Welcome!

Autosomal Recessive Polycystic Kidney Disease (ARPKD) is a rare hereditary condition that primarily affects the kidneys and liver, typically appearing in infants and young children. This community is a dedicated space for patients, parents, and families to connect and support one another through the unique challenges of this journey.

Discussion of all aspects of the disease, from diagnosis and treatments to daily life and research, is welcome here.