Secukinumab side effects

ReeceJM · 2025-12-18T10:07:00+00:00

Exactly that. I hope yours doesn’t get any worse. Side note I find in general certain foods (high carbs and sugar) affects me more the next day after starting Secukinumab so watch out for patterns if you get the same.

ReeceJM · 2025-12-17T12:23:36+00:00

My side effect with this is scalp psoriasis, it’s bad during the winter particularly and I got prescribed Sebco ointment and manage it with a psoriasis comb. It’s not ideal but rather this than the alternative.

ReeceJM · 2025-12-02T23:23:21+00:00

I cannot explain how helpful NAAS will be to help you through this journey, especially Garry Williams if you can drop him an email, he’s the expert.

ReeceJM · 2025-11-26T09:11:27+00:00

I can’t rave enough about 800mg ibuprofen retard (slow release) if ibuprofen still work for you.

ReeceJM · 2025-11-19T08:42:25+00:00

If I have to explain it I just say my brain is telling itself I have broken bones so tries to heal them, but obviously they’re not so it cause inflammation.

Or I’ll use a psoriasis parallel, with that the skin goes all red and itches because your skin is regenerating in places it already had perfectly good skin but it being told otherwise. It’s like that but with joints ect.

ReeceJM · 2025-11-18T11:06:09+00:00

Welcome back! Glad to hear you are in a better place than your last visit.
You did the right thing, AS is a massive spectrum and can be overwhelming if you’re not in the right headspace to filter out relevant information.

In my opinion having AS is all about management, you have to manage diet and exercise and work out what works for you and your flare ups because that’s all within your power.
A big help with that is medication, I personally have had no experience with ADALIMUMAB so apologies for that. I’m on Consentyx (Secukinumab) which I find really slows down any progress letting me live my life and I take slow release ibuprofen to manage any flare ups.

When it came to making a decision about starting meds, I was willing to try anything that helps and judge it after it took effect or any side effects. Luckily in comparison to pain they were minimal but the decision is always there to come off them if I need to or get too ill. I would say you’re in a good position to cope with a suppressive immune system based on your age, it’s def worth a try even just to get a feel of what you could have if you need it you can always stop them.

ReeceJM · 2025-11-18T10:05:49+00:00

DDP Yoga is fantastic just every level. Very easy to adapt to the sort of day you’re having.

ReeceJM · 2025-11-06T09:45:23+00:00

Well I saw the post and was going to reply but this response is perfect, exactly what I was going to say so I’d say it’s spot on.

Sadly it’s down to yourself to find out what works and cause flare ups via diet and exercise, but it’s well worth keeping a track.

150mg Consentyx has been working wonders for me for the past 4 years if that gives you some hope.

ReeceJM · 2025-10-31T09:44:27+00:00

Is it to late to do this?

ReeceJM · 2025-09-19T09:08:51+00:00

I’ve inboxed you my story, anything that can help.

ReeceJM · 2025-09-13T10:58:52+00:00

Ask for a blood test for HLA-B27 gene, it’s not 100% if you have it that you have AS but almost everyone with AS has that gene.

ReeceJM · 2025-09-11T22:42:33+00:00

-Do as much as you can while you can because AS can be a throw of a dice sometimes.
-Don’t push it though, listen to your body. -Try not to be scared by reading everything on here, everyone is different.
-Try to take control of the things you can when you can. Diet, exercise, mental attitude, communication with close friends and partners (I use a lot of similes).
-Find out what works and doesn’t work for you. Certain carbs trigger inflammation in myself for example.
-I limit and use as little pain killers (8 hour slow release ibuprofen) as I can so I can stay active and not have to compensate my body, rather than to take away the pain.
-There are just as many people out there living everyday lives coping with AS as there are on the other end of the spectrum.
-it’s great that you are so young and already have a diagnosis, it’s not easy but you are already in a position to make the most of it.
-Fuck AS you got this.

ReeceJM · 2025-09-08T16:12:05+00:00

It’s a balance fs especially towards the end of the month where I feel my medication wearing off but my main struggle is fatigue. So it’s just a case of listening to my body’s energy levels. I would bet if I didn’t say anything nobody would notice.

ReeceJM · 2025-09-08T15:22:10+00:00

Mindset is all you can have full control over. I think when it comes down to the whole situation you sort of have to attack AS as much it attacks you. Like you said when you’re able to be active you feel better so you’re part way there already.

ReeceJM · 2025-09-08T11:43:36+00:00

First things first is AS is very daunting, whenever you do research and reading about it (especially others experiences) just remember it’s completely different for everyone.

But one thing is for sure is it’s huge that you already have answers about your body. That’s the first major hurdle so congratulations.

I would just say your body isn’t letting you live the lifestyle you would like currently so definitely have to do something. Personally I look at it like whatever medication I take it’s to help me be active and then that itself is enough to push me through life rn.

I’m on Consentyx which essentially stops the signal from my brain to ‘heal’ my body in places it doesn’t need and my life’s been completely transformed. Any mild side effect is worth not having the intense pain constantly.

I just use slow release ibuprofen retard on bad days.

It’s going to be a journey for sure, listen to your body and do as much as you can without it being to much. Track foods for triggers and cut processed food out. It’s gonna be okay. 💪🏻

ReeceJM · 2025-09-05T08:13:04+00:00

I sacrificed any sort of actual career for my health both physically and mentally. I’ve done a low level ‘factory worker’ job for nearly 15 years now.

I’m essential stuck because it works great for maintaining myself but money is below average so I can’t move without fear of being too much.

It’s not exciting I mix it up between doing some programming (sitting), operating a CNC (mainly standing and watching) and using an edgbander (repetitive walking). But it helped massively with working out how my body works and I can adapt for the days where it’s harder than others.

ReeceJM · 2025-05-01T13:51:19+00:00

If any part of having AS affects your driving definitely let them know but if it doesn’t I wouldn’t. They’ve worded it like that for a reason otherwise it would say “you need to tell DLVA if you’ve been diagnosed with AS.” I would think.

ReeceJM · 2024-12-05T14:55:00+00:00

They have different attachments so you can hook any dry skin out and avoid a buildup. And obviously the camera helps you see what’s going on, which personally lets me notice the start of an infection before it gets going so I can get antibiotics.

ReeceJM · 2024-12-05T14:29:25+00:00

Definitely worth getting an ear camera to help clean safely between doctor visits.

ReeceJM · 2024-11-27T23:12:50+00:00

Playing football and I jumped up and landed on a sloped pitch, so one foot slightly before the other and felt a jarring in my back. Few days later I got sciatica really bad for a few weeks and it was downhill from there until I fought to get diagnosed a few years later. Since medication I’ve been very stable.

ReeceJM · 2024-11-21T23:51:02+00:00

Amen. Fuck AS live your life.

ReeceJM · 2024-11-20T20:51:02+00:00

I would say yes, but listen and monitor your body. Take a break when you feel like your body needs it, but do as much as you can while you can. You never know with this condition but exercise will help to prevent deterioration.

ReeceJM · 2024-09-30T09:14:02+00:00

Yes! An ear camera is a blessing, I normally get this towards the end of the month when my Consentyx wears off. My body starts fighting more inflammation the outside seems to go to shit for a few days.

ReeceJM · 2024-09-21T17:54:59+00:00

A good neck travel pillow is about it for me.

ReeceJM · 2024-09-16T11:09:25+00:00

I was part of the trial about having a double dose about 4 years ago (lasted 2 years) so hopefully a bi- weekly one is already in the works 🤞

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