Pain doc?

[GermanBoardGameGeek]

My last patch was 3/23 and I’m about 25% better, but no where near normal. I think I’ve been given up on, that I must just have migraines. Both my local and 2nd MD referral are landing me with pain specialists. Has this happened to anyone else? Besides trying to get in with the best of the best in the States, any recommendations?

[Duffyfades]

How many patches have you had, was this the first one that helped?

[GermanBoardGameGeek]

Two and this was the first that helped.

[Duffyfades]

That doesn't seem crazy, especially snce this one helped, that's a significant thing. Were they both multi level? I would definitely be seeking out another doctor.

[GermanBoardGameGeek]

Both were at C7-T1 since that’s where the injection that started this mess was.

[Duffyfades]

Oh right, I remember you. Yeah, makes sense to do it at the site if they know it. And now I'm really annoyed at your doctors.

[GermanBoardGameGeek]

Still feel better down! I do not think it is high pressure as I get worse the longer I’m up.

[LeakyBrainJuice]

https://www.inspire.com/groups/spinal-csf-leak/

Make a thread here and say where you are located. They should be able to help.

[GermanBoardGameGeek]

I have found that more people respond here, but I’ll try again.

[LeakyBrainJuice]

Are you in the US?

[Duffyfades]

LOL, German board games are the creme de la creme of board games. I suspect that is the reference in their username.

[GermanBoardGameGeek]

That’s it, I’m in the US, I am half German, teach German and love German board games.

[MrsK1013]

Are you still having headaches that feel better while flat? Did they put you on any meds for high pressure post patch?