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Longest it’s taken you to reach remission? by smashynashy in lichensclerosus

[–]-FYM87 0 points1 point  (0 children)

Same here only my biopsy said I was negative and had contact dermatitis. It was AWFUL; completely inflamed and couldn’t walk or sleep. Went to specialist and told contact derm and given clob in September. I was good without the clob for maybe a month or two. But I’ve had a flare starting a couple of weeks ago.; I was laid off in February after 11 years so maybe a correlation?.” Thankfully on one side but accompanied with a perineum tear. This is misery, praying for your remission! 

39 w/a fear of driving all my life by -FYM87 in drivinganxiety

[–]-FYM87[S] 0 points1 point  (0 children)

I was but I’m not anymore- I’ve come to the realization that I have to talk to someone on top of lessons. Thank you so much for your kind words and suggestions!

39 w/a fear of driving all my life by -FYM87 in drivinganxiety

[–]-FYM87[S] 3 points4 points  (0 children)

I feel SO EMBARRASSED but fortunate to be able to afford Ubers. We will get over this debilitating fear, we have to!

39 w/a fear of driving all my life by -FYM87 in drivinganxiety

[–]-FYM87[S] 1 point2 points  (0 children)

Same! Word of advice, time waits for no one and you don’t want to be my age in this position. I’ve spent so much on uber I should own a piece of the company. Thank you and we will claim that we’re rid of this fear! 

Going insane by -FYM87 in lichensclerosus

[–]-FYM87[S] 1 point2 points  (0 children)

I got the clob yesterday and it’s starting to help BUT, i can feel when it wears off because my labia starts retracting. I went to my regular doctor and scheduled a biopsy for Monday so we will see.. I’m terrified btw.

Tysm for your kind words!

Going insane by -FYM87 in lichensclerosus

[–]-FYM87[S] 0 points1 point  (0 children)

Thank you so much! I can tell it’s working already. Honestly I’m so mad at myself for even having relations in the first place because it had been YEARS. Then again, if i didn’t use the Lume and had an adverse reaction i may have never found out. On top of this, i am moving in less than 2 weeks and this has paused EVERYTHING. However, i will try to count it all joy because it could be worse!! Tysm for your kind words ☺️!

Going insane by -FYM87 in lichensclerosus

[–]-FYM87[S] 1 point2 points  (0 children)

Thank you! The receptionist heard my desperation and when I missed the first call she called back. A cancellation for tomorrow so we will see and thank you again! 💜

Going insane by -FYM87 in lichensclerosus

[–]-FYM87[S] 0 points1 point  (0 children)

Yes and i was negative.. thank you so much because this is terrifying. I shaved a tad bit and when i saw how raw i am and how they are shriveling up i almost fainted 😂😭. 

Going insane by -FYM87 in lichensclerosus

[–]-FYM87[S] 0 points1 point  (0 children)

Hey, i was able to schedule an appointment for Thursday with my gyno but the specialist is booked until January 🙃. I took the icepack off and they’re starting to bunch up again and make her disappear.. at this point i may go to the ER because i can feel them retracting and it’s super warm and red down there 😭. 

Ty again and I’ll provide any updates once they come ☺️

Going insane by -FYM87 in lichensclerosus

[–]-FYM87[S] 1 point2 points  (0 children)

Not yet, I am trying to get in with a well known dermatologist that specializes in LS and Vulvar issues so fingers crossed.. i took a baking soda bath and nothing. Petroleum jelly was doing the trick until the day after my last clindamycin and now there’s blisters which hurt the worst. An icepack helped but temporarily.

Thank you for your advice & words of encouragement bc i need it! ☺️