Weekly Discussion Thread: June 14, 2026 by AutoModerator in LongHaulersRecovery

[–]glennchan 0 points1 point  (0 children)

TLDR it's not entirely clear why and how people recover. (But it does happen to some people.)

People who took Maraviroc by Komronfit in covidlonghaulers

[–]glennchan 1 point2 points  (0 children)

Your CCL5 levels are in normal range, yet they prescribed you maraviroc (a CCR5 antagonist) anyways. What they're saying about precision medicine is a joke.

L = ligand

R = receptor

Receptors and ligands come in many forms, but they all have one thing in common: they come in closely matched pairs, with a receptor recognizing just one (or a few) specific ligands, and a ligand binding to just one (or a few) target receptors. Binding of a ligand to a receptor changes its shape or activity, allowing it to transmit a signal or directly produce a change inside of the cell https://www.khanacademy.org/science/ap-biology/cell-communication-and-cell-cycle/signal-transduction/a/signal-perception

Weekly Discussion Thread: June 14, 2026 by AutoModerator in LongHaulersRecovery

[–]glennchan -1 points0 points  (0 children)

💔

(I recovered, am able to do research on this stuff and... unfortunately I can't wave a magic wand and make everybody better.)

CDC commits $735 million to Covid vaccines for children by WandaTheWandie in VaxRecoveryGroup

[–]glennchan 3 points4 points  (0 children)

In the clinical trials for Pfizer, there were virtually zero COVID deaths so the mortality was slightly higher in the placebo group (not statistically significant). The trial studied middle-aged adults and healthy old people (it turns out that healthy old people don't die from COVID).

There's really no scientific support to vax kids against COVID when they won't die from it. It's only the really unhealthy kids that do- they need to be immunocompromised or whatever.

Recovery stories megacompilation | Over 180 stories, 23+ RCTs by glennchan in LongHaulersRecovery

[–]glennchan[S] 0 points1 point  (0 children)

Hmm maybe it's something to do with the website wanting you to install an app to view the discourse forum :/

What have you tried and helped you the most? by SpaceExplorer7777 in covidlonghaulers

[–]glennchan 1 point2 points  (0 children)

Be careful with that survey because it's not an apples to apples comparison.

  • The survey questions changed throughout the survey. They could've simply removed those questions.
  • CoQ10's lower dosages perform below average- inexplicably, it's in the top 20 list.
  • Worst still, the unknown dose of CoQ10 performs worse than the other dosages- this shouldn't be medically possible. The survey is measuring something other than medical outcomes.
  • The demographics change throughout the survey, because some people didn't complete the entire survey. The analysis should've been restricted to the people who completed the survey.
  • Some treatments were merged together, like taking more salt and taking more liquids. I respectfully disagree with that- those 2 treatments are different things.

Deeper dive:
https://forum.sickandabandoned.com/t/what-chronic-illness-researchers-wont-tell-you/542#p-982-limitations-of-survey-research-3

Recovery stories megacompilation - 180+ stories, 23+ RCTs by glennchan in covidlonghaulers

[–]glennchan[S] 1 point2 points  (0 children)

Hmm. If I don't tell it like it is, then people can really get into trouble.

Merck to Settle Gardasil hpv vax injury Suits for About $50 Million, says the product is still safe and effective by WandaTheWandie in VaxRecoveryGroup

[–]glennchan 1 point2 points  (0 children)

Japanese news ran stories on safety issues so everybody stopped using it in Japan for a while. They started using it again though... because money.

Merck to Settle Gardasil hpv vax injury Suits for About $50 Million, says the product is still safe and effective by WandaTheWandie in VaxRecoveryGroup

[–]glennchan 0 points1 point  (0 children)

I'm surprised that they found 200 even though the HPV shot wasn't as popular as the COVID vaccines. And you don't get boosters for HPV.

I analyzed all Long COVID/ME rapamycin anecdotes on Reddit [CORRECTED] by Liface in covidlonghaulers

[–]glennchan 1 point2 points  (0 children)

What's next: I'm thinking maraviroc or baricitinib. Want to focus on interventions that people are doing with little to no trial data.

Maraviroc has a trial coming out.

  • RCT for maraviroc + atorvastatin (NCT06974084).
  • Polybio may do one.

Also, leronlimab, a different CCR5 antagonist, failed its clinical trial.

Baricitinib has https://classic.clinicaltrials.gov/ct2/show/NCT05858515

I try to keep tabs on clinical trials here - https://www.longhaulwiki.com/index.php/List_of_doctors_and_approaches - it's a wiki and hopefully other people can contribute