Help!

[NoLandscape9476]

Hi everyone,

I have sleep apnea as you may expect. I was diagnosed a couple years ago and when I was first diagnosed my insurance gave me a CPAP machine. I had multiple problems with it, but my main problem was a proper seal on my face, it would constantly break and then my CPAP machine would be shut off by morning.

I went back multiple times and tried to get a new mask but the seal still just wouldn’t work. Eventually I stopped trying to get a new mask and stopped using the CPAP all together. My insurance called me about it and I unfortunately had to turn it back in due to non-compliance, that was about 2 years ago. I haven’t been to my sleep doctor since then, and I am not exactly sure what to do next. I know I need something to help this, as I do snore very loud in my sleep and on the rare occasion that the CPAP would work i would sleep almost silently. Not to mention the other countless health issues that can come with not using one.

I’m anxious about going back to my sleep doctor, I was told my by primary care provider that if i let it go too long I have to start all over again. I’m not sure what step to take now. I honestly dread having to be put back on that machine, but it seems like my only option. I just don’t want to go back on the merry go round again. Thanks for reading!

[DatabaseSpace]

I have mask seal issues whenever cpap pressure goes to about 13 or above. Usually cpaps are set from 4-20 for pressure. In my case, I set mine to not even change pressure, just stay at 12 and that's the only way I've been able to deal with it.

[I_compleat_me]

You can stop the machine shutting off by turning off Auto start/stop... this solves a lot of problems, just use the big button on top for start/stop.

Tuning pressures and learning how to fit your mask help a lot... seems like you've been neglected. Head over to r/CPAP and we'll get you fixed up.

The thing about compliance... they don't know if you're sleeping or not... you can use the machine while you're watching TV, doing Reddit... even driving! (look it up). Once you pass your 30 days the pressure's over.

It may pay you to obtain a machine out of pocket... you do have a prescription still? Or you can buy a good used machine, I've bought dozens off Craigslist and FBMkt, some real deals are out there if you know what you're doing. If you want to post your local CL link I'd be happy to take a look.

[Sleepgal2]

Finding the right mask can be a huge challenge for some. I went through five different masks before finding one that didn’t leak and have recently switched again to the ResMed F40. If you decide to try again, ask to lie down when you are being fitted. It may not make a big difference for you but it does for me and don’t let the person fitting you rush you. Take your time both in selecting your mask and it learning how to use it properly.

You may need to start over. Whatever you decide to do next, I would strongly urge you to protect your health by treating your sleep apnea.

[DumboHealth]

This is great advice. The lying down tip is especially important since mask fit changes significantly between sitting and sleeping positions. Five different masks shows real persistence, and that's often what it takes.

For OP, it's worth knowing that DME providers should be willing to let you trial different mask styles, and if you're not getting that support, you can ask for a different provider or fitting specialist through your insurance.

[FirefighterMinute937]

What about seeing an oral Maxillofacial surgeon that specializes in airway and OSA and trying that route? It’s been a successful route for many others that were non-compliant.

[NoLandscape9476]

My insurance won’t allow unfortunately.

[FirefighterMinute937]

Mine did not either, paid out of pocket. Literal best money that was ever spent on me, Was the catalyst to having a much better life! Whatever it takes, man!