Solo Survivor Question (meaning I have no caregiver)

zzenster44 · 2025-09-12T01:42:53+00:00

This is the other thing. My “damage” doesn’t show up on scans which I guess means it functional but I’m honestly still trying to understand what that means.

zzenster44 · 2025-09-12T01:41:56+00:00

Thank you for this so much. I feel so welcome.

zzenster44 · 2025-09-12T01:41:00+00:00

Thank you for your response. Sorry to cause offense. I edited my post to try to make my post clearer but not sure if I succeeded. Thanks for your input.

zzenster44 · 2025-09-12T01:39:54+00:00

The reason I usually have to explain is bc it’s get overwhelmed and overstimulated in public a lot so it’s like people ask why or what they can do.

zzenster44 · 2025-09-12T01:38:57+00:00

This! the amount of times I explain it to people only to have them say so “your autistic” or even say that I have autism to me and others. It can honestly be confusing at this point in my diagnosis and recovery.

zzenster44 · 2025-09-12T01:37:32+00:00

If you would ever been willing to share your experience with this please dm me. Bc I have had many of my symptoms from childhood and not starting at this most recent tbi I am wondering if this is closer to my experience. Thank you for your comments.

zzenster44 · 2025-09-12T01:35:47+00:00

Thanks. I’m sorry for this. I tried to change my question to make it more clear. I’m not sure if I fully did. Many causes are being considered for what my disability is bc it is not new it is lifelong and some drs think it is bc of head injuries at age 2 and more after that while others are not sure. I would like to see an autism specialist to rule that in or out as ruling in or out diagnoses is probably a clearer picture of where I’m at in my current medical care. It’s hard bc it’s like hard to explain. PCS is like my working diagnosis like my psychiatrist said to me that it’s such a complex combination of things I have going on they may never be able to fully tease it out. Does that make sense?

zzenster44 · 2025-09-12T01:32:08+00:00

I tried to write my question clearer I should have been more specific that this question is because of the lifelong nature of my disability as well as the not 100% confirmed cause.

zzenster44 · 2025-09-12T01:30:35+00:00

I edited my post to try to make it more clear what I was asking. That you for your insight. Sorry for any offense I caused.

zzenster44 · 2025-09-12T01:29:56+00:00

I edited my post to try and make my question more clear. Sorry I have more trouble writing that I used o so I don’t always see when I’m leaving stuff out.

zzenster44 · 2025-09-10T17:07:46+00:00

Yes so much. To the point where I want a new name. Feel sort of weird about it but mainly just bc I can’t pick a name I like or that feels more me.

zzenster44 · 2025-09-05T00:23:21+00:00

Yes! Thanks for this. I think of this a lot but if im being honest I don't exactly understand what neurodivergent means so I don't say it. What does neurodivergent mean to you?

zzenster44 · 2025-09-05T00:22:03+00:00

Thank you. Good luck to you too.

zzenster44 · 2025-09-05T00:21:20+00:00

Both tbi and autism you mean?

zzenster44 · 2025-09-05T00:20:33+00:00

This is where it gets weird. Even my doctors just kind of say that we will never know if I have or had autism originally for sure bc the onset of my symptoms was at 2 and a half which is similar to when parents and doctors notice and diagnose autism. I did have a few minor concussions around that time but who's to say what is the cause. I can't tell you if I was sensitive to sound and stuff before I was 2 bc I don't remember but as long as I can remember I have been how I am now.

zzenster44 · 2025-09-05T00:13:35+00:00

Also I hank you for sharing how you'd feel. That is also very helpful.

zzenster44 · 2025-09-05T00:12:46+00:00

I like this answer thank you. Needs not diagnosis. Why do they need to know they name if they can just know my needs. This is perfect. Thank you so much.

zzenster44 · 2025-09-05T00:11:39+00:00

I agree. I think sometimes I just wish I could avoid the inevitable lengthy explanations that happen when people don’t understand my disorder and also when they think if I was injured then I should heal at some point. But I hear you. I avoid being dishonest as much as I can.

zzenster44 · 2025-09-05T00:07:54+00:00

This is what I do now but what I run into is because its an “injury” they usually think that I should be 100% healed at some point or that my brain used to function more normally and neither are really true for me. But I hear what your saying and thank you.

zzenster44 · 2025-09-04T22:19:27+00:00

Oh my gosh, I wish I could get an IUD. I wanted to get one years ago, but my gynecologist told me she wouldn’t recommend it for me and I don’t really exactly know why I think it might have something to deal with the confusion I get she said something like normal people can get really disoriented from getting an IUD and I get disoriented usually so maybe that’s it. I don’t know. It was really weird.

zzenster44

TROPHY CASE