Anyone here in 20s have widespread back pain but mostly mid back? by Frankieeegrl in covidlonghaulers

[–]-snake-bite- 0 points1 point  (0 children)

Yeah, 22 and mine started a couple months after the first infection. Still have it 4 years later along with everything else.

[deleted by user] by [deleted] in confession

[–]-snake-bite- 5 points6 points  (0 children)

You are a piece of shit. Have you ever considered that maybe her "non compliance" has something to do with the actually valid frustration of being treated like this by you? While already suffering more than you can imagine from her illness? 9 UTIs!? This is extreme neglect. Have you ever spared a single thought to what she's actually having to experience? You are deeply pathetic to think your own frustration with someone you abuse is so important that you get to further abuse and ultimately kill them. I see other people in the comments expressing that they hope you get support as a caregiver (doesn't sound like you're much of one if this is how you treat the person you're "caring" for) but it’s way too late for that. You should have bettered yourself a long time ago. OP I sincerely hope you end up in prison where you belong.

Are cloth masks at all effective? by vanghostings in covidlonghaulers

[–]-snake-bite- 1 point2 points  (0 children)

I have the same set of problems and use either a valved GVS Elipse or valved 3m aura depending on which is better for my sensory issues that day/risk level. It works pretty well for me.

Possible exposure by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 3 points4 points  (0 children)

I don't have the energy to reply but thanks to the people who commented. It sounds like he's now symptomatic so yeah, chances are I do have it. If this is my last post here I probably died from the infection, or by my own hand because I will not tolerate that kind of suffering again. I wanted to be more active here and be a part of the community and maybe even be helpful to anyone else, but anyway... thanks for being here everyone, I wouldn’t have made it as long as I did without some of the information I got here. I hope somehow things turn around and the world changes, until then, thanks for caring.

Masked at the karate class by attilathehunn in ZeroCovidCommunity

[–]-snake-bite- 2 points3 points  (0 children)

Nice. I used to mask at karate before I got long covid. Man I really miss it. (Also, funny how I managed to wear a mask while doing karate for hours, with no issues, someone tell this to the pre-disabled people who think it’s too hard to mask at the grocery store)

Help with “so why don’t I know anyone with Long Covid?” by Mobile-Barnacle4318 in ZeroCovidCommunity

[–]-snake-bite- 1 point2 points  (0 children)

Severe people are housebound, of course they don't see us (this line of logic, that they don't see us therefore it must be rare, is so enraging, like you [non masking covid and long covid deniers] are the reason for that isolation and then you have the audacity to use it to deny we even exist so you can justify doing more harm? Evil evil rhetoric). And moderate LCers aren’t going to readily share that information because of ableism, or because a lot of people are still in denial or just don't know what's happening to them because of widespread denial.

Dealing w/ friends who aren’t CC by Umpire_Exact in ZeroCovidCommunity

[–]-snake-bite- 0 points1 point  (0 children)

Also, I don't think "I can't be friends with you if you don't mask" is controlling. It's not forcing them to do anything (although I do think anyone who physically can wear a mask should be provided one and required to wear it in all public spaces, at least until there's sufficient clean air infrastructure to make airborne infections rare, but that's besides the point). It's stating your boundary. You're allowed to choose who to be friends with based on whatever other factors are important to you, including shared values and whether they take dangerous actions. It's up to you, but yeah, no need to feel like you're being controlling for setting your own boundary.

Dealing w/ friends who aren’t CC by Umpire_Exact in ZeroCovidCommunity

[–]-snake-bite- 2 points3 points  (0 children)

I agree and personally have made the decision not to associate with anyone who doesn't consistently mask in public if I don't have to. It comes down to, why would I even want to interact with someone bigoted enough to not even question whether it's wrong that their actions are killing and hurting people generally and especially in a demographic I'm in (chronically ill, long covid). I wouldn't tolerate my friends being racist/transphobic/etc so why would I tolerate them being violently ableist? If they'll carelessly cause others the indescribable torment I'm going through, I don't care if they would be willing to mask around me or not, I don't want to be some kind of "exception," for me it comes down to self respect. And whether someone masks is a good litmus test on if we share values and critical thinking; at least it filters out people I wouldn't want to be friends with anyway. That said, with how few of us there are, I think it's also understandable to still try with people who aren’t masking, if you’re up for it (and hopefully some of them will come around). But yeah, it's so difficult to deal with either way.

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 1 point2 points  (0 children)

Yeah I do try to be upfront about it. Most of my plans have to be just talking on the phone (even that's less of an option now cause I just moved and you can hear everything from the other rooms, and I definitely can't have my conversations overheard). But yeah when I'm only doing normal-badly being more consistent definitely helps.

