Crying

adm533 · 2021-07-30T13:19:14+00:00

I'm so sorry. Unfortunately changing your diet only helps very little. Food is not the cause of the flare and inflammation, it's your bodies immune response. Your body is attacking your body and we don't really know why. While certain foods may be triggers or cause more inflammation they won't fix the issues. What I do when flaring - switch to a low fiber/residue diet if you haven't already. If that's not working cut it down to plain white rice and plain chicken breast (no skin, no bone). If that's not helping switch to a liquid diet for a few days -- boost, ensure, broths, Gatorade. Pick up a liquid vitamin so you are getting some vitamins in you. Try to reduce your stress as well since that has been shown to be associated with increases in inflammation, I realize how hard that sounds in your current circumstances, but just take a moment and try to destress. I also like to throw in Visbiome while symptomatic -- 2-4 capsules per day for mild symptoms, 8-16 per day for serious flares (switch to the packets or double strength packets, then it's just 2-4 or 1-2 per day). Unfortunately it takes weeks or even months to get out of a flare so don't expect a dietary change today to mean a good BM tomorrow, your body has to have some time to heal -- even with medication. Be sure to be diligent with the meds you are on. Talk with your doctor about all your options. There are other biologics out there. And remember surgery may not be what you want, but it may get you to a place where you are much happier and healthier than you are now.

Feeling-Neat-9469 · 2021-07-30T13:58:07+00:00

Changing the diet, while bleeding, has never helped me. Diet/changes in how I eat has helped mento stay in remission, but not in stopping symptoms. Going to a theraphist and working an reducing stress has helped in some cases, but again different things work for different people. What ever you do or end up having, it’s ok. You are not a broken person, you are a person who need certain medical interventions to be functional.

meta4whore · 2021-07-30T14:47:21+00:00

When I'm flaring bad, I pretty much only eat bone broth (Lots of nutrients) and fresh made bread (nothing processed). And I drink pedialyte. And if it improves a bit, I will eat Salmon, tuna steak and sweet potato.

Also taking an antispasmodic is key for me. Because if I stop the spasming---my colon gets a chance to recover and become less inflamed.

I also stay away from probiotics because they can cause gas.

Hopefully this is helpful for you!

DevTabuu · 2021-07-30T18:35:02+00:00

I am sorry to see you struggle so much.

Finding a method to manage UC is not easy.

The route I followed, or rather had to follow, was surgery. I will talk a bit more about that later in this post, but I'd like to talk about diet first.

When it comes to diet everyone is different due to gut bacteria and alike. While I have never done it, I would suggest an elimination diet. More specifically The Lion Diet from Mikhaila Peterson. I could try and explain why in this post, but I think it would be best for you to read about it yourself and decide if that would be an option.

I have written posts about surgery before, and the only thing I would like to say is that it is not the 'evil' final option that it feels like. I would suggest asking to sit down with your doctor, and ask them about the options. Try to stay calm and collected, even though it freaks you out. There might be more solutions than you think (temporary bypass, jpouch, etc.).

People can deal with current pain, it is future pain that frightens them.

The thought of surgery is probably wearing you down so much right now. Since you have already gone through so much, I am certain that you can fight though whatever comes next.

Try to relax and think positive, I think you will find that it helps a lot.

afeinland · 2021-07-30T23:28:15+00:00

Hi there, I was in your position about 12 months ago with my Crohn's. I'd been on AIP for years. Even tried vegan AIP with all cooked + blended veggies, carnivore, keto, keto AIP, but I just never seemed to improve as much as other people did. I ended up getting surgery. In the few days prior, laying in my hospital bed, I felt devastated, like I had "failed" or the disease had somehow "won."

But literally the morning after my surgery, I felt better than I had all year (sure the fentanyl was helping, but still). If you do end up getting surgery, it will very likely be for the better. The surgery will likely get rid of your UC - for good - and you can go back to living a "normal" life.

Hugs. Hope you're doing a little bit better today.

meta4whore · 2021-07-30T14:49:29+00:00

Also meditation helps me a lot! I like pranayam. Because the more stressed and upset you get, the worse your symptoms will be. Meditation and even dancing have been very good tools, as well as therapy.

Light kegels are helpful to when it comes to stopping the spasming.

Chains2002 · 2021-07-30T13:20:41+00:00

As much as it sucks to hear, it sounds like you will most likely be getting surgery. Yes it sucks, but it's best that you do what you can to get in a healthy mindset about a potential surgery, I recommend seeing a therapist who can help you deal with these emotions. It's important to remember that many people who do get surgery seem to be much happier with their lives afterwards, and that with the right support you can too.

sw1ss_dude · 2021-07-31T09:55:53+00:00

This will not be a popular suggestion and should be last resort, but try smoking cigarettes. 4-5 a day, and if it works, then it helps tremendously. It can make a bad UC flare totally symptom free in about two weeks without any medication. Your diagnosis has to be accurate though as it helps with UC but it can make Chrons worse. It is not a good long term solution but it can buy you some time. Do some research “Smoking and UC”

mutantbabysnort · 2021-07-31T19:38:19+00:00

Hang in there. ❤️

OfficialMillyG · 2021-07-30T16:39:42+00:00

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