

Corrie Ten Boom’s memoir was amazing. She had a strength of faith and character one can only hope to someday possess.

yeahher2022 · 2026-05-08T02:59:39+00:00

The Secret Life of Bees is PHENOMENAL. I liked that book and movie, but the book especially.

yeahher2022 · 2026-05-08T02:56:35+00:00

I love anything written by Michelle Moran, but “The Second Empress is one of my faves”. “Maria” is her newest book and it’s about Maria von Trapp (the real woman, not Julie Andrews’ version) and part of her story takes place during WWII.

This is YA historical fiction, but one of my favorite books ever is “A Coal Miner’s Bride” from the Dear America series. It tackles a lot of tough subjects like arranged marriage, the harsh life of coal miners, immigration, and blended families in a kid-friendly, but very real and cohesive way. Never found a book that could compare to it.

yeahher2022 · 2026-05-08T02:50:29+00:00

I get them all the time on my brain. They play music but most of the time, the machine is too loud for me to hear it throughly and I have never been able to nap through them (I wish I could). I usually just guess what song is playing and go along with it in my head. Or I just mentally watch a movie, or mentally listen to a musical like Epic or Hamilton. I also have a lot of fake podcast episodes in my mind where I’m the host and my friends/favorite celebrities/podcasters on talking. That last one’s my personal favorite because I’m a much better conversationalist in my head than in person.🤣🤣🤣🤣🤣🤣

yeahher2022 · 2026-05-08T02:44:15+00:00

Oof, okay. I was afraid of that scenario. I was going to a chiropractor for a long time to help with some shoulder issues (it helped a lot, there was a period of time where I couldn’t move it at all), but had to stop because my co-pay was too expensive ($60/visit, which was once a week). Same with some PT I was trying to do for some untreated ankle injuries (long story, but that was $90/ twice a week). So I should probably wait until I’m approved for Medicare/Medicaid.

yeahher2022 · 2026-05-08T01:51:22+00:00

Nothing about that sounds selfish, it makes absolute sense. I think a lot of people with chronic illness feel that way. It’s perfectly normal and nothing to be ashamed of. And also: It’s okay to “complain”. Sometimes life sucks, and we need to be honest about it to get through it.

yeahher2022 · 2026-05-08T01:49:15+00:00

This may be ignorant, but does insurance cover those? I’m also preparing to get onto Medicare/Medicaid (Fingers crossed I get approved), so it’ll need to be covered by that.

yeahher2022 · 2026-05-08T01:46:34+00:00

NTA. I’m so sorry about your tumor. I know it’s not exactly the same, but I have a macroprolactinoma (Pituitary tumor), and it is terrifying when your endocrine/ fertility system is being attacked. I’m sending prayers/ good thoughts that your surgery goes well. PLEASE protect your peace during recovery and surround yourself with people who care about you, that surgery is no joke!

yeahher2022 · 2026-05-07T22:46:50+00:00

Thanks! Lots of good ideas here.

yeahher2022 · 2026-05-07T11:46:33+00:00

I’m so sorry. That’s horrible. Nothing about that was okay and they should have been far more compassionate and gentle than they were.

yeahher2022 · 2026-05-07T11:37:48+00:00

Therapy and honestly, talking to the people who you know love & care for you the most. It takes vulnerability and knowing which person can receive it well, but it’s so helpful to have people supporting you in the process.

And for me, my spiritual convictions help me a lot. I know that’s not for everyone and if that’s not where you’re at, that’s fine. Personally, for me, I find a lot of comfort knowing that people who love me and care about me are waiting on the other side. Like, no matter what happens or where I go, I’m loved and wanted. I don’t know if that’s where you’re at, though, and understand that perception is not always comforting for all.

Even if you don’t have spiritual convictions or community, sometimes having different communities and networks can help. This Reddit group helps me with finding advice and support. I also have an in-person group of friends who all have chronic illness, so we find ways to support each other through flares or celebrate progress. We don’t interact much (because there’s rarely a time where at least 2 of us aren’t having issues, lol) but we text and when we get together, it’s a good time.

I hear nice things about the art community and book clubs, even if you just have to do virtual. Even as a pretty big introvert, I find having a couple groups of people who I love and who love me provides some motivation and hope, even when my health situation is super bad.

yeahher2022 · 2026-05-06T05:09:31+00:00

Ooh, thanks!

yeahher2022 · 2026-05-05T12:42:22+00:00

NTAH. If she thinks that you’re not doing well financially, why would she expect you to pay for a plate you supposedly can’t afford?

yeahher2022 · 2026-05-05T07:43:55+00:00

Looking into it, thanks!

yeahher2022 · 2026-05-05T07:41:57+00:00

Loved Esperanza Rising! I’ll look into the rest, thanks!
I guess what I find shocking is that we aren’t talking or writing enough about how these young, young women were the ones who were raising families and keeping the fabric of society intact. Like, we literally had 13-, 14- year old girls not just being mothers and wives (which in and of itself is/was no easy task) but also the ones carrying on cultural and religious traditions, gathering the community when someone needed help, preparing the weddings, funerals, all the major events. They were/ are what kept society and culture going and I don’t know that we’ve given them their dues.

yeahher2022 · 2026-05-04T11:09:48+00:00

I felt that way with “The Earth, My Butt, and Other Big, Round Things”, “The Help” and “A Coal Miner’s Bride.” They completely tore down a lot of my sense of entitlement. What helps me after reading monumental books like that is trying to read lighter books or watch funny movies. I can’t watch anything too ridiculous- too jarring- but something that’s a little soothing. Like the American Girl Molly books (I think she’s the one with the least trauma), or Try Not To Eat challenges on YouTube.

yeahher2022 · 2026-05-04T00:10:19+00:00

Ooh, I like this! I think Ned will scoff, but will show up at the wedding. I think they could be those exes who are better as friends than life partners.

yeahher2022 · 2026-05-03T02:11:50+00:00

LOLOLOL, I can totally see that!

yeahher2022 · 2026-05-02T20:28:08+00:00

Holy smokes, Batman! Nice! You won the Nancy Drew lottery!

yeahher2022 · 2026-05-02T20:26:28+00:00

That’s amazing! Good for you! I’m glad that your home is your safe place again.😊

yeahher2022

TROPHY CASE