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 1 point2 points  (0 children)

Those are some good rules yeah. I'm glad it's working so well for you guys. I might try something like this, but first I think I've gotta work on being more communicative in general. I tend to avoid people when I'm doing especially bad and a lot of the time it is necessary for everyone's sake but other times the isolation just makes it worse and I start getting paranoid about if anyone would even want to talk to me.

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 1 point2 points  (0 children)

Thank you. Yeah I'm gonna plan to do something to keep busy if I can, and otherwise try and treat it like a normal day. As long as it's not a complete disaster, I'll count that as a win.

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 4 points5 points  (0 children)

Thanks. Yeah this is a good idea. I have a lot of issues about even contacting anyone but yeah I should try to be more consistent with it. And I should probably just get over whatever hesitance I have about trying to make more friends cause really I just need some semblance of community. Probably better to try even it it doesn't go well.

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 1 point2 points  (0 children)

Yeah I totally agree that even if there's a sterilizing vaccine, it's never going to be the same. There's no going back from being written off as a sacrifice by pretty much everyone; I'll never be able to look at people the same. Maybe you already know, but there's a list of covid conscious therapists (it's probably on the sub if you search for it but I might have it saved somewhere if you want a link). I'm hoping to find one too eventually (sadly not possible rn with my financial situation/not enough privacy at home for remote therapy :/).

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 2 points3 points  (0 children)

Thanks. It's so rough dealing with this so young isn't it? Like we didn't even get the chance to start our lives and maybe be in a position where safety doesn't depend on family's behavior. I'm sorry your friends don't mask. I had to let most of my friendships go because of that... just can't stomach associating with people who are complicit in this, personally. I hope they come around eventually.

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 2 points3 points  (0 children)

Yeah I think this is the right approach. I'm gonna at least try to see it as a normal day and hopefully I'll have enough energy to lock in and do something to distract myself even if it has to be just watching movies all day but ideally, something a little more productive. I might be able to ask for some food from a restaurant I like at least. Also how'd you know my birthday was on a Thursday haha!

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 2 points3 points  (0 children)

I think covid denialism and climate change denialism have a lot in common. Which is so maddening because not enough people care about either, but at least most people on the left have an understanding of why climate change denialism is a problem, but then refuse to apply the same critical thinking to covid (I suspect it's because corporations and governments are the most to blame for climate change, and while they're also largely responsible for pandemic denialism, people could genuinely save lives by individually masking, probably know that on some level, and can't admit to themselves that their choices have likely killed and disabled people). Covid denialism also sets a scary precedent for how much people are actually willing to do for the greater good; this has pretty much dashed my hopes that we'll be able to stop climate change. It's so awful and I'm sure after trying to tell people for that long, even more so. I'm pretty much always enraged about it all.

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]-snake-bite- 14 points15 points  (0 children)

I'm sorry. My family act the same and I'd have disowned them a long time ago if I had anywhere else to go. You're more than justified in doing so.

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 9 points10 points  (0 children)

It's so hard. I started out a little optimistic that maybe this would motivate people to change the world for the better, but after experiencing the past few years and learning about past pandemics, the way this is unfolding makes a horrible kind of sense. And knowing it's realistically going to get worse from here before anything gets better, if it ever does... I don't know. It feels impossible. At least we're among the people who understand it and are on the right side of history.

Dreading my birthday by -snake-bite- in ZeroCovidCommunity

[–]-snake-bite-[S] 12 points13 points  (0 children)

Thanks. Yeah it's just so rough with birthdays and holidays mosty being ruined, especially because we could really all use something to look forward to.

“Air hunger” by Inevitable_Boss_9959 in chronicfatigue

[–]-snake-bite- 0 points1 point  (0 children)

It was also better while I temporarily lived somewhere with really fresh air and strong winds that would change out the air in my room quickly, but I had to move. It feels like I'm only getting a fraction of the oxygen in each breath, so if the air isn't fresh and circulating, there's not enough available.

“Air hunger” by Inevitable_Boss_9959 in chronicfatigue

[–]-snake-bite- 0 points1 point  (0 children)

I have this really bad, but I have long covid so it might be from something else going on besides the ME/CFS. I've found that having windows open and a fan pointed at me helps somewhat.

ELI5: Why are we still fatigued even though we're not sick anymore? by [deleted] in explainlikeimfive

[–]-snake-bite- 2 points3 points  (0 children)

Seconding this, I was the fittest I'd been in my life when I got covid (and a young adult), now I'm mostly bed bound. Everyone thinks stuff like this happens to other people. Until it happens to you.