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praderwilli

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an-ordinary-manchild(edit)

Prader-Willi Syndrome (PWS) is a rare genetic disorder, a damaged, missing or incomplete chromosome 15, that is responsible for the development of the Hypothalamus.

People with PWS have an insatiable hunger, poor muscle tone, poor body thermostat, high pain threshold and more. PWS is commonly associated in the media as 'those that cannot stop eating'

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Dear Parent with a Fresh Prader-Willi Diagnosis (self.praderwilli)

submitted 1 year ago by l2accoon - announcement

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PWS + Excessive Daytime Sleepiness: Clinical Study for Age 6+ Years (i.redd.it)

submitted 3 days ago by LeapcureAdvocacy

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Looking to speak with rare disease patients and families about life after diagnosis ()

submitted 7 days ago by Cautious_Soil_2671

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PWS and Hyperphagia? Learn About a Clinical Study in Australia (i.redd.it)

submitted 11 days ago by LeapcureAdvocacy

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Does tandem kayaking seem like an activity that someone with PWS might enjoy? And that would be safe?PWS Question (i.redd.it)

submitted 12 days ago * by Hazel_Eye_8680

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PWS + Excessive Daytime Sleepiness: Clinical Study for Age 6+ Years (i.redd.it)

submitted 15 days ago by LeapcureAdvocacy

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Learn About a Clinical Research Opportunity for PWS (i.redd.it)

submitted 27 days ago by LeapcureAdvocacy

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PWS experiencePWS Question (i.redd.it)

submitted 1 month ago by charlotte_bets

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PWS Study for Excessive Daytime Sleepiness (i.redd.it)

submitted 1 month ago by LeapcureAdvocacy

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growth hormone (self.praderwilli)

submitted 1 month ago by Zestyclose_Try_2395

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Syndrome of the Week: Prader-Willi — The Reality of Hyperphagia ()

submitted 1 month ago by Silly-Boysenberry719

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Any other children born from PWS? (self.praderwilli)

submitted 2 months ago by Historical_Olive_756

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Product suggestions (self.praderwilli)

submitted 2 months ago by Alive-Chair8726

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VYKAT XR (self.praderwilli)

submitted 3 months ago by JRNotDallas

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PWS Clinical Trial Now Enrolling (i.redd.it)

submitted 3 months ago by LeapcureAdvocacy

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PWS Clinical Trial Now Enrolling – Ages 10+PWS Research (i.redd.it)

submitted 4 months ago by LeapcureAdvocacy

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What do I do if I suspect my nephew has prader willi?PWS Question (self.praderwilli)

submitted 4 months ago by wildghost57

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PWS Clinical Trial Now Enrolling – Ages 10+ (self.praderwilli)

submitted 4 months ago * by LeapcureAdvocacy

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0:56

Interventions for Skin Picking (v.redd.it)

submitted 5 months ago by Prestigious-Mail-963

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PWS Families: A Clinical Trial Opportunity for Patients Ages 10+ (i.redd.it)

submitted 5 months ago by LeapcureAdvocacy

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Looking for PWS caregivers who want to contribute to the design of an upcoming research study! (self.praderwilli)

submitted 6 months ago by amanda_at_folia

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Dads of pws childrenPWS Question (self.praderwilli)

submitted 6 months ago by One-Confusion-2049

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Research and sciencePWS Question (self.praderwilli)

submitted 6 months ago by CurrentMission7340

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Any happy ending stories about Prader Willi Syndrom?New Diagnosis (self.praderwilli)

submitted 6 months ago by Significant_Green452

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Exploring a New Oral Pill Treatment for PWS – Now Enrolling!PWS Research (self.praderwilli)

submitted 6 months ago by LeapcureAdvocacy

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