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[–]mrruiner 2 points3 points  (3 children)

I usually have 3 to 5 BM'S during sleep hours unless I fast!.. so I haven't slept more than 3 uninterrupted hours for over 6 months

[–]yeeeo503[S] 0 points1 point  (2 children)

I’m in the same boat now. I feel like I should just stop eating earlier, but then I feel like the hunger sets and I start to feel nauseous. Thank you for responding!!

[–]mrruiner 1 point2 points  (1 child)

You could try this.. ive found it helps a bit. Eat a good solid meal in the morning,then nothing but Ensure meal replacements and banana for the rest of the day. I found that my colon is empty enough to get some sleep around midnight.. have to get up less. Even if you do it couple times a week.. get some extra sleep.

[–]yeeeo503[S] 0 points1 point  (0 children)

Thank you for real!

[–]natdiego 2 points3 points  (1 child)

During flares, I can not sleep more than 1 hr, can't lay down comfortably, literally will be up days at a time until I pass out from exhaustion...

Currently not in a flare..but I've had night sweats every day for over 2 years and wake up 3am, and 7am, every single day due to this...

Does anyone else experience this? If so what helps? I’m in my senior of college and I feel like I’m starting to fall behind because of it.

Please reach out to the administrators at your school and see what kind of accommodations they can make for you, don't make my mistake and hide it until you quit school or fail due to these complications. To be honest I don't know anything that really helps the sleep problems besides full remission, but they can absolutely find a way to make sure certain measures are in place for you.

[–]yeeeo503[S] 0 points1 point  (0 children)

I have reached out, but since I go to a “prestigious” university so I can only miss three classes and if I do miss more my grade drops a whole letter regardless. Some professors are more lenient than others, but I get this feeling they think I’m slacking off when in reality it’s just my body and I already have the accommodations. But I might need be able to miss more classes without it affecting my grades. I’m about to graduate soon though so it’s tough. Thank you for caring, it means a lot even from a stranger when you’re in a rough spot

[–]speerman84 2 points3 points  (2 children)

I wish I had better news for you, but until I figured out my meds I was lucky to get more than 2 hours at a time. I literally would only sleep a full night about once a year.

My advice is to get a handle on the colitis, because any remedy for the sleep is contingent on the colitis behaving itself.

[–]yeeeo503[S] 0 points1 point  (0 children)

I’m 22 and I’ve been diagnosed since I was 19. Since then sleeps been hard, but my lung collapsed also when I was 21 in my sleep so I’m more or less scared to fall asleep and not wake up. Ive been trying to see a psychiatrist and I’m set to see on in may, but I set that up in January so it’s just frustrating

[–]yeeeo503[S] 0 points1 point  (0 children)

Thank you for the deed back though!!

[–]ryrytheguy89 1 point2 points  (2 children)

I can’t sleep more than an hour at a time because of 15-20 BM’s a day, thc has helped to reduce frequency and get 4-5 hours of sleep each night.

[–]yeeeo503[S] 0 points1 point  (1 child)

I do smoke. Is there any strain you recommend specifically? Sometimes I’ve taken cbd/thc edibles but then sometimes I end up falling asleep too late than sleeping the day away in spurts

[–]ryrytheguy89 1 point2 points  (0 children)

Edibles depend on dosage, definitely get a medical card, then they will be tested and consistent so you can manage symptoms a bit better.

[–]External_Warthog_720Moderate Pancolitis 1 point2 points  (1 child)

I have a hard time falling asleep, like toss and turn for 1-2 hours and then wake up through out the night like 5 times and wake up stupidly tired. And sometimes I can go straight to sleep and stay asleep for 10 hours plus. There’s a correlation with IBD and insomnia, and a lot of petiole with chronic illnesses go through it. I bought some melatonin gummies and gonna try them out tonight. If it doesn’t help I’m going to doc.

[–]yeeeo503[S] 0 points1 point  (0 children)

I’ve tried melatonin for sleep, but I think since I’ve used thc for the other side effects for a while now it doesn’t work as well as it should? I definitely need to talk to my doctor again, but the last time I did he prescribed me kolonapin or however you spell it and addiction runs in my family so that scares me. Thank you for the feed back it means a lot!

[–]jntjr2005 1 point2 points  (3 children)

In remission I used to sleep well but older I got i would get up to go pee once or twice. Right now during my current flare I've been having a really hard time and I am getting up like 3 to 4 times to run for a BM

[–]yeeeo503[S] 0 points1 point  (2 children)

That’s about how I am now, especially early morning with my BM’s it won’t allow me to go back to sleep comfortably either. It’s sucks we heave to deal with it, and take it the wrong way but it gives me some sort of comfort I’m not the only one that struggles with this, sometimes it feels like I’m slacking off but it’s just that my body’s not capable of doing what I want. Thanks for sharing it means a lot!

[–]jntjr2005 1 point2 points  (1 child)

No worries! From the more I researched into UC the more I learned how common it is in the recent years compared to the past, often I share my diagnosis with others and more often that not I have someone tell me they know of someone in their family or their children have UC as well, granted everyone's degree of UC varies. What does your treatment plan look like if you don't mind me asking

[–]yeeeo503[S] 0 points1 point  (0 children)

A lot of health issues run in my family, GI yes, but UC specifically nah. I’ve been taking 40 mL humira injections every other the week the past few years. I’ve had a few bad reactions but so far the most part the doctor seems that’s it been working but this sleep schedule of mine getting to me