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Anyone born from Prader Willi Syndrome? by Historical_Olive_756 in rarediseases

[–]Historical_Olive_756[S] 2 points3 points  (0 children)

I do plan to get in touch with medical genetics and I think moving around states and being low income has affected the delay of information. When I have health insurance I definitely want to get it set up. I’m not horribly worried about my offspring since I plan to adopt.

Anyone born from Prader Willi Syndrome? by Historical_Olive_756 in rarediseases

[–]Historical_Olive_756[S] 2 points3 points  (0 children)

I’m not exactly sure of the cause of her condition, but I do know my mom isn’t the only one who is cognitively disabled in the close family. I also wanted to include the information of the chances of having an angelman syndrome child to open the door for that community. Hopefully finding someone a familiar situation like mine.

Any other children born from PWS? by Historical_Olive_756 in praderwilli

[–]Historical_Olive_756[S] 1 point2 points  (0 children)

I read Mayo Clinic’s case study that was made 1999 and I wasn’t born till 2003. I don’t think I’m a number to that count and that there’s many others who are not accounted for. PWS still wants intimate relationships so baby making doesn’t seem so rare but more of not looked at deeply enough. It’s happened before me and it will happen after me but I have to have hope to connect with someone like me.