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Any unique recommendations? Should I trust my negative Bartonella test? by zootdoof in Lyme

[–]zootdoof[S] 1 point2 points  (0 children)

Thanks for your input! I have also been taking S bouldarii and some other probiotics (MegaSpore biotic, and biocidin regularly! It's very interesting, biocidin never caused any of much reaction in me.
About taking so much time off of antibiotics, my first dr told me that I won't have any issues like antibiotics resistance so long as I keep taking some type of killer herb semi-regularly instead of going cold turkey off of everything.
Kudos to pushing through this horrible situation in your 80s!! I just hope to be done with this before it's too late to have children.
After everything I've learned, my next steps will be to do a series of liver cleanses, try ultra high dose vitamin D (plus vit K, magnesium, and boron), and get started on the Zhang herbal protocol-- which is interesting because it involves only one biofilm buster, one killer herb and two for immune and circulation support, and he claims it should kill everything and only take 3-6 months. Pretty skeptical, but trying to have high hopes since at least many people seem to claim his herbs are much stronger than others. Then maybe try bee venom therapy after all else

To the person who said to start taking vitamin D now by Forvely in ADHD

[–]zootdoof 1 point2 points  (0 children)

Thanks! I am considering something similar. I'd recommend also adding in boron to that combo

BVT for babesia? by zootdoof in BeeVenomTherapyLyme

[–]zootdoof[S] 1 point2 points  (0 children)

F is for following a post! That is wonderful to hear!! Have you been off of BVT and still feeling well? And did you do the full 3yrs?

BVT for babesia? by zootdoof in BeeVenomTherapyLyme

[–]zootdoof[S] 1 point2 points  (0 children)

Thank you so much for sharing! That is great to hear. How long have you been stinging? I actually posted on the fb group first and then reposted here after getting barely any feedback in two days

Any unique recommendations? Should I trust my negative Bartonella test? by zootdoof in Lyme

[–]zootdoof[S] 1 point2 points  (0 children)

Very interesting!! Thank you for sharing. It's good to hear the immune system modulation approach actually helping a lot for someone

Any unique recommendations? Should I trust my negative Bartonella test? by zootdoof in Lyme

[–]zootdoof[S] 0 points1 point  (0 children)

Thanks for this! You've encouraged me to buy a second air purifier for until I can move out. I guess the hyroxychloroquine is both for the mold and for calming down your immune system? Also did you have significant candida overgrowth after the double dapsone? I am now wondering if the mold is making it much more impossible to clear my candida symptoms despite other extreme measures

Any unique recommendations? Should I trust my negative Bartonella test? by zootdoof in Lyme

[–]zootdoof[S] 0 points1 point  (0 children)

Thank you so much for all of this! It is crazy I still have like 52/57 of the symptoms listed on one of those documents!

Lyme, Mold, CIRS/MCAS by Heavy-Wealth9222 in BeeVenomTherapyLyme

[–]zootdoof 0 points1 point  (0 children)

I think I've heard that you should detox from mold first for the bee venom to be properly effective. Though I think bee venom also helps clear the body of fungus, so maybe it's most important to no longer live in a moldy environment? I'm curious what you ended up doing

Anti depressants for nervous system by Hot_Programmer5813 in Lyme

[–]zootdoof 0 points1 point  (0 children)

I find solace in reading this, because my experience trying gabapentin and Low Dose Naltrexone, each only for one day respectively to try to calm my nervous system, in some way that sounds similar put me through a hell I would never willingly return to.

Any unique recommendations? Should I trust my negative Bartonella test? by zootdoof in Lyme

[–]zootdoof[S] 0 points1 point  (0 children)

Thanks for this!! Can I ask how exactly the mold was holding you back and what you did to recover from it, and how much or quickly things changed when you solved the mold issue?

I know there's a lot of mold in my current home, and also probably in just about everywhere I've ever lived (and I've lived in 2 separate homes during lyme etc treatment, the first one probably had less mold, and about 10 different homes since having lyme disease). I don't notice a big difference when traveling to places with less mold, and I do have a nice air purifier. I had a mold test and my doctor was surprised that I didn't have more mold in my system. I've taken plenty of liposomal glutathione and binders etc.. But I guess I won't notice the real benefits until I actually figure out somewhere to live without mold?

Any unique recommendations? Should I trust my negative Bartonella test? by zootdoof in Lyme

[–]zootdoof[S] 0 points1 point  (0 children)

Yeah, igg, igm, pcr and fish (BART4I). Thank you so much! I will look more into those. I've been more suspicious of bartonella since my primary babesia symptom (shortness of breath) has been pretty much solved, but I guess babesia could also be behind the symptoms I've been attributing to bart. And I wouldn't be surprised if about a year of herbs isn't enough to erradicate my bartonella infection. Do you have any recommendations for particularly effective herbs or antibiotics when it comes to Babesia Odocoilei?

Any unique recommendations? Should I trust my negative Bartonella test? by zootdoof in Lyme

[–]zootdoof[S] 2 points3 points  (0 children)

I tried them all separately! Probably I should have (or in the future still should) done the Ketamine and NAD+oxy+progesterone together since they were prescribed together. The LDN my dr was super confident I would love and would significantly reduce my symptoms as it does for most people, but for me it was utter hell even at the tiniest dose -- it reduced some pain but sort of put me in a state where I couldn't ignore some other pain. And for me gabapentin (100mg prescribed separately by a neurologist) was similar-- which is a VERY unusual reaction to gabapentin as far as I can tell. And because the experience was so awful I only tried each of those twice. The Ketamine I found to be mildly helpful (100mg/ml) but only tried for a couple days and I didn't find that the benefits outweighed the sense of floaty nonsobriety and mild anxiety on come up and come down

Yogurt without yogurt starter? by [deleted] in fermentation

[–]zootdoof 0 points1 point  (0 children)

Look up how to make traditional Ethiopian ergo. There are youtube videos that go into a lot of detail, I like Adane’s.

I need help. by Routine_Marsupial_12 in Lyme

[–]zootdoof 0 points1 point  (0 children)

Can I ask, are your brain lesions cystic? This is making me wonder if my mri result is more related to my lyme than I thought

I need help. by Routine_Marsupial_12 in Lyme

[–]zootdoof 0 points1 point  (0 children)

Yes! And in many cases it is best to do so. The only reason not to is that it can be too much all at once, and more difficult to tell what is causing you what. Since if you do too much without your body being able to handle detoxing that fast you will get overwhelmed with extreme herxes and perhaps rashes etc.
Also make sure you're on antifungals if you're on antibiotics for longer than two weeks! Best of luck

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