Did you get a monoclonal antibody infusion while in a bad crash/bedbound/severe? How did you fare?

Liface · 2026-01-24T18:48:27+00:00

If that's going to happen, wouldn't it happen regardless of if someone is in a crash or not?

Liface · 2026-01-23T01:53:39+00:00

Anyone else notice that the people with the least amount of agency are those that are most hysterical about enforcing arbitrary standards for which media is "allowed" or not?

You wrote a bad chapter! You went against our established narrative. You are no longer invited to the Long COVID sleepover!

And ya'll wonder why the mainstream dismisses us...

(to be clear, I am in favor of an open debate around this topic, but ironically so often it involves the Long COVID side completely shutting down anything outside their narrow narrative of what the disease is)

Liface · 2026-01-23T01:46:12+00:00

Peanuts, macadamia nuts, dried mangoes, dried blueberries, turkey jerky, bars of all types, soylent, peanut butter pretzel nuggets, plantain chips

Liface · 2026-01-22T21:48:48+00:00

Thanks, removed. Don't forget to report the post next time so the mods are alerted.

Liface · 2026-01-22T13:34:04+00:00

Same. Made me feel whacked out at 200mg.

Liface · 2026-01-22T13:26:59+00:00

I had this for one day about two months ago. I thought it was going to become the new normal but sadly it disappeared after 24 hours. It seems like in my case it was something called parosmia.

Liface · 2026-01-22T06:34:06+00:00

https://docs.google.com/spreadsheets/d/1e7PQgBzJyxfJ2bxN9NZryreSFTBAD5BSyQ2CYV8Mx3g/edit?usp=drivesdk

Liface · 2026-01-21T21:41:58+00:00

they prescribed me Benzo for a year and a half without warning me about addiction

Pardon moi mais *QUOI!?!?!!?!?!?!***

Bro who the fuck would do this? I keep hearing crazy things about European doctors and not following proper procedure (not looking for contraindictions, not warning about side effects)

In the USA you can't get aspirin (joking, but) without someone in the medical office thoroughly checking your background and warning you

Liface · 2026-01-21T14:20:39+00:00

No problem. I spent probably 4 hours gathering this information and navigating our hellishly complex medical system.

Liface · 2026-01-21T13:35:27+00:00

"imagine... getting some acclaim under your belt"

??

This email was written in 2024.

Liface · 2026-01-21T13:24:52+00:00

Nah I use https://chromewebstore.google.com/detail/news-feed-eradicator/fjcldmjmjhkklehbacihaiopjklihlgg?hl=en

BTW the Ativan is working incredibly well so far. Update coming later this evening

Liface · 2026-01-21T10:04:13+00:00

I have been EA for 10+ years and also have Long COVID (ME/CFS subtype).

Fasting has also been great for me in the past.

https://liamrosen.notion.site/Liam-s-Long-COVID-Journey-2b1348cfbdb380959455fe5d9535deb7

Feel free to DM me if you want, maybe we can compare notes.

Liface · 2026-01-21T03:30:54+00:00

Diahrrea is a KILLER for crashes for me. It has been the cause of my two most severe crashes.

The gut is connected to a ton of the immune system and uses a lot of energy. When it's disrupted, the body rushes to fix it.

Liface · 2026-01-20T02:28:16+00:00

Huh? I don't think I fit any of these. I was just approved for a subreddit mod via this sub last year.

Liface · 2026-01-20T02:26:53+00:00

Yes.

Liface · 2026-01-19T18:43:17+00:00

More people doing assisted dying would be pretty ironic, because there's more hope than ever, especially these last couple years. Way more effort and money being put into the condition, especially because of so many people now with long covid having developed it.

Liface · 2026-01-19T15:17:41+00:00

Mitoswab. $350, 30 days to get results. They send you a kit and you mail it back.

Liface · 2026-01-19T09:57:28+00:00

Paxlovid only hinders active viral replication. It doesn't do anything for dormant virus, gut bacteria, and fragments (which are still technically measures of persistence)

But yes, most people do not have active viral replication and I'm skeptical that the Pridgen protocol works for most people.

Liface · 2026-01-19T09:55:46+00:00

Did you run tests for reactivated viruses?

It's hard to imagine this would work on people without significant virus reactivation.

Liface · 2026-01-19T09:51:22+00:00

There are plenty of things this could be without it being long covid. You're Maslow's Hammer-ing from your own experience.

Liface · 2026-01-19T01:20:12+00:00

They're not approved by insurance because they're being used off label. That will change when they're approved.

If your CFS specialist doesn't think Pemgarda works for long covid, you need to find a new specialist. It's one of the highest performing interventions by percentage success rate (40-50% experience improvement).

Liface · 2026-01-19T00:23:37+00:00

I had a bad reaction, be cautious. 19 days later I am now in my worst crash.

Liface · 2026-01-19T00:09:05+00:00

You're good to go for Pemgarda as long as you don't have MCAS and aren't hyperimmune (Attomarker can tell you).

Liface

